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Advanced Practice Nurse (APN) Toolkit
The
APN toolkit website contains a compendium of tools used in APN related research.
The measurement instruments listed on this website have been organized
according to the Participatory,
Evidence-based, Patient-focused
Process, for guiding the development,
implementation, and evaluation of Advanced
practice nursing (PEPPA) framework.
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Brief Pain Inventory
The BPI is a brief, simple, and easy to use tool for the assessment of
pain in both clinical and research settings. It was developed by
Charles Cleeland, PhD and is available through the Pain Research Group at MD
Anderson Cancer Center. The BPI uses simple numeric
rating scales from 0 to 10 that are easy to understand and easy to translate
into other languages. It is a well validated instrument to measure pain
intensity, functionality and the impact of pain on one's life in the past 24
hours and within the past week.
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Short
version
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Long version
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Brief
Pain Inventory User Guide
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Brief
Pain Surveys
This is a collection of 6 brief surveys: Pain Assessment/Behavior Survey;
Pain/Gender Survey; Brief Cancer Pain Information Survey; Pain Addiction Survey;
Brief Pharmacology Survey; Test Questions. These short surveys developed by
Margo McCaffery and Betty Ferrell are intended for practical use in situations
such as staff education where limited time and resources are available for data
collection or analysis.
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Clinical Decision Making Tool
- City of Hope, Duarte, CA
This 14-item survey assesses nurses� clinical
decision making regarding pain management.
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Controlling Pain Vignettes
- City of Hope, Duarte, CA
The vignettes for use with
health care professionals, published in a series in the journal Nursing,
provide case vignettes related to patient characteristics (i.e. age, behavior)
and pain control. Options are presented along with the "right choice" and its
rationale. Useful as a brief survey to assess staff knowledge and decisions
regarding pain.
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Edmonton
Assessment Tools - Regional Palliative Care Program in Edmonton Alberta,
Canada
Online tools to measure discomfort and symptom assessment of dying
patients.
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End-of-Life Professional Caregiver Survey
- Yale School of Nursing
This is an excellent
tool for use to assess staff knowledge about palliative care.
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FACIT Questionnaires
Functional Assessment of Chronic Illness Therapy (FACIT),
manages questionnaires that measure health-related quality of life for people
with chronic illnesses. The first questionnaire, The Functional Assessment of
Cancer Therapy-General (FACT-G), was developed and validated over 10 years ago,
and has been used in hundreds of studies worldwide.
Since
then over
40 questionnaires have been developed and translated some of them into over 45
different languages. They have also developed and translated instruments for
fatigue, treatment satisfaction, spiritual well-being, HIV disease, multiple
sclerosis, and other chronic conditions.
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Family Pain Questionnaire - City
of Hope, Duarte, CA
The Family Pain
Questionnaire (FPQ) is a sixteen-item ordinal scale that measures the knowledge
and experience of a family caregiver in managing chronic cancer pain. This tool
can be used in clinical practice as well as research.
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SF
Health Surveys
The
surveys are designed for use in clinical
practice and research, health policy evaluations, and general population
surveys. The SF-36 includes one multi-item scale that assesses eight health
concepts. It has been used extensively in QOL research in studying adjustment to
various chronic illnesses and it has been translated into over 80 languages.
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Instruments
Used in End of Life Care Education, City of Hope, Duarte, CA
A collection of instruments currently in use by City of Hope
investigators to assess staff knowledge and needs to improve end of life care.
Curriculum Survey for Nursing Schools; Clinical Nurse Survey; Home Care/Hospice
Agencies; Home Care Nurses and HHAs; Knowledge Assessment for Nurses; Knowledge
Assessment for HHA�s; Chart Audit Tool; and a Case Analysis Form.
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Knowledge
and Attitudes Survey Regarding Pain
- City of Hope, Duarte, CA
An instrument to measure knowledge and attitudes
regarding pain in health care professionals. Used extensively by clinical
settings for several years, this tool provides descriptive data regarding areas
of needed pain education. (see Item "25" below for pediatric version).
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M.D.
Anderson Symptom Inventory (MDASI) - MD Anderson Cancer Center, TX
The MDASI is used for patients with symptoms due to cancer and cancer treatment
to assess the severity of multiple symptoms and the impact of symptoms on daily
functioning.
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McGill Pain
Questionnaire
The McGill Quality of Life Instrument (MQOL) is a 20-item scale specifically
developed to measure quality of life at the end of life. The MQOL was designed to measure quality of life of people at
all stages of a life-threatening illness. The MQOL assesses general domains
applicable to all patients, incorporates the existential domain, balances
physical and non-physical aspects of quality of life, and includes both positive
and negative influences on quality of life.
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McGill Short-Form Pain
Questionnaire
The McGill Short Form Pain Questionnaire is a patient-reported instrument that
employs 16 items plus a single-item global scale, each with a 2-day time frame.
There are five domains that include: physical well-being, physical symptoms,
psychological, existential, and support. The instrument was designed to be
general in nature in order to maintain brevity and to assure applicability to
all patients. It has been used in various terminally ill patients.
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Medical
Algorithms Project - Medal: Advanced Medical Decisions
Research their vast collection, covering 45
medical specialties while we are upgrading to include our more than 20,000
authentic algorithms and computational instructions, based on best practices,
online or on mobile devices.
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Medical
Staff Knowledge & Attitudes Pain Survey - Dartmouth-Hitchcock Medical
Center, Lebanon, NH
46 item instrument used to
assess medical staff regarding knowledge and attitudes regarding pain.
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Memorial Symptom Assessment
Scale (MSAS)
The MSAS is a 32-item verbal rating
scale that measures psychological and physical symptoms with regard to their
presence, frequency, severity, and degree of distress associated with them. The MSAS has been shown to be reliable and valid. Additionally, the MSAS assesses
both physical and emotional symptoms.
Short form MSAS-SF.
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National Palliative Care
Research Center (NPCRC)
The NPCRC is committed to stimulating, developing, and funding research directed
at improving care for seriously ill patients and their families.
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Measurement and Evaluation Tools - Pain and Symptom Management
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Needs at the End-of-Life Screening Tool (NEST) - Buehler Center on Aging
NEST
is a comprehensive assessment and outcome measures instrument.
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Pain Audit
Tools - City of Hope, Duarte, CA
These tools have been used
extensively in pain/QA efforts. Includes pain chart audit instrument, a version
for surgical pain, and a patient interview tool. (Also see related articles
under Pain Assessment Tools).
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Patient Pain Questionnaire
- City of Hope, Duarte, CA
The Patient Pain
Questionnaire (PPQ) is a sixteen-item ordinal scale that measures the knowledge
and experience of a patient in managing chronic cancer pain. This tool can be
useful in clinical practice as well as for research.
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Patient-Reported Outcome and Quality of Life Instruments Database
(PROQOLID).
ProQolid describes more than 646 Patient-Reported Outcome instruments in
a structured format and is now available in two levels. The first level is free of charge and contains categories of basic useful information of these instruments. The second level,
which provides significantly more information about the instruments, also
includes review copies of over 500 original instruments, 170 user manuals and
1010 translations, most in PDF format. It is restricted to annual subscribers. ProQolid
is updated regularly in close collaboration with the instruments� authors with
40 new instruments added in 2008.
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Pediatric
Nurses�Knowledge and Attitudes Survey Manworren and Shriners Hospitals for Children
Modified
Pediatric Nurses Knowledge and Attitudes Survey (PNKAS)
regarding pediatric pain in burns, orthopedics and spinal cord injuries. Answer
key also provided.
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Promoting Excellence in End of
Life Care
This
website includes validated tools for clinical assessment and research in palliative
care.
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Psychosocial Pain Assessment Form
- City of Hope, Duarte, CA
Developed by
Shirley Otis-Green, MSW, LCSW. This 8-page assessment and guided interview form measures the impact of pain
on five domains; economics, social support, activities of daily living, emotional
problems, and coping behaviors as perceived by the interviewer, patient and
significant other.
- Psychosocial Pain Assessment Forms in Spanish (for adults and
children/adolescents):
Formulario de An�lisis Psicosocial del
Dolor Para Adultos
Formulario de Analisis Psicosocial del Dolor Para Ni�os
y Adolescentes
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Quality of Life Instruments - City of Hope, Duarte, CA
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Bone Marrow Transplant
Survivors - is an 84-item tool specific for use in BMT.
- Breast Cancer
Patient Version � is a 46-item tool specific for use in Breast Cance
- Ovarian Cancer
Patient Version - is a 45-item tool specific for use in Ovarian
Cancer. Also includes Spanish version of
the instrument.
- Patient/Cancer
Survivor Version - is a 41-item ordinal scale
that measures quality of life through physical,
psychological, social, and
spiritual domains. This tool has been used extensively in pain and cancer
survivorship
research. Also includes Spanish version of the instrument.
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Quality Care at the End of Life Survey -
This survey was designed based on the
National Consensus
Project for Quality
Palliative Care Guidelines and was developed and
used at the City of Hope as a tool for assessing quality care. Users are
invited
to adapt and use it in their own institutions to assess the quality of care
provided and to measure the institution�s
performance in comparison with
national guidelines.
- Quality
of Life Family Version - is a 37-item instrument that measures QOL of a family member caring for a
patient
with cancer. Also includes Spanish version of instrument.
- Quality
of Life for
Patients with an Ostomy - is a 47-item tool specific for use in Patients with an Ostomy
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Staff Survey
on Ostomy Care - a 32-item tool specific for staff
- Thyroid Version
- is a 34-item tool specific for use in Thyroid Cancer.
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RN Needs Assessment: Pain
Management - U. of Wisconsin Hospitals & Clinics, Madison, WI
This two-page survey assists in planning continuing
education programs in pain management for nurses.
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Rehabilitation Professionals� Knowledge and Attitudes Survey Regarding Pain
� Boston School of Occupational Therapy, Boston, MA
This instrument was developed as an
inter-disciplinary tool to assess knowledge and attitudes regarding pain in
rehabilitation professionals. This tool was developed using the OT/PT IASP Pain
Curriculum in conjunction with 6 clinical experts.
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Survivorship Needs Assessment Tools
Survivorship Care Summary/Plan
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Cancer Treatment Plan & Summary
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American Society of Clinical Oncology (ASCO)
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Journey Forward Survivorship Care Plan Builder
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Livestrong Care Plan - Penn Medicines Oncolink
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Breast Cancer Survivorship Care Plan -
NCI Community Cancer Centers Program (NCCCP)
Survivorship Needs Assessments
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Cancer Survivors Survey of Needs - Mayo Clinic Cancer
Center
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Survivor Needs Assessment (English) - St. Luke's Hospital
and Health Network
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Survivor Needs Assessment (Spanish) - St. Luke's Hospital
and Health Network
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Survivor Assessment Tool (Patient) - University of
Tennessee Medical Center Cancer Institute
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Survivor Assessment Tool (Physician) - University of
Tennessee Medical Center Cancer Institute
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Pearlman-Mayo Survey of Needs � Pearlman Cancer
Center
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Toolkit of Instruments to
Measure End of Life Care (TIME).
This is an extensive website, funded by the Robert
Wood Johnson Foundation, and developed and maintained by Joan Teno, MD, MS at
Brown University. It includes an Executive Summary reporting the status and need
of instruments in end of life care along with listings, links, and access to
various instruments measuring various aspects of EOL care. Slide presentations,
new instruments and old draft instruments are also available on the website. Instrument sections are divided as follows: Quality of Life, Pain
and Other Symptoms, Emotional and Cognitive Symptoms, Functional Status, Survival
Time and
Aggressive Care, Advance Care Planning, Continuity of Care, Spirituality,
Grief and Bereavement, Caregiver Well-being, and Patient Centered Reports and Rankings (e.g.,
satisfaction) with Quality of Care.
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WHO (Five)
Well-Being Index � Psychiatric Research Unit, WHO Collaborating Centre for
Mental Health, Frederiksborg General Hospital, Denmark
(In 28 languages)
