IX. Research Instruments/Resources

This section includes numerous clinical and research tools.

1. Clinical Decision Making Tool - City of Hope, Duarte, CA
   This 14-item survey assesses nurses� clinical decision making regarding pain management.    
    
2. Controlling Pain Vignettes - City of Hope, Duarte, CA
   The vignettes for use with health care professionals, published in a series in the journal Nursing, provide case vignettes related to patient characteristics (i.e. age, behavior) and pain control. Options are presented along with the "right choice" and its rationale. Useful as a brief survey to assess staff knowledge and decisions regarding pain.
   
3. CARES - An Acronyn Organized Tool for the Care of the Dying.
   
   Developed by Bonnie Freeman, is an educational tool to help nurses stay focused and provide a method
   to inventory necessary tasks to address during the often chaotic and stressful last few days to hours
   of a patient’s life.
    
4. C.A.R.E.S. - A Tool for the Care of the Dying
   - Self Care
   - Emotional Support
   - Restlessness
   
5. Family Pain Questionnaire - City of Hope, Duarte, CA
   The Family Pain Questionnaire (FPQ) is a sixteen-item ordinal scale that measures the knowledge and experience of a family caregiver in managing chronic cancer pain. This tool can be used in clinical practice as well as research.  
    
6. Instruments Used in End of Life Care Education, City of Hope, Duarte, CA  
   A collection of instruments currently in use by City of Hope investigators to assess staff knowledge and needs to improve end of life care. Curriculum Survey for Nursing Schools; Clinical Nurse Survey; Home Care/Hospice Agencies; Home Care Nurses and HHAs; Knowledge Assessment for Nurses; Knowledge Assessment for HHA�s; Chart Audit Tool; and a Case Analysis Form.
    
7. Knowledge and Attitudes Survey Regarding Pain - City of Hope, Duarte, CA
   An instrument to measure knowledge and attitudes regarding pain in health care professionals. Used extensively by clinical settings for several years, this tool provides descriptive data regarding areas of needed pain education. (see Item "25" below for pediatric version).        
    
8. Pain Audit Tools - City of Hope, Duarte, CA
   These tools have been used extensively in pain/QA efforts. Includes pain chart audit instrument, a version for surgical pain, and a patient interview tool. (Also see related articles under Pain Assessment Tools).
    
9. Patient Pain Questionnaire - City of Hope, Duarte, CA
   The Patient Pain Questionnaire (PPQ) is a sixteen-item ordinal scale that measures the knowledge and experience of a patient in managing chronic cancer pain. This tool can be useful in clinical practice as well as for research.      
    
10. Pediatric Nurses�Knowledge and Attitudes Survey Manworren and Shriners Hospitals for Children 
    Modified Pediatric Nurses Knowledge and Attitudes Survey (PNKAS) regarding pediatric pain in burns, orthopedics and spinal cord injuries.  Answer key also provided.
     
11. Psychosocial Pain Assessment Form - City of Hope, Duarte, CA   Developed by Shirley Otis-Green, MSW, LCSW.
    
    This 8-page assessment and guided interview form measures the impact of pain on five domains; economics, social support, activities of daily living, emotional problems, and coping behaviors as perceived by the interviewer, patient and significant other.
    
    - Psychosocial Pain Assessment Forms in
      Spanish (for adults and
      children/adolescents):
           -Formulario de Analisis Psicosocial del
            Dolor Para Adultos
           -Formulario de Analisis Psicosocial del
            Dolor Para Ninos y Adolescentes
     
12. Quality of Life Instruments - City of Hope, Duarte, CA   
    - Bone Marrow Transplant Survivors is an       
      84-item tool specific for use in BMT.
    
    - Breast Cancer Patient Version is a
      46-item tool specific for use in Breast
      Cancer
    
    - Ovarian Cancer Patient Version is a
      45-item tool specific for use in Ovarian
      Cancer.  Also includes Spanish version of   
      the instrument.
    
    - Patient/Cancer Survivor Version is a
      41-item ordinal scale that measures
      quality of life through physical, 
      psychological,  social, and spiritual   domains. This tool has been used
      extensively in pain and cancer
      survivorship research. Also includes
      Spanish version of the instrument.     
    
    - Quality Care at the End of Life Survey -   
      This survey was designed based on   
      the National Consensus Project for
      Quality Palliative Care Guidelines and 
      was developed and used at the City of
      Hope as a tool for assessing quality care.
      Users are invited to adapt and use it in
      their own institutions to assess the
      quality of care provided and to measure
      the institution's performance in
      comparison with national guidelines. 
    
    - Quality of Life Family Version is a
      37-item instrument that measures QOL of
      a family member caring for a patient with
      cancer. Also includes Spanish version of
      instrument.
    
    - Quality of Life for Patients with an
      Ostomy is a 47-item tool specific for use
      in Patients with an Ostomy 
    
    - Staff Survey on Ostomy Care a 32-item
      tool specific for staff          
    
    - Thyroid Version is a 34-item tool specific  for use in Thyroid Cancer