City of Hope Pain & Palliative Care Resource Center

I.   Quality of Life and Cancer Survivorship

Section Description: This section includes City of Hope publications and figures of the City of Hope Quality of Life conceptual models. The section also includes City of Hope Publications related to Quality of Life in specific populations of ovarian cancer, breast cancer, cancer survivors, and Hematopoietic cell transplantation.

For more information on measurement tools for Quality of Life, refer to IX. Research Instruments.

    Quality-of-Life Models - all of the models include a list of references  
        -       Quality of Life Breast Cancer Model
        -       Quality of Life Cancer Survivor Model     
        -       Quality of Life Ovarian Cancer Model
        -       Quality of Life - Family Caregiver
        -       Quality of Life - Fatigue       
        -       Quality of Life Hematopoietic Cell Transplant (Bone Marrow Transplant)
        -       Quality of Life Ostomy Model
        -       Quality of Life - Pain  
             

City of Hope Publications     

1.       Smith, T., Temin, S., Alesi, E., Abernethy, A., Balboni, T., Basch, E., Ferrell, B. R., Loscalzo, M., Meier, D., Paice, J., Peppercorn, J., Somerfield, M., Stovall, E., & Von Roenn, J. (2012). American Society of Clinical Oncology Provisional Clinical Opinion: The integration of palliative care into standard oncology care. Journal of Clinical Oncology, 30(8), 880-887.
DOI: 10.1200/JCO.2011.38.5161.

2.     Borneman, T., Piper, B., Koczywas, M., Munevar, C., Sun, V., Uman, G., & Ferrell, B. R. (2012). A qualitative analysis of cancer-related fatigue in cancer-related fatigue in ambulatory oncology. Clinical Journal of Oncology Nursing, 16(1), E26-E32.
DOI: 10.1188/12.CJON.E26-E32.

3.    Grant, M., Economou, D., Ferrell, B. R., & Uman, G. (2012). Educating health care professionals to provide institutional changes in cancer survivorship care. Journal of Cancer Education, Published online 24 January 2012.

4.     Cooke, L., Chung, C., & Grant, M. (2011). Psychosocial care for adolescent and young adult hematopoietic cell transplant patients. Journal of Psychosocial Oncology, 29(4), 394-414. DOI: 10.1080/07347332.2011.582636.    

5.      Gemmill, R., Kravits, K., Ortiz, M., Anderson, C., Lai, L., & Grant, M. (2011). What do surgical oncology staff nurses know about colorectal cancer ostomy care? The Journal of Continuing Education in Nursing, 42(2), 81-88.
DOI: 10.3928/00220124-20101101-04.

6.      Sun, V., Borneman, T., Koczywas, M., Cristea, M., Piper, b., Uman, G., & Ferrell, B. R. (2011). Quality of life and barriers to symptom management in colon cancer. European Journal of Oncology Nursing, In Press. Available online 23 July 2011.

7.     Grant, M., Economou, D., & Ferrell, B. (2010). Oncology nurse participation in survivorship care. Clinical Journal of Oncology Nursing. 14(6), 709-715. DOI: 10.1188/10.CJON.709-715.

8.     Economou, D., Edgington, A., & Deutsch, A. (2010). Roles of the clinical nurse specialist and nurse practitioner in survivorship care. Journal of the Advanced Practitioner in Oncology, 1(2), 87-94.

9.    Grant, M. & Sun, V. (2010). Advances in quality of life at the end of life. Seminars in Oncology Nursing, 26(1), 26-35.
DOI: 10.1016/j.soncn.2009.11.005.

10.    Crane-Okada, R., Freeman, E., Ross, M., Kiger, H., & Giuliano, A. E. (2010). Training senior peer counselors to provide telephone support for newly diagnosed breast cancer survivors. Journal of Cancer Education, 25(2), 174-179.
DOI: 10.1007/s13187-009-0028-7.

11.     Wong, F. L., Francisco, L, Togawa, K., Bosworth, A., Gonzales, M., Hanby, C., Sabado, M., Grant, M., et al. (2010). Long-term recovery after hematopoietic cell transplantation: Predictors of quality-of-life concerns. Blood, 115(12), 2508-2519.
DOI: 10.1182/blood-2009-06-225631.

12.     Liu, L., Herrinton, L. J., Hornbrook, M. C., Wendel, C. S. Grant, M., & Krouse, R. S. (2010). Early and late complications among long-term colorectal cancer survivors with ostomy or anastomosis. Diseases of the Colon & Rectum, 53(2), 200-212.
DOI: 10.1007/DCR.0b013e3181bdc408.   

13.     Borneman, T., Koczywas, M., Sun, V., Piper, B.F., Uman, G., Ferrell, B.R. (2010). Reducing patient barriers to pain and fatigue management. Journal of Pain and Symptom Management, 39(3), 486-501. DOI: 10.1016/j.jpainsymman.2009.08.007.

14.   Grant, M. & Economou, D. (2010). Survivorship education for quality cancer care: Update. Oncology Issues, 25(3), 48-49.

15.   Gemmill, R., Sun, V., Ferrell, B. R., Krouse, R. S., & Grant, M. (2010). Going with the flow: Quality-of-life outcomes of cancer survivors with urinary diversion. Journal of Wound, Ostomy and Continence Nurses Society, 37(1), 65-72.
DOI: 10.1097/WON.0b013e3181c68e8f.

16.    Ramirez, M., McMullen, C., Grant, M., Alschuler, A., Hornbrook, M. C., & Krouse, R. S. (2009). Figuring out sex in a reconfigured body: experiences of female colorectal cancer survivors with ostomies. Women Health, 49(8), 608-624.
DOI: 10.1080/03630240903496093.

17.     Grant, M., Economou, D, Ferrell, B. R., & Bhatia, S. (2009). Research focused multidisciplinary team education helps shape survivorship programs. Oncology Nursing Forum, 36(1), XXXVIII. DOI:

18.     MacDonald, D., Sarna, L., Weitzel, J., Ferrell, B. R. (2009). Women’s perceptions of the personal and family impact of genetic cancer risk assessment: Focus group findings. Journal of Genetic Counseling. Published online November 2009.  
DOI: 10.1007/s10897-009-9267-3.

19.    Lundy, J. J., Coons, S. J., Wendel, C., Hornbrook, M. C., Herrinton, L., Grant, M., et al. (2009). Exploring household income as a predictor of psychological well-being among long-term colorectal cancer survivors. Quality of Life Research, 18(2), 157-161. DOI: 10.1007/s11136-008-9432-4.

20.    Krouse, R. S., Herrinton, L. J., Grant, M., Wendel, C. S., Green, S. B., Mohler, M. J., et al. (2009). Health-related quality of life among long-term rectal cancer survivors with an ostomy: manifestations by sex. Journal of Clinical Oncology, 27(28), 4664-4670. DOI: 10.1200/JCO.2008.20.9502.

21.   Baldwin, C. M., Grant, M., Wendel, C., Hornbrook, M. C., Herrinton, L. J. McMullen, C., et al. (2009). Gender differences in sleep disruption and fatigue on quality of life among persons with ostomies. Journal of Clinical Sleep Medicine, 5(4), 335-343.

22.   Altschuler, A., Ramirez, M., Grant, M., Wendel, C., Hornbrook, M. C. Herrinton, L, Krouse, R. S. (2009). The influence of husbands’ or male partners’ support on women’s psychosocial adjustment to having an ostomy resulting from colorectal cancer. Journal of Wound, Ostomy, and Continence Nursing, 36(3), 299-305. DOI: 10.1097/WON.0b013e3181a1a1dc.

23.    Krouse, R. S., Grant, M., Rawl, S. M., Mohler, M. J., Baldwin, C. M., Coons, S. J., et al. (2009). Coping and acceptance: The greatest challenge for veterans with intestinal stomas. Journal of Psychosomatic Research, 66, 227-233.
DOI: 10.1016/j.jpsychores.2008.09.009.

24.    Cooke, L, Gemmill, R., Kravits, K. & Grant, M. (2009). Psychological issues of stem cell transplant. Seminars in Oncology Nursing, 25(2), 139-150.  DOI: 10.1016/j.soncn.2009.03.008.                                    

25.    Altschuler, A., Ramirez, M., Grant, M., Wendel, C., Hornbrook, M.C., Herrinton, L., & Krouse, R. S. (2009). The influence of husbands' or male partners' support on women's psychosocial adjustment to having an ostomy resulting from colorectal cancer. Journal Wound Ostomy Continence Nurse, 36(3), 299-305.  DOI: 10.1097/WON.0b013e3181a1a1dc.

26.    Symms, M. R., Rawl, S. M., Grant, M., Wendel, C. S., Coons, S. J., Hickey, S., et al. (2008). Sexual health and quality of life among male veterans with intestinal ostomies. Clinical Nurse Specialist, 22(1), 30-40.
DOI: 10.1097/01.NUR.0000304181.36568.a7.

27.   Sun, V., Ferrell, B., Juarez, G., Wagman, L. D., Yen, Y., & Chung, V. (2008). Symptom concerns and quality of life in hepatobiliary cancers. Oncology Nursing Forum, 35(3), E45-E52. DOI: 10.1188/08.ONF.E45-E52.

28.   Munoz, C., Juarez, G., Munoz, M. L., Portnow, J., Fineman, I., Badie, B., et al. (2008). The quality of life of patients with malignant gliomas and their caregivers. Social Work in Healthcare, 47(4), 455-478. DOI: 10.1080/00981380802232396.

29.    Mohler, M. J., Coons, S. J., Hornbrook, M. C., Herrinton, L. J., Wendel, C. S., Grant, M., et al. (2008). The health-related quality of life in long-term colorectal cancer survivors study: objectives, methods and patient sample. Current Medical Research and Opinion, 24(7), 2059-2070. DOI: 10.1185/03007990802118360.

30.    Piper, B. F., Borneman, T., Sun, V., Koczywas, M., Uman, G., Ferrell, B., James, R. (2008). Cancer-related fatigue: role of oncology nurses in translating National Comprehensive Cancer Network assessment guidelines into practice.  Clinical Journal of Oncology Nursing, 12(5 Suppl), 37-47. DOI: 10.1188/08.CJON.S2.37-47.

31.   Pittman, J., Rawl, S. M., Schmidt, C. M., Grant, M., Ko, C. Y., Wendel, C., & Krouse, R. S. (2008). Demographic and clinical factors related to ostomy complications and quality of life in veterans with an ostomy. Journal of Wound, Ostomy and Continence Nursing, 35(5), 493-503. DOI: 10.1097/01.WON.0000335961.68113.cb.

32.   Baldwin, C. M., Grant, M., Wendel, C., Rawl, S., Schmidt, C. M., Ko, C., & Krouse, R. S. (2008). Influence of intestinal stoma on spiritual quality of life of U.S. veterans. Journal of Holistic Nursing, 26(3), 185-194.
DOI: 10.1177/0898010108322546.

33.    McMullen, C. K., Hornbrook, M. C., Grant, M., Baldwin, C. M., Wendel, C. S., Mohler, M. J., Altschuler, A., Ramirez, M., & Krouse, R. (2008). The greatest challenges reported by long-term colorectal cancer survivors with stomas. The Journal of Supportive Oncology, 6(4), 175-182.

34.    Sun, V., Borneman, T., Piper, B., Koczywas, M., & Ferrell, B. R. (2008). Barriers to pain assessment and management in cancer survivorship. Journal of Cancer Survivorship, 2(1), 65-71. DOI: 10.1007/s11764-008-0047-0.

35.    Otis-Green, S., Ferrell, B. R., Sun, V., Spolum, M., Morgan, R., & Macdonald, D. (2008). Feasibility of an ovarian cancer quality-of-life psychoeducational intervention. Journal of Cancer Education, 23, 214-221.

36.    Crane-Okada, R., Washer, R. A, Elashoff, D. & Giuliano, A. E. (2008). Long-term morbidity of sentinel node biopsy versus complete axillary dissection for unilateral breast cancer. Annals of Surgical Oncology, 15, 1996-2005.
DOI: 10.1245/s10434-008-9909-y.

37.   Grant, M., & Economou, D. (2008). The evolving paradigm of adult cancer survivor care. Oncology-Nurse Edition, 22(4), 13-28.

38.    Ferrell, B. R., Paice, J., & Koczywas, M. (2008). New standards and implications for improving the quality of supportive oncology practice. American Society of Clinical Oncology, 26(23), 3824-3831. DOI: 10.1200/JCO.2007.15.7552.

39.    Shankar, S. M., Carter, A., Sun, C. L., Francisco, L., Baker, K. S., Gurney, J. G., Weisdorf, D. G., Forman, S. J., Robison, L. L., Grant, M., & Bhatia, S. (2007). Health care utilization by adult long-term survivors of hematopoietic cell transplant: Report from the bone marrow transplant survivor study. Cancer Epidemiology, Biomarkers & Prevention, 16(4), 834-839.
DOI: 10.1158/1055-9965.EPI-06-0714.

40.    Lowe, T., Ferrell, B., & Leong, L. (2007). Quality-of-life issues in the management of epithelial ovarian cancer. Current Treatment Options in Oncology, 8(6), 402-416. DOI: 10.1007/s11864-007-0049-6.

41.   Krouse, R. S., Grant, M., Wendel, C. S., Mohler, M. J., Rawl, S. M., Baldwin, C. M., et al. (2007). A mixed-methods evaluation of health-related quality of life for male veterans with and without intestinal stomas. Diseases of the Colon & Rectum, 50(12), 2054-2066. DOI: 10.1007/s10350-007-9004-7.

42.   Borneman, T., Piper, B., Sun, V., Koczywas, M., Uman, G., Ferrell, B. R. (2007). Implementing the fatigue guidelines at one NCCN member institution: Process and outcomes.  Journal of the National Comprehensive Cancer Network, 5(10), 1092-1101.

43.    Crane-Okada, R. (2007). A compass for the cancer journey: Scientific, spiritual, and practical directives. Oncology Nursing Forum, 34(5), 945-954. DOI: 10.1188/07.ONF.945-955.

44.    Jain, S., McGory, M., Ko, C., Sverdlik, A., Tomilinson, J., Wendel, C. S., et al. (2007). Comorbidities play a larger role in predicting quality of life compared to having an ostomy. American Journal of Surgery, 194(6), 774-779.
DOI: 10.1016/j.amjsurg.2007.08.020.

45.    Mitchell, K. A., Rawl, S. M., Schmidt, C. M., Grant, M., Ko, C. Y., Baldwin, C. M., et al. (2007). Demographic, clinical and quality of life variables related to embarrassment in veterans living with an intestinal stoma. Ostomy and Continence Nursing, 34(5), 524-532. DOI: 10.1097/01.WON.0000290732.15947.9e.

46.    Coons, S. J., Chongpison, Y., Wendel, C. S., Grant, M., & Krouse, R. (2007). Overall quality of life and difficulty paying for ostomy supplies in the Veterans affairs ostomy health-related quality of life study. Medical Care, 45(9), 891-895.
DOI: 10.1097/MLR.0b013e318074ce9b.

47.   Krouse, R. S., Grant, M., Wendel, C. S., Mohler, M. J., Rawl, S. M., Baldwin, C. M., Coons, S. J., McCorlke, R., Ko, C. Y., & Schmidt, C. M. (2007). A mixed-methods evaluation of health-related quality of life for male veterans with and without intestinal stomas. Diseases of the Colon and Rectum, 50(12), 2054-2066. DOI: 10.1007/s10350-007-9004-7.

48.   Krouse, R., Grant, M., Ferrell, B. R., Dean, G., Nelson, R., & Chu, D. (2007). Quality of life outcomes in 599 cancer and non-cancer patients with colostomies. Journal of Surgical Research, 138(1), 79-87. DOI: 10.1016/j.jss.2006.04.033.

49.    Grant, M., Economou, D., Ferrell, B. R., & Bhatia, S. (2007). Training healthcare professionals to meet cancer survivors’ needs. Oncology Nursing News. Nov/Dec 1(4).

50.    Grant, M., Economou, D., Ferrell, B. R., & Bhatia, B. (2007). Preparing professional staff to care for cancer survivors. Journal of Cancer Survivorship: Research and Practice, 1(1), 98-106.

51.   van Dis, F. W., Mols, F., Vingerhoets, A. J., Ferrell, B., van de Poll-Franse, L. V. (2006). A validation study of the Dutch version of the Quality of Life-Cancer Survivor (QOL-CS) questionnaire in a group of prostate cancer survivors. Quality of Life Research, 15(10), 1607-1612. DOI: 10.1007/s11136-006-0015-y.

52.    Ferrell, B. R., & Winn, R. (2006). Medical and nursing education and training opportunities to improve survivorship care. Journal of Clinical Oncology, 24(32), 5142-5148. DOI: 10.1200/JCO.2006.06.0970.

53.    Carter, A., Robison, L. L., Francisco, L., Smith, D., Grant, M., Baker, K. S., et al. (2006). Prevalence of conception and pregnancy outcomes after hematopoietic cell transplantation: report from the Bone Marrow Transplant Survivor Study. Bone Marrow Transplant, 37(11), 1023-1029. DOI: 10.1038/sj.bmt.1705364.

54.    MacDonald, D. J., Sarna, L., Uman, G. C., Grant, M., & Weitzel, J. N. (2006). Cancer screening and risk reducing behaviors of women seeking genetic cancer risk assessment for breast and ovarian cancers. Oncology Nursing Forum. 33, (2), E27-E35. DOI: 10.1188/06.ONF.E27-E35.

55.    Krouse, R. S., Mohler, M. J., Wendel, C. S., Grant, M., et al. (2006). The VA ostomy health-related quality of life study: Objectives, methods, and patient sample. Current Medical Research and Opinion, 22 (4), 781-791.

56.    Cooke, L., Grant, M., & Eldredge, D. (2006). Hematopoietic cell transplantation: The trajectory of quality of life. Blood and Marrow Stem Cell Transplantation, 3, 391-421.

57.    Bhatia, S., Robison, L. L., Francisco, L., Carter, A., Liu, Y., Grant, M., et al. (2005). Late mortality in survivors of autologous hematopoietic-cell transplantation: report from the Bone Marrow Transplant Survivor Study. Blood, 105(11), 2415-4222.
DOI: 10.1182/blood-2005-01-0035.

58.    Sherman, R. S., Cooke, L., Grant, M. (2005). Dialogue among survivors of Hematopoietic cell transplantation: Support group themes. The Journal of Psychosocial Oncology, 23(1), 1-24. DOI: 10.1300/J077v23n01_01.

59.    Grant, M., Cooke, L., Bhatia, S., Forman, S. (2005). Discharge and unscheduled readmissions of adult patients undergoing hematopoietic cell transplantation: Implications for developing nursing interventions. Oncology Nursing Forum, 32(1), E1-E8. DOI: 10.1188/05.ONF.E1-E8.

60.    Ferrell, B. R., Cullinane, C. A., Ervin, K., Melancon, C., Uman, G. C., & Juarez, G. (2005). Perspectives on the impact of ovarian cancer: women’s views of quality of life. Oncology Nursing Forum, 32 (6), 1143-1149.
DOI: 10.1188/05.ONF.1143-1149.

61.    Grant, M., Ferrell, B. R., Dean, G., Uman, G., Chu, D., & Krouse, R. (2004). Revision and psychometric testing of the City of Hope Quality of Life Ostomy Questionnaire. Quality of Life Research, 13, 1445-1457.

62.    Ferrell, B. R., Virani, R., Smith, S., & Juarez, G. (2003). The role of oncology nursing to ensure quality care for cancer survivors: A report commissioned by the National Cancer Policy Board and Institute of Medicine. Oncology Nursing Forum, 30(1), E1-E11. DOI: 10.1188/03.ONF.E1-E11.

63.    Ferrell, B. R., Smith, S., Cullinane, C., & Melancon, C. (2003). Psychological wellbeing and quality of life in ovarian cancer survivors. Cancer, 98(5), 1061-1071.

     
        Recommended Publications

1.       Schlairet, M., Heddon, M. A., Griffis, M. (2010). Piloting a needs assessment to guide development of a survivorship
         program for a community cancer center. Oncology Nursing Forum, 37(4), 501-508. DOI: 10.1188/10.ONF.501-508.

2.      Koensgen, D., Oskay-Oezcelik, G., Katsares, I., Walle, U., Klapp, C., Mustea, A., et al. (2010). Development of the Berline
         Symptom Checklist Ovary (BSCL-O) for the measurement of quality of life of patients with primary and recurrent ovarian
         cancer: Results of a phase I and II study. Supportive Cancer Care, 18(8), 931-942. DOI: 10.1007/s00520-009-0733-0.

3.      Syrjala, K. L., Yi, J. C., Artherholt, S. B., Stover, A. C., & Abrams, J. R. (2010). Measuring musculoskeletal symptoms in
         cancer survivors who receive hematopoietic cell transplantation. Journal of Cancer Survivorship, 4, 225-235.
         DOI: 10.1007/s11764-010-0126-x.

4.     Menses, K. & Benz, R. (2010). Quality of life in cancer survivorship: 20 years later. Seminars in Oncology Nursing, 26(1),
         36-46. DOI: 10.1016/j.soncn.2009.11.006.

5.     Matos, E., Skrbinc, B., & Zakotnik, B. (2010). Fertility in patients treated for testicular cancer. Journal of Cancer
        Survivorship, 4(3), 274-278. DOI: 10.1007/s11764-010-0135-9.

6.     Kim, C., McGlynn, K. A., McCorkle, R., Zheng, T., Erickson, R. L.,  Neibuhr, D. W., et al. (2010). Fertility among testicular
        cancer survivors: A case-control study in the U. S. Journal of Cancer Survivorship, 4(3), 266-273.
        DOI: 10.1007/s11764-010-0134-x.

7.     Hamilton, J. B., Agarwal, M., Carter, J. K., & Crandell, J. L. (2010). Coping profiles common to older African American
        cancer survivors: Relationships with quality of life. Journal of Pain and Symptom Management, 41(1), 79-92.  
        DOI: 10.1016/j.jpainsymman.2010.04.013.

8.     Carter, J., Raviv, L, Applegarth, L., Ford, J. S., Josephs, L., Grill, E., et al. (2010). A cross-sectional study of the
         psychosexual impact of cancer-related infertility in women: Third-party reproductive assistance. Journal of Cancer
         Survivorship, 4, 236-246. DOI: 10.1007/s11764-010-0121-2.

9.     Yu Ko, W. F., Degner, L. F., Hack, T. F., & Schroeder, G. (2010). Penile length shortening after radical prostatectomy:
         Men’s responses. European Journal of Oncology Nursing, 14, 160-165. DOI: 10.1016/j.ejon.2009.09.001.

10.    Sarna, L., Cooley, M. E., Brown, J. K., Chernecky, C., Padilla, G., Danao, L., et al. (2010). Women with lung cancer: Quality
         of life after thoracotomy. Cancer Nursing, 33(2), 85-92. DOI: 10.1097/NCC.0b013e3181be5e51.

11.     Rasmussen, D. M., Hanson, H. P., & Elverdam, B. (2010). How cancer survivors experience their changed body
         encountering others. European Journal of Oncology Nursing, 14, 154-154. DOI: 10.1016/j.ejon.2009.10.001.

12.    Beasley, J. M., Newcomb, P. A., Trentham-Dietz, A., Hampton, J. M., Ceballow, R. M., Titus-Ernstoff, L, et al. (2010).
         Social networks and survival after breast cancer diagnosis. Journal of Cancer Survivorship, 4(4), 372-380.
         DOI: 10.1007/s11764-010-0139-5.

13.    Prouty, D., Ward-Smith, P, & Hutto, C. J. (2010). The lived experience of adult survivors of childhood cancer. Journal of
         Pediatric Oncology Nursing, 23(3), 143-151. DOI: 10.1177/1043454206287295.

14.    Boehm, D. U., Lebrecht, A., Eckhardt, T., Albrick, S., Schmidt, M., Siggelkow, W., et al. (2009). Quality of life and adjuvant
         tamoxifen treatment in breast cancer patients. European Journal of Cancer Care, 18(5), 500-506.
         DOI: 10.1111/j.1365-2354.2008.01015.x.

15.    Wildes, K. A., Miller, A. R., San Miguel de Majors, S., & Ramirez, A. G. (2009). The religiosity/spirituality of Latina breast
         cancer survivors and influence on health-related quality of life. Psycho-Oncology, 18(8), 831-840.
         DOI: 10.1002/pon.1475.

16.    Janz, N. K., Mujahid, M. S., Hawley, S. T., Griggs, J. J., Alderman, A., Hamilton, A. S., et al. (2009). Racial/ethnic
         differences in quality of life after diagnosis of breast cancer. Journal of Cancer Survivorship, 3(4), 212-222.
         DOI: 10.1007/s11764-009-0097-y.

17.    Jacobsen, P. B. (2009). Clinical practice guidelines for the psychosocial care of cancer survivors. Cancer, 115(18 Suppl).
         4419-4429. DOI: 10.1002/cncr.24589.

18.    Work and Cancer Survivors
         -      Feuerstein, M. (2009). NY: Springer Science & Business. ISBN #: 978-0387720401

19.    Zebrack, B. (2009). Developing a new instrument to assess the impact of cancer in young adult survivors of childhood
         cancer. Journal of Cancer Survivorship, 3, 1932-2259. DOI: 10.1007/s11764-009-0087-0.

20.   Richardson, L. C., Wingo, P. A., Zack, M. M., Zahran, H. S., & King, J. B. (2008). Health-related quality of life in cancer
         survivors between ages 20 and 64 years. Cancer, 112(6), 1380-1389. DOI: 10.1002/cncr.23291.

21.    Sammarco, A., & Konecny, L. M. (2008). Quality of life, social support, and uncertainty among Latina breast cancer
         survivors. Oncology Nursing Forum, 35(5), 844-849. DOI: 10.1188/08.ONF.844-849.

22.    McCabe, M. S., & Jacobs, L. (2008). Survivorship care: Models and programs. Seminars in Oncology Nursing, 24(3),
          202-207. DOI: 10.1016/j.soncn.2008.05.008.

23.    Miller, K. D. & Triano, L. R. (2008). Medical issues in cancer survivors: A review. Cancer Journal, 14(6), 375-387.
          DOI: 10.1097/PPO.0b013e31818ee3dc.

24.    Ahmed, R. L., Prizement, A., Lazovich, D., Schmitz, K. H., & Folsom, A. R. (2008). Lymphedema and quality of life in
          breast cancer survivors: The Iowa women’s health study. Journal of Clinical Oncology, 26(35), 5689-5696.
          DOI: 10.1200/JCO.2008.16.4731.

25.   Meeske, K. A., & Nelson, M. B. (2008). The role of long-term follow-up clinic in discovering new emerging late effects in
        adult survivors of childhood cancer. Journal of Pediatric Oncology Nursing, 25(4), 213-219.
        DOI: 10.1177/1043454208320708.

26.    100 Questions & Answers About Life After Cancer: A Survivor’s Guide
         -     Tolbert, P. & Damaskos, P. (2008). MA: Jones and Bartlett Publishers. ISBN #: 0763750697.

27.    Sharp, L. K., Kinahan, K. E., Didwania, A., & Stolley, M. (2007). Quality of life in adult survivors of childhood cancer.
          Journal of Pediatric Oncology Nursing, 24(4), 220-226. DOI: 10.1177/1043454207303885.

28.    Sevy, R., & Riley, M. (2007). Partnering with cancer survivors. Oncology Issues (Sept/Oct), 42-45.

29.    Wethal, R., Kjekshus, J., Roislien, J., Ueland, T., Andreassen, A. K., Wergeland, R., et al. (2007). Treatment-related
          differences in cardiovascular risk factors in long-term survivors of testicular cancer. Journal of Cancer Survivorship, 1(1),
          8-16. DOI: 10.1007/s11764-007-0012-3.

30.    Handbook of Cancer Survivorship
          -     Feuerstein, M. (2007). NY: Springer Science & Business. ISBN #: 0387345612.

31.    Cancer Survivorship – Today and Tomorrow
          -     Ganz, P. A. (2007). NY: Springer Science & Business. ISBN #: 387343490.

32.    Implementing Cancer Survivorship Care Planning
          -      A National Coalition for Cancer Survivorship and Institute of Medicine National Cancer Policy Forum Workshop,
                 The Lance Armstrong Foundation, The Nation Cancer Institute, Hewitt, M. & Ganz, P. A. (2007).  
                 DC: The National Academies Press.  ISBN #: 309095956.

33.    A Guide to Survivorship for Women with Ovarian Cancer
          -     Montz, F. J, Bristow, R. E., & Anastasia, P. J. (2007). MD: John Hopkins University Press.  ISBN #: 0801880912.

34.    Everyone’s Guide to Cancer Survivorship: A Road Map for Better Health
         -     Gautier, H. & Rosenbaum, E. H. (2007). NJ: Andrews McMeel Publishing.  ISBN #: 0740768700.

35.    The Cancer Survivor’s Guide – The Essential Handbook to Life after Cancer
          -     Feuerstein, M. & Findley, P. (2006).  NY: Marlowe & Company.  ISBN #: 569243328.

36.    Prouty, D., Ward-Smith, P, & Hutto, C. J. (2010). The lived experience of adult survivors of childhood cancer. Journal of
         Pediatric Oncology Nursing, 23(3), 143-151. DOI: 10.1177/1043454206287295.

37.    Childhood Cancer Survivors: A Practical Guide to Your Future, 2^nd Ed (2006).
          -      Keen, N, Hobbie, W., Ruccione, K. (2006). CA: Sebastopol: O’Reilly Media. ISBN# 978-0-596-52851-5.       

38.    Haylock, P.J. (2006). The shifting paradigm of cancer care. American Journal of Nursing 106(Suppl. 3), 16-19.

39.    Rowland, J. H., Hewitt, M., & Ganz, P. A. (2006). Cancer survivorship: a new challenge in delivering quality cancer care.
          Journal of Clinical Oncology, 24(32), 5101-5104. DOI: 10.1200/JCO.2006.09.2700.

40.    Ganz, P. A. (2006). Monitoring the physical health of cancer survivors: a survivorship focused medical history. Journal
          of Clinical Oncology, 24(32), 5105-5111. DOI: 10.1200/JCO.2006.06.0541.

41.     Earle, C. C. (2006). Failing to plan is planning to fail: improving the quality of care with survivorship care plans. Journal
          of Clinical Oncology, 24(32), 5112-5116. DOI: 10.1200/JCO.2006.06.5284.

42.    Oeffinger, K. C. (2006). Models for delivering survivorship care. Journal of Clinical Oncology, 24(32), 5117-5124.
          DOI: 10.1200/JCO.2006.07.0474.

43.    Landier, W., Wallace, W. H. B., & Hudson, M. M. (2006). Long term follow up of pediatric cancer survivors: education,
          surveillance, and screening. Pediatric Blood Cancer. 46(2), 149-158. DOI: 10.1002/pbc.20612.

44.    Friedman, D. L., Freyer, D. R., & Levitt, G. A. (2006). Models of care for survivors of childhood cancers. Pediatric Blood
          Cancer, 46(2), 159-168. DOI: 10.1002/pbc.20611.

45.    Happiness in a Storm: Facing Illness and Embracing Life as a Healthy Survivor
          -     Harpham, W. S. (2005). NY: Norton & Company.  ISBN #: 393060802.

46.    You're Not Alone A Practical Guide for Maintaining Your Quality of Life While Living with Cancer
          -     Rosenbaum, E. H., Rosenbaum, I. R., & Anderson T. (2005). Online publication.

47.    From Cancer Patient to Cancer Survivor: Lost in Transition
          -     Hewitt, M., Greenfield, S., & Stoval, E. (2005). DC: The National Academies Press.  ISBN #: 309095956.

    
        Educational Materials/Curriculum

1.       Cancer Survival Toolbox - National Coalition for Cancer Survivorship
          -   The Cancer Survival Toolbox is a free, self-learning audio program that has been developed by leading cancer organizations to help people develop important skills to better meet and understand the challenges of their illness.  You can read or listen to the Toolbox in English and Spanish or download the files to read or listen later. Chinese transcripts are also available.  

2.      Coping with Cancer: Supportive and Palliative Care - National Cancer Institute
         -   Includes sections on Fatigue, Pain, Complications/Side Effects, Nutritional Concerns, Emotional Concerns, Treatment Related Issues, Clinical Trials, Information for Caregivers and Loved Ones, Survivorship and End of Life Issues.

3.      Facing Forward: Life After Cancer Treatment – National Cancer Institute
         -   This booklet shares what the NCI has learned from cancer survivors about life after cancer including practical ways of dealing with common problems and guidelines for managing your physical, social, and emotional health. Also available in Spanish.

4.      Survivorship: During and After Treatment – American Cancer Society
         -   Tips on staying active and healthy during and after cancer treatment. You can also get information on dealing with the possibility of cancer recurrence, and find inspiration and hope in stories about other people whose lives have been touched by cancer.

    
       Guidelines/Clinical Pathways

1.       Long-Term Follow Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers - CureSearch
         -    The Long-Term Follow-Up Guidelines were developed as a resource for clinicians who provide ongoing healthcare to survivors of pediatric cancer. 

2.     NCCN Guidelines – National Comprehensive Cancer Network
        -    NCCN Guidelines have become the most widely used guidelines in oncology practice and have been requested by cancer care professionals in over 115 countries. There has also been substantial international interest in translating the guidelines into a variety of languages. Select NCCN Guidelines have been translated into Chinese, German, Italian, Japanese, Russian, and Spanish.

3.     The National Action Plan for Cancer Survivorship – Centers for Disease Control & Prevention and the Lance Armstrong Foundation
        -    Developed to identify and prioritize cancer survivorship needs that will advance cancer survivorship in national, state, and community-level public health organizations.

      
      Other Organizational Links