IX. Research Instruments/Resources
This section includes numerous clinical and research tools.
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Clinical Decision Making Tool -
City of Hope, Duarte, CA
This 14-item survey assesses nurses� clinical decision
making regarding pain management.
-
Controlling Pain Vignettes -
City of Hope, Duarte, CA
The vignettes for use with health care professionals, published
in a series in the journal Nursing,
provide case vignettes related to patient characteristics (i.e.
age, behavior) and pain control. Options are presented along
with the "right choice" and its rationale. Useful as a brief
survey to assess staff knowledge and decisions regarding pain.
-
CARES - An Acronyn Organized Tool for the Care of the Dying.
Developed by Bonnie Freeman, is an educational tool to help
nurses stay focused and provide a method
to inventory necessary tasks to address during the often chaotic
and stressful last few days to hours
of a patient’s life.
-
C.A.R.E.S. - A Tool for the Care of the Dying
- Self Care
- Emotional Support
- Restlessness
-
Family Pain Questionnaire -
City of Hope, Duarte, CA
The Family Pain Questionnaire (FPQ) is a sixteen-item ordinal
scale that measures the knowledge and experience of a family
caregiver in managing chronic cancer pain. This tool can be used
in clinical practice as well as research.
-
Instruments Used in End of Life Care Education, City of
Hope, Duarte, CA
A collection of instruments currently in use by City of Hope
investigators to assess staff knowledge and needs to improve end
of life care. Curriculum Survey for Nursing Schools; Clinical
Nurse Survey; Home Care/Hospice Agencies; Home Care Nurses and
HHAs; Knowledge Assessment for Nurses; Knowledge Assessment for
HHA�s; Chart Audit Tool; and a Case Analysis Form.
-
Knowledge and Attitudes Survey Regarding Pain -
City of Hope, Duarte, CA
An instrument to measure knowledge and attitudes
regarding pain in health care professionals. Used extensively by
clinical settings for several years, this tool provides
descriptive data regarding areas of needed pain education. (see
Item "25" below for pediatric version).
-
Pain Audit Tools -
City of Hope, Duarte, CA
These tools have been used extensively in pain/QA efforts.
Includes pain chart audit instrument, a version for surgical
pain, and a patient interview tool. (Also see related articles
under Pain
Assessment Tools).
-
Patient Pain Questionnaire -
City of Hope, Duarte, CA
The Patient Pain Questionnaire (PPQ) is a sixteen-item ordinal
scale that measures the knowledge and experience of a patient in
managing chronic cancer pain. This tool can be useful in
clinical practice as well as for research.
-
Pediatric Nurses�Knowledge and Attitudes Survey Manworren
and Shriners Hospitals for Children
Modified Pediatric Nurses Knowledge and Attitudes Survey (PNKAS)
regarding pediatric pain in burns, orthopedics and spinal cord
injuries. Answer
key also
provided.
-
Psychosocial Pain Assessment Form -
City of Hope, Duarte, CA
Developed by Shirley Otis-Green, MSW, LCSW.
This 8-page
assessment and guided interview form measures the impact of pain
on five domains; economics, social support, activities of daily
living, emotional problems, and coping behaviors as perceived by
the interviewer, patient and significant other.
- Psychosocial Pain Assessment Forms in
Spanish (for adults and
children/adolescents):
-Formulario
de Analisis Psicosocial del
Dolor
Para Adultos
-Formulario
de Analisis Psicosocial del
Dolor Para
Ninos y Adolescentes
- Quality of Life Instruments
- City of Hope, Duarte, CA
- Bone
Marrow Transplant Survivors is an
84-item tool specific for use in BMT.
- Breast
Cancer Patient Version is a
46-item tool specific for use in Breast
Cancer
- Ovarian
Cancer Patient Version
is a
45-item tool
specific for use in Ovarian
Cancer.
Also includes Spanish version of
the instrument.
- Patient/Cancer
Survivor Version is a
41-item ordinal scale that measures
quality of life through physical,
psychological, social, and spiritual domains. This tool has been
used
extensively in pain and cancer
survivorship research.
Also includes
Spanish version
of the instrument.
- Quality
Care at the End of Life Survey -
This
survey was designed based on
the National
Consensus Project for
Quality Palliative
Care Guidelines and
was developed and used at the
City of
Hope as a tool for assessing quality
care.
Users are invited to adapt and use it in
their own institutions to assess the
quality of care
provided and to measure
the institution's performance in
comparison with
national guidelines.
- Quality
of Life Family Version is a
37-item instrument that measures QOL of
a family member caring for a patient with
cancer. Also
includes Spanish version of
instrument.
- Quality
of Life for Patients with an
Ostomy is a 47-item tool specific for use
in Patients
with an Ostomy
- Staff
Survey on Ostomy Care
a 32-item
tool specific for staff
- Thyroid
Version is a
34-item tool specific for use in Thyroid
Cancer
