City of Hope Pain & Palliative Care Resource Center

V.    Special Populations
        E.   Sickle Cell Disease

This section includes physician and patient resource guides in pain management in sickle cell disease as well as   clinical pathways for treatment.  Videos and guidelines for treatment are also available.

        Recommended Publications

1.       Sickle Cell Disease (Diseases and Disorders)
       -   Peak, L. (2007).  IL: Lucent Books   ISBN #: 1590188640.             

2.       The Sickle Cell Anemia Update
         -    Silverstein, A., Silverstein, V, & Silverstein Nunn, L. (2006).  NJ: Enslow Publishers. ISBN #: 0766024792.

3.      Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease: A Biopsychosocial Approach
          -      Brown, R. T. (2006). NY: Oxford University Press. ISBN #: 0195169859.

4.       Hope and Destiny: A Patient's and Parent's Guide to Sickle Cell Anemia
          -      Platt, A. & Sacerdote, A. (2006). IN: Hilton Publishing.  ISBN #: 0976444356.

5.       The Official Patient's Sourcebook on Sickle Cell Anemia
           -    Parker, J. N, & Parker, P. M.  (2005).  CA: Icon Health Publications. ISBN #: 049711563.

6.       Managing Sickle Cell Disease in Low-Income Families
          -     Hill, S. (2003). PA:Temple University Press.  ISBN #: 1592131956.  

7.       Sickle Cell Disease: Information for School Personnel
          -     Sickle Cell Advisory Committee. (1999).  NJ: New Jersey Department of Health and Senior Services.

        Educational Materials/Curriculum

1.       The Sickle Cell Information Center - Georgia Comprehensive Sickle Cell Center, Atlanta, GA.
          -     Information for Healthcare Providers
          -     Information for Patients and Families
          -    Interactive Sickle Cell Tutorial on CD for Patients and Professionals
 

        Guidelines/Clinical Pathways

1.       Guideline for the Management of Acute and Chronic Pain in Sickle Cell Disease - American Pain Society   

2.       Management of Pain in Sickle Cell Disease - American Academy of Family Physicians

3.       The Management of Sickle Cell Disease - National Institute of Health

4.       Resource Packet
           -    Sickle Cell Pain Relief Record - St. Francis Hospital & Medical Center, Hartford, CT. 
           -    Guidelines for Standards of Care of Painful Episodes in Patients with Sickle Cell Disease  - Thomas Jefferson University -Jefferson Medical College, Philadelphia, PA.       

       
       Other Organizational Links

Position Statements/Standards

1.        American Academy of Pediatrics (AAP) Position Statements
          -     Health Supervision for Children with Sickle Cell Disease
Timely and appropriate treatment of SCD is critical, because life-threatening complications develop rapidly. It is essential that every child with SCD receive comprehensive care that is coordinated through a medical home with appropriate expertise.