V. Special Population
         A.  Family Caregiving

 This section includes publications regarding the experiences of family caregiving for a loved one with serious illness.
  City of Hope Publications
  1. Sun, V., Grant, M., Koczywas, M., Freeman, B., Zachariah, F., Fujinami, R., Del Ferraro, C., Uman, G. & Ferrell, B. (2015). Effectiveness of an interdisciplinary palliative care intervention for family caregivers in lung cancer. Cancer.
     DOI: 10.1002/cncr.29567

  2. Ferrell, B., Wittenberg, E. (2017). A review of family caregiving intervention trials in oncology.  CA Cancer J Clin, 67:318–325. 

     

  3. Malloy, P., Takenouchi, S., Kim, HS., Lu, Y., Ferrell, B. (2018). Providing Palliative Care Education: Showcasing Efforts of Asian Nurses. Asia-Pacific of Oncology Nursing, Vol 5(1): 15-20.
  4. Ferrell, B., Kravits, K. (2017). Cancer care: Supporting underserved and financially burdened family caregivers. Journal of the Advanced Practitioner in Oncology, Vol 8(5): 494-500.

  5. Borneman, T., Sun, V., Williams, A.C., Fujinami, R., Del Ferraro, C., Burhenn, P., Irish, T., Zachariah, R., van Zyl, C., Buga, S. (2015). Support for patients and family caregivers in lung cancer: educational components of an interdisciplinary palliative care intervention.

     Journal of Hospice & Palliative Nursing, 17(4), 309-318.  
    DOI: 10.1097/NJH.0000000000000165


  6. Fujinami, R., Sun, V., Zachariah, F., Uman, G., Grant, M., Ferrell, B. (2015). Family caregivers' distress levels related to quality of life, burden, and preparedness. Psycho-Oncology, 24(1): 54-62.  PMCID: PMC4216636

  7. Sun, V., Grant, M., Koczywas, M., Freeman, B., Zachariah, F., Fujinami, R., Del Ferraro, C., Uman, G., Ferrell, B. (2015). Effectiveness of an interdisciplinary palliative care intervention for family caregivers in lung cancer. Cancer, 121(20): 3737-3745.  DOI: 10.1002/cncr.29567. NIHMSID: NIHMS703117.

  8. Juarez, G., Branin, J., Rosales, M. (2014). The cancer caregiving experience of caregivers of Mexican Ancestry.Hispanic Health Care International, 12(3), 120-129.
    DOI: 10.1891/1540-4153.12.3.120.
     
  9. Fujinami, R., Sun, V., Zachariah, F., Uman, G., Grant, M., & Ferrell, B. (2014). Family caregivers' distress levels related to quality of life, burden, and preparedness. Psycho-Oncology, Published online May 2014.   
    DOI: 10.1002/pon.3562.
     
  10. Hanson, J., Ferrell, B., & Grant, M. (2013). Websites and Resources for Cancer Family Caregivers. J Adv Pract Oncol 4(4), 269-272
     
  11. Grant, M., Sun, V., Fujinami, R., Sidhu, R., Otis-Green, S., Juarez, G., Klein, L., & Ferrell, B. (2013). Family caregiver burden, skills preparedness, and quality of life in non-small cell lung cancer. Oncology Nursing Forum, 40(4), 337-346.  
    DOI: 10.1188/13.ONF.337-346.
     
  12. Ferrell, B. R., Hanson, J., & Grant, M. G. (2012). An overview and evaluation of the oncology family caregiver project: improving quality of life and quality of care for oncology family caregivers. Psycho-Oncology, published online. DOI: 10.1002/pon.3198.
  13. Fujinami, R., Otis-Green, S., Klein, L., Sidhu, R., and Ferrell, B. (2012). Quality of life of family caregivers and challenges faced in caring for patients with lung cancer. Clinical Journal of Oncology Nursing, 16(6), 615; On-Line: E210-220. 
     
  14. Given, B., & Grant, M. (2012). Studies of caregivers of older patients needed.  Journal of Geriatric Oncology, 3(4), 295-298.  DOI: 10.1016/j.jgo.2012.07.007.
      
  15. Grant, M., & Ferrell, B. R. (2012). Oncology family caregivers: Introduction. Seminars in Oncology Nursing, 28(4), 203-204. DOI: 10.1016/j.soncn.2012.09.001. 
  16. Grant, M., & Ferrell, B. R. (2012).  Nursing role implications for family caregiving.  Seminars in Oncology Nursing, 28(4), 279-282.
    DOI: 10.1016/.j.soncn.2012.09.011. 
     
  17. Otis-Green, S., Juarez, G. (2012). Enhancing the social well-being of family caregivers. Seminars in Oncology Nursing, 28(4), 246-255.
    DOI: 10.1016/j.soncn.2012.09.007    . 
      
  18. Wittenberg-Lyles, E., Demiris, G., Oliver, D. P., & Burt, S. (2011). Reciprocal suffering: Caregiver concerns during hospice care. Journal of Pain and Symptom Management, 41(2), 383-393. 
    DOI: 10.1016/j.jpainsymman.2010.04.026.
     
  19. Ferrell, B. R., Grant, M., Koczywas, M., Hurria, A., Loscalzo, M., Juarez, G., Otis-Green, S., Uman, G., & Borneman, T. (2011). Family caregiver QOL and self-care concerns in lung cancer. CHEST, 140(4_MeetingAbstracts), 1051A-1051A.  
    DOI    : 10.1378/chest.1114776.
     
  20. Bevans, M., Castro, K., Prince, P., Shelburne, N., Prachenko, O., Loscalzo, M., et al. (2010). An individualized dyadic problem-solving education intervention for patients and family caregivers during allogeneic hematopoietic stem cell transplantation. Cancer Nursing, 33(2), e24-e32.
    DOI: 10.1097/NCC.0b013e3181be5e6d.
     
  21. Cooke, L., Gemmill, R., Kravits, K., & Grant, M. (2009). Psychological issues of stem cell transplant. Seminars in Oncology Nursing, 25(2), 139-150.
    DOI: 10.1016/j.soncn.2009.03.008.
     
  22. Juarez, G., Ferrell, B. R., Uman, G., Podnos, Y., & Wagman, L. D. (2008). Distress and quality of life concerns of family caregivers of patients undergoing palliative surgery. Cancer Nursing, 31(1), 2-10.
     
  23. Muñoz, C., Juarez, G., Muñoz, M. L., Portnow, J., Fineman, I., Badie, B., et al. (2008). The quality of life of patients with malignant gliomas and their caregivers. Social Work in Health Care, 47(4), 455-478.
    DOI: 10.1080/00981380802232396.
     
  24. Morris, M. E., Grant, M., & Lynch, J. C. (2007). Patient-reported family distress among long-term cancer survivors.Cancer Nursing, 30(1), 1-8. 
     
  25. Borneman, T., Chu, D., Wagman, L., Ferrell, B., Juarez, G., McCahill, L., & Uman. G. (2003). Concerns of family caregivers of patients with cancer facing palliative surgery for advanced malignancies.  
    Oncology Nursing Forum    , 30(6), 997-1005.   DOI: 10.1188/03.ONF.997-1005    .
     
  26. Borneman. T., Stahl, C., Ferrell, B. R., & Smith D. (2002). The concept of hope in family caregivers of cancer patients at home.  Journal of Hospice and Palliative Nursing, 4(1), 21-33. 
     
  27. Ferrell, B. R., Ervin, K., Smith. S., Marek, T., Melancon, C. (2002). Family perspectives of ovarian cancer. Cancer Practice, 10(6), 269-276.
    DOI:     10.1046/j.1523-5394.2002.106001.x.
     
  28. Ferrell, B. R. (2001).  Pain observed: The experience of pain from the family caregiver’s perspective.  Clinics in Geriatric Medicine, 17(3), 595-609.

    


   Educational Materials/Curriculum
  1. City of Hope, Patient and Family Caregiver Paliative Care  Intervention Materials:  

    See section
           VI. B. Patient and Family Education

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