This section includes book order forms, curriculum materials from a home care palliative education project, instruments used in end-of-life care, course syllabus on End-of-Life Care, and position statements from professional organizations. Additional information on other resource centers on end-of-life care and information on educational programs such as the End-of-Life Nursing Education Consortium (ELNEC) is also available.
City of Hope Publications
Virani, R., Malloy, P., Dahlin, C., & Coyne, P. (2014). Creating
a fabric for palliative care in safety net hospitals:
End-of-Life Nursing Education Consortium for Public Hospitals. Journal
of Hospice & Palliative Nursing, 16(5), 312-319.
Ferraro, D., Ferrell, B., Van Zyl, K., Freeman, B., & Klein, L.
palliative cancer care. Journal
of the Advanced Practitioner in Oncology, 5(5),
Borneman, T., Irish, T., Sidhu, R., Koczywas, M., & Cristea, M.
awareness, feelings of uncertainty, and hope in advanced lung
cancer patients: Can they coexist. International
Journal of Palliative Nursing, 20(6), 271-277.
Phillips, F., Anderson Head, B., Hedlund, S., Kalisiak, A.,
Zebrack, B., Kilburn, L., & Otis-Green, S. (2014). Enhancing
collaborative leadership in palliative social work in oncology. Journal
of Social Work in End-of-Life & Palliative Care, 10(4),
309-321. DOI: 10.1080/15524256.2014.975319.
Malloy, P., Paice, J., Coyle, N., Coyne, P., Smith, T., &
Ferrell, B. (2014). Promoting
palliative care worldwide through international
nursing education. Journal
of Transcultural Nursing, 25(4), 410-417.
Ferrell, B., R., Smith, T. J., Levit, L., & Balogh, E. (2104). Improving
the quality of cancer care: Implications for palliative care. Journal
of Palliative Medicine, 17(4), 393-399. DOI: 10.1089/jpm.2013.0536
Otis-Green, S., Sidhu, R. K., Del Ferraro, C., Ferrell, B.
social work into palliative care for lung cancer patients and
families: A multidimensional approach. Journal
of Psychosocial Oncology, 32(4), 431-446.
Ferrell, B., Otis-Green, S., Baird, P., & Garcia, A. (2014). Nurses’
responses to requests for forgiveness at the end of life. Journal
of Pain and Symptom Management, 46(2),
Koczywas M, Cristea M, Thomas J, McCarty C, Borneman T, Del
Ferraro C, Sun V, Uman G, Ferrell B. (2013).Interdisciplinary
palliative care intervention in metastatic non-small-cell lung
Lung Cancer. 14(6), 736-744.
Otis-Green, S., Wakabayashi, M. T., Morgan, R., Hakim,
A., Ferrell, B., Sun, V., Yang, E. & Grant, M. (2013).Palliative
care opportunities for women with advanced ovarian cancer
associated with intraperitoneal chemotherapy. Journal
of Palliative Medicine, 16(1),
44-53. DOI: 10.1089/jpm.2012.0174.
Freeman, B. (2013). CARES:
An acronym organized tool for the care of the dying. Journal
of Hospice & Palliative Nursing, 15(3), 147-153.
DOI: 10.1097/NJH.0b013e318287c782. CARES
Grant, M., Wiencek, C., Virani, R., Uman, G., Munevar, C.,
Malloy, P., & Ferrell, B. (2013). End-of-life
care education in acute and critical care:
The California ELNEC project. American
Association of Critical-Care Nurses, 24(2), 121-128.
Otis-Green, S., Yang, E., & Lynne, L. (2103). ACE
Project – Advocating for clinical excellence: Creating change in
the delivery of palliative care. Omega, 67 (1-2),
Otis-Green, S. (2013). Editorial:
Changing the change agents through palliative care educational
for psycho-oncology professionals. Omega, 67(1-2),
1-4. DOI: 10.2190/OM.67.1-2.a
Cooke, L., Grant, M., Gemmill, R.
needs of allogeneic transplantation recipients.
Clinical Journal of Oncology Nursing, 16(4), E142-E149. DOI:
Williams, A. C., Grant, M., Tiep,
B., & Hayter, J. (2012). Dyspnea
management in early-stage lung cancer. Journal
of Hospice & Palliative Nursing, 14(5), 332-340.
Smith, T., Temin,
S., Alesi, E., Abernethy, A., Balboni, T., Basch, E., Ferrell,
B. R., Loscalzo, M., Meier, D., Paice, J., Peppercorn, J.,
Somerfield, M., Stovall, E., & Von Roenn, J. (2012). American
Society of Clinical Oncology provisional clinical opinion: The
integration of palliative care into standard oncology care. Journal
of Clinical Oncology, 30(8), 880-887.
Del Ferraro, C.,
Grant, M., Koczywas, M., & Dorr-Uyemura, L. A. (2012). Management
of anorexia-cachexia in late-stage lung cancer patients.
Journal of Hospice & Palliative Nursing, 14(6), 397-402.
Ferrell, B. R.
the psychosocial care of patients with cancer at life’s end: A
global nursing response.Oncology Nursing Forum,
38(5), E335-E340. DOI: 10.1188/11.ONF.E335-E340.
Cooke, L. D.,
Gemmill, R., & Grant, M. L. (2011). Creating
a palliative educational session for hematopoietic stem cell
translantation recipients at relapse. Clinical
Journal of Oncology Nursing, 15(4), 411-417.
Paice, J. A.,
Erickson-Hurt, C., Ferrell, B. R., Coyle, N., Coyne, P. J.,
Long. C. O., Mazanec, P., Malloy, P., & Smith, T. J. (2011). Providing
pain and palliative care education internationally. The
Journal of Supportive Oncology, 9(4), 129-133.
Wiencek, C. A., Ferrell, B. R., & Jackson, M. (2011). The
meaning of our work: Caring for the critically ill patient with
cancer. AACN Advanced Critical Care, 4(22), 397-407.
Ferrell, B. R., Virani, R., Paice, J. A., Malloy, P., & Dahlin,
C. (2010). Statewide
efforts to improve palliative care in critical care settings.
Critical Care Nurse, 30(6), 40-45. DOI:
B. R., Virani, R., Malloy, P., Kelly, K. (2010). The
preparation of oncology nurses in palliative care. Seminars
in Oncology Nursing, 26(4), 259-265.
B. R. (2010). Palliative
care research: nursing response to emergent society needs. Nursing
Science Quarterly, 23(3), 221-225. DOI: 10.1177/0894318410371842.
Abernethy, A. P., Aziz, N. M., Basch, E., Bull, J., Cleeland, C.
S., Currow, D. C., Fairclough, D., Hanson, L., Hauser, J., Ko,
D., Lloyd, L, Morrison, R. S., Otis-Green, S., et al. (2010). Special
Report: A strategy to advance the evidence base in palliative
medicine: Formation of a palliative care research cooperative
group. Journal of Palliative Medicine, 12(13),
1407-1413. DOI: 10.1089/jpm.2010.0261.
Levit, L., Smith,
A., Benz, E., Ferrell, B. R. (2010). Ensuring
quality cancer care through the oncology workforce.Journal
of Oncology Practice, 6(1), 7-11. DOI: 10.1200/JOP.091067.
B. R., Virani, R., Jacobs, H. H., Malloy, P., & Kelly, K.
and humanities in palliative nursing education. Journal
of Pain Symptom Management, 39(5), 941-945.
B. R., Virani, R., Paice, J. A., Coyle, N., & Coyne, P. (2010). Evaluation
of palliative care nursing education seminars.
European Journal of Oncology Nursing, 14(1), 74-79. DOI: 10.1016/j.ejon.2009.08.004.
& Sun, V. (2010). Advances
in quality of life at the end of life. Seminars
in Oncology Nursing, 26(1), 26-35.
A., Ferrell, B. R., Coyle, N., Coyne, P., & Smith, T. (2010). Living
and dying in East Africa: Implementing the End-of-Life Nursing
Education Consortium curriculum in Tanzania. Clinical
Journal of Oncology Nursing, 14(2), 161-166.
Ferrell, B. R. (2010). Palliative
care research: Nursing response to emergent society needs.
Nursing Science Quarterly, 23(3), 221-225. DOI: 10.1177/0894318410371842.
Grant, M., Elk, R.,
Ferrell, B. R., Morrison, R. S. & von Gunten, C. F. (2009). Current
status of palliative care-clinical implementation, education,
and research. CA A Cancer Journal for Clinicians,
Lange, J., Shea,
J., Grossman, S., Wallace, M., Ferrell, B. R. (2009). Validation
of the end-of-life nursing education consortium knowledge
assessment Test (ELNEC-KAT): An abbreviated version. Journal
of Hospice and Palliative Nursing, 11(5), 284-290. DOI: 10.1097/NJH.0b013e3181b4cc54.
H., Ferrell, B. R., Virani, R., & Malloy, P. (2009). Appraisal
of the Pediatric End-of-Life Nursing Education Consortium
training program. Journal
of Pediatric Nursing, 24(3), 216-221. DOI:10.1016/j.pedn.2008.03.001.
Mara, A. M., St. Germain, D., Ferrell, B. R., & Borneman, T.
to and lessons learned from conducting palliative care research. Journal
of Pain and Symptom Management, 37(3), 387-394.
Otis-Green, S., Ferrell, B. R., Spolum, M., Uman, G., Mullan,
P., Baird, P., Grant, M. (2009). An
overview of the ACE project ~ Advocating for clinical
excellence: Transdisciplinary palliative care education. Journal
of Cancer Education, 24(2), 120-126.
Altilio, T., Otis-Green, S., & Dahlin, C. M. (2008). Applying
the National Quality Forum Preferred Practices for Palliative
and Hospice Care: A social work perspective. Journal
of Social Work in End Life Palliative Care, 4(1), 3-16.
Ferrell, B. R., Levy, M. H., & Paice, J. (2008). Managing
pain from advanced cancer in the palliative care setting.Clinical
Journal of Oncology Nursing, 12(4), 575-581. DOI: 10.1188/08.CJON.575-581.
Otis-Green, S., Lucas, S., Spolum. M., Ferrell,
B. R.., & Grant, M. (2008). Promoting
excellence in pain management and palliative care for social
workers. Journal of Social Work in End-of-Life and
Palliative Care, 4(2), 120-134.
Borneman, T., Koczywas, M., Cristea, M., Reckamp, K., Sun, V. &
Ferrell, B. R. (2008). An
interdisciplinary care approach for integration of palliative
care in lung cancer. Clinical
Lung Cancer. 9(6), 352-360.
Sun, V., Ferrell, B. R., Juarez, G., Wagman, L.
D., Yen, Y. & Chung, V. (2008). Symptoms
concern and quality of life in hepatobiliary cancers. Oncology
Nursing Forum, 32(3), 1-8.
Virani, R., Malloy,
P., Ferrell, B. R., & Kelly, K. (2008). Statewide
efforts in promoting palliative care. Journal of Palliative
991-996. DOI: 10.1089/jpm.2007.0291.
Ersek, M., Virani, R., Malloy, P., & Ferrell, B. R. (2008). End-of-Life
Nursing Education Consortium Geriatric Training Program:
Improving palliative care in community geriatric care settings. Journal
of Gerontological Nursing, 34(5), 28-35.
Altilio, T., Gardia, G., Otis-Green, S. (2008). Social
work practice in palliative and end-of-life care: A report from
the summit. Journal of Social Work in End-of-Life and
Palliative Care, 3(4), 68-86.
A., Lynn, J., Dy, S. M., Shugarman, L. R., Wilkinson, A.,
Mularski, R. A., Morton, S. C., Hughes, R. G., Hilton, L. K.,
Maglione, M., Rhodes, S. L., Rolon, C, Sun, V. C., et al.
for improving palliative care at the end of life: A systematic
review. Annals of Internal Medicine, 148(2),
P., Paice, J., Virani, R., Ferrell, B. R., & Bednash, G. P.
nursing education consortium: 5 years of educating
graduate nursing faculty in excellent palliative care. Journal
of Professional Nursing, 24(6), 352-357.
Malloy, P., Virani,
R., Kelly, K., Jacobs, H. H., & Ferrell, B. R. (2008). Seven
years and 50 courses later: End-of-life nursing education
consortium continues commitment to provide excellent palliative
care education. Journal of Hospice and Palliative
Nursing, 10(4), 233-239. DOI:10.1097/01.NJH.0000319163.35596.59.
Virani, R., Malloy, P., Ferrell, B. R., & Kelly, K. (2008). Statewide
efforts in promoting palliative care. Journal
of Palliative Medicine, 11(7), 991-996.
Paice, J. A.,
Ferrell, B. R., Coyle, N., Coyne, P., & Callaway, M. (2007). Global
efforts to improve palliative care: The international
end-of-life nursing education consortium training program. Journal
of Advanced Nursing, 61(2), 173-180.
T., Gardia, G., & Otis-Green, S. (2007). Social
work practice in palliative and end-of-life care: A report from
the summit. Journal
of Social Work in End-of-Life and Palliative Care,
Ferrell, B. R.,
Dahlin, C., Campbell, M., Paice, J., Malloy, P, Virani, R.
nursing education consortium (ELNEC) training programs:
Improving palliative care in critical care. Critical
Care Nursing Quarterly, 30(3), 206-212.
Borneman, T., Koczywas, M., Uman, G., & Ferrell, B. R. (2007). Symptom
concerns and resource utilization in patients with lung cancer.
Journal of Palliative Medicine, 10(4), 899-903.
P., Paice, J., Ferrell, B. R., Malloy, P., Virani, R., &
Fennimore, L. (2007). Oncology
end-of-life nursing education consortium training program:
Improving palliative care in cancer. Oncology
Nursing Forum, 34(4), 801-807.
Ferrell, B. R., Connor, S. R., Cordes, A., Dahlin, C. M., Fine,
P. G., Hutton, N., et. al. (2007). The
national agenda for quality palliative care: The National
Consensus Project and the National Quality Forum. Journal
of Pain and Symptom Management, 33 (6), 737-744.
M., Hanson, J., Mullan, P., Spolum, M., & Ferrell, B. R. (2007). Disseminating
end-of-life education to cancer centers: Overview of program and
of evaluation. Journal of Cancer Education, 22,
I. C., Grant, M., Aziz, N. M., Payne, R., Kagawa-Singer, M.,
Dunn, G. P. (2007). Prospective
integration of cultural consideration in biomedical research for
patients with advanced cancer: Recommendations from an
international conference on malignant bowel obstruction in
palliative care. Journal of Pain Symptom Management,
34(1 Suppl), S28-39.
P., Sumner, E., Virani, R., & Ferrell, B. R. (2007). End-of-life
nursing education consortium for pediatric palliative care
The American Journal of Maternal Child Nursing, 32(5), 298-302;
Duensing, L. & Otis-Green, S., (Eds), (2007). The
impact of culture on pain management, The Pain
Practitioner: Special Edition, 17(2), Summer.
R. A., Dy, S. M., Shugarman, L. R., Wilkinson, A. M., Lynn, J.,
Shekelle, P. G., Morton, S. C., Sun, V. C., et al. (2007). A
systematic review of measures of end-of-life care and its
Services Research, 42(5), 1848-1870.
B. R., Virani, R., & Malloy, P. (2006). Evaluation
of the end-of-life nursing education consortium project in the
Journal of Palliative Nursing, 12(6), 269-276.
Ferrell, B. R.
the moral distress of nurses witnessing medically futile care. Oncology
Nursing Forum, 33(5),
P., Ferrell, B. R., Virani, R., Wilson, K., & Uman, G. (2006). Palliative
care education for pediatric nurses. Pediatric
Nursing, 32(6), 555-561.
Ferrell, B. R., Virani, R., Uman, G., Rhome, A. M., Whitlatch,
B., & Bednash, G. (2006). Evaluation
of end-of-life nursing education for continuing education and
clinical staff development educators. Journal
for Nurses in Staff Development,
Paice, J.A., Ferrell, B.R., Virani,
R., Grant, M., Malloy, P., & Rhome, A. (2006). Graduate
nursing education regarding end-of-life care. Nursing
Outlook, 54(1), 46-52. DOI: 10.1016/j.outlook.2005.04.003.
Paice, J. A.,
Ferrell, B. R., Virani, R., Grant, M., Malloy, P., & Rhome, A.
of the graduate end-of-life nursing education consortium
training program. Journal
of Palliative Medicine, 9(2), 353-360. DOI:10.1089/jpm.2006.9.353.
Altilio, T. &
Otis-Green, S. (2006). “Res
ipsa loquitur”…It speaks for itself…Social work values, pain,
and palliative care. Journal
of Social Work in End-of-Life & Palliative Care, 1(4), 3-6. DOI: 10.1300/J457v01n04_02.
Ferrell, B. R.
of the domains of variables relevant to end-of-life care. Journal
of Palliative Medicine, 8, (Suppl
1), S22-29. DOI:10.1089/jpm.2005.8.s-22.
M., & Ferrell, B. R. (2005). Palliative
care nursing education: Opportunities for gerontological nurses.
Journal of Gerontological Nursing, 31(7), 45-51.
Grant, M. M., & Kraybill, B. M. (2005). Enhancing
end-of-life care in nursing homes: Palliative Care Educational
Resource Team (PERT) program. Journal
of Palliative Medicine, 8(3), 556-566.
Ferrell, B. R.,
Virani, R., Grant, M., Rhome, A., et al. (2005). Evaluation
of the end-of-life nursing education consortium undergraduate
faculty training program. Journal
of Palliative Medicine, 8 (1), 107-114.
Sherman, D., Matzo,
M., Pitorak, E., Ferrell, B. R., & Malloy, P. (2005). Preparation
and care at the time of death: Content of the ELNEC curriculum
and teaching strategies. Journal for Nurses in Staff
Development, 21(3), 93-100.
K., Lynn, J., Morton, S., Dy, S., Shugarman, L,. Wilkinson,
A, Mularski, R., Sun, V. et al. (2005).Methodological
approaches for a systematic review of end-of-life care. Journal
of Palliative Medicine, 8(Suppl 1), S4-11.
Ferrell, B. R.
care research: The need to construct paradigms. Journal
of Palliative Medicine, 7(3), 408-410.
Ferrell, B. R.
care: An essential aspect of quality cancer care.
Surgical Oncology Clinics of North America, 13(3), 401-411, vii.
Sherman, D., Matzo,
M., Coyne, P., Ferrell, B. R., & Penn, B. (2004). Teaching
symptom management in end-of-life care: The
didactic content and teaching strategies based on the
end-of-life nursing education curriculum. Journal
for Nurses in Staff Development, 20(3), 103-115.
S., Rosenfeld, K. E., Grant, M., Aziz, N., Byock, I., Sloan, J.
care research: Issues and opportunities. Cancer
Epidemiology Biomarkers & Prevention, 13(3), 337-339.
Coyle, N., & Ferrell, B. R. (2004). Why
isn't all care 'palliative care'?: Care
that’s based on need rather than prognosis. American
Journal of Nursing, 104(11), 11. DOI: 00000446-200411000-00001
L., Sherman, D. W., Nelson-Marten, P., Rhome, A., & Grant, M.
and legal issues in end-of-life care: Content of the End-of-Life
Nursing Education Consortium curriculum and teaching strategies.
Journal for Nurses in Staff Development, 20(2), 59-66; Quiz
D. W., Matzo, M. L., Paice, J. A., McLaughlin, M., & Virani, R.
pain assessment and management: A goal of the End-of-Life
Nursing Education Consortium. The Journal of
Continuing Education in Nursing, 35(3), 107-120; Quiz 141-142. DOI:
Y., Fine, P. G., Fischberg, D., Ferrell, B. R., & Taylor, M. L.
management at the end of life: Often a difficult call. Pain
Medicine, 4(1), 81-84. DOI: 10.1046/j.1526-4637.2003.t01-1-03009.x.
L., Sherman, D. W., Lo, K., Egan, K. A., Grant, M., & Rhome, A.
for teaching loss, grief, and bereavement. Nurse
Educator, 28(2), 71-76.
Ferrell, B. R. & Borneman, T. (2002). Community
implementation of home care palliative care education. Cancer
Practice, 10(1), 20-27. DOI: 10.1046/j.1523
Ferrell, B. R., Virani, R., Grant, M., Coyne, P., &
Uman, G. (2000). Beyond
the supreme court decision: Nursing perspectives on end-of-life
care. Oncology Nursing Forum, 27(3), 445-455.
Ferrell, B. R., Grant, M., & Virani, R. (2001). Nurses urged to address improved end-of-life care in textbooks. Oncology Nursing Forum, 28(9), 1349.
Principles and Practice of Palliative Care and Supportive
-Berger, A., Portenoy, R., & Weissman, D. (2013). MD: Lippincott Williams & Wilkins. ISBN #: 0781733243.
and Dying: Life and Living,
- Corr, C. A., Nabe, C. M., & Corr, D. M. (2012). CA: Wadsworth, Thomson Learning Publishing Company. ISBN-13: 978-1111840617.
and Loss: Theories and Skills for Helping Professionals,
- Walsh, K. (2012). MA: Pearson Publishers. ISBN: 9780205827091.
Handbook of Health Social Work,
-Gehlert, S. & Browne, T. (2011). NY: John Wiley & Sons. ISBN: #978-0470643655.
Palliative Care: Transforming the Care of Serious Illness
- Meier, D. E., Isaacs, S. L., & Hughes, R. (Eds.) (2011). CA: Jossey-Bass. ISBN: 978-0-470-52717-7.
Health Care Whole: Integrating Spirituality into Patient Care
- Puchalski, C. M., & Ferrell, B. R. (2010). PA: Templeton Press. ISBN: 9781599473505.
Reflections of a Loving Partner: Caregiving at the End of Life
- Martin, C. A. (2010). FL: Quality of Life Publishing Co. ISBN: 978-0-9816219-3-7.
Dickens, D. S. (2010). Comparing
pediatric deaths with and without hospice support. Pediatric
Blood Cancer, 54, 746-750. DOI:
Last Dance: Encountering Death and Dying,
- DeSpelder, L. A., & Strickland A. L. (2010). McGraw-Hill, ISBN: 978-0073405469.
Swallowed by a Snake: The Gift of the Masculine Side of Healing,
- Golden, T. R. (2010). Golden Healing Publishing LLC. ISBN: 978-0965464918
with Grief: Diversity and End-of-Life Care
Yearly book published by the Hospice Foundation of America. Each year addresses a different topic relating to grief.
· Cancer and End-of-Life Care
· Diversity and End-of-Life Care
· Children and Adolescents
· Before and After Death
· Ethical Dilemmas at the End of Life
· After Sudden Loss
Dorman, S., Jolley, C., Abernethy, A., Durrow, D., Johnson, M.,
Farquhar, M., et al. (2009). Researching
breathlessness in palliative care: Consensus statement of the
National Cancer Research Institute Palliative Care
Breathlessness Subgroup. Palliative
Medicine, 23, 213-227. DOI: 10.1177/0269216309102520.
C. A. (2009). Research in pediatric palliative care: Closing the
gap between what is and is not known. American
Journal of Hospice & Palliative Medicine, 26(5), 392-398.
Zinner, S. E. (2009). The
use of pediatric advance directives: A tool for palliative care
Journal of Hospice & Palliative Medicine, 25(6), 427-430.
Palliative Care Nursing: Quality Care to the End-of -Life,
- Matzo, M., & Sherman, D. (2009). NY: Springer Publishing Company. ISBN #: 9780826157911.
Counseling Individuals with Life-Threatening Illness
- Doka, K. J. (2009). NY: Springer Publishing Company. ISBN: 978-0826115416.
The End of Life Advisor
- Dolan, S. R., & Vizzard, A. R. (2009). Kaplan Publishing. ISBN: 978-1427798398.
Pain Management: The
Resource Guide for Home Health & Hospice Nurses
- Long, C. O, & Morgan, B. M. (2008). MD: Hopkins Medical Products, Inc. ISBN: 978-1111840617.
Handbook of Bereavement
Research and Practice: Advances in Theory and Intervention
- Stroebe, M. S., Hansson, R. O., Schut, H, & Stroebe, W. (2008). American Psychological Association.
Harper, J., Hinds, P. S., Baker, J. N., Hicks, J., Spunt, S. L.,
& Razzouk, B. I. (2007). Creating
a palliative and end-of-life program in a cure-oriented
pediatric setting: The zig-zag method. Journal
of Pediatric Oncology Nursing, 24(5), 246-254.
and Palliative Nursing: Scope and Standards of Practice,
- Hospice and Palliative Nurses Association. (2007). MD: American Nurses Association. ISBN #: 1558102078.
P. L., Schofield, P., Kelly, B., Hudson, R., Street, A.,
O’Connor, M., et al. (2006). Responding
to desire to die statements from patients with advanced disease:
Recommendations for health professionals. Palliative
Medicine, 20, 703-710.
Mularski, R. A., Curtis, J. R., Billings, J. A., Burt, R.,
Byock, I., Fuhrman, C., et al. (2006). Proposed
quality measures for palliative care in the critically ill: A
consensus from the Robert Wood Johnson Foundation Critical Care
Care Medicine, 34(11, Suppl), S404-S411. DOI: 10.1097/01.CCM.0000242910.00801.53.
Pain Management: The
Resource Guide for Home Health & Hospice Nurses
- Long, C. O, & Morgan, B. M. (2008). MD: HcPro, Inc. ISBN: 1601464606.
Living Through Loss: Interventions Across the Life Span
- Hooyman, N. R. (2008). NY: Columbia University Press. ISBN: 0231122470
National Framework and Preferred Practices for Palliative and
Hospice Care Quality
- Corrigan, J. M. (2008). DC: National Quality Forum. ISBN: 1933875062.
A Grace Disguised: How the
Soul Grows Through Loss
- Sittser, J. (2005). MI: Zondervan Publishing House. ISBN: 9780310258957
Ambiguous Loss: Learning to Live with Unresolved Grief
- Boss, P. (2000). MA: Harvard University Press. ISBN: 978-0674003811
Healing after Loss: Daily
Meditations for Working Through Grief
- Hickman, M. W. (1994). NY: Avon Books. ISBN: 978-0380773381. Christian slant but excellent reviews.
Oxford University Press Books
Textbook of Palliative Social Work
- Altilio, T. & Otis-Green, S. (2011). New York,
NY: Oxford University Press.
Oxford Textbook of
- Ferrell, B. R., Coyle, N., & Paice, J., (2015). NY:
Oxford University Press. ISBN: 9780199332342.
The Nature of Suffering and
the Goals of Nursing
- Ferrell, B. R., & Coyle, N. (2008). NY: Oxford
University Press. ISBN #: 0195333128.
Please check the Oxford University Press: Medicine
& Health section for more books.
Between a Rock and a Hard
Place: Clinical Ethics in Action
- Clinical Ethics Case Study Series by Dr. David Seres on behalf of the International Clinical Ethics Section (ICES) of the American Society for Parenteral and Enteral Nutrition.
BioMed Central (BMC)
An online journal publishing research articles after full peer review. A few of the articles available:
- Consensus Guidelines on Analgesia and
Sedation in Dying Intensive Care Unit Patients
- Family Meetings in Palliative Care:
Multidisciplinary Clinical Practice
- Quality of Life at the End of Life
- Sedation in Palliative Care – a critical analysis of
7 years experience
the Dying Patient -
- This project, funded by the Project on Death in America, is a listing of more than 250 videos recommended for use in palliative care education. Compiled by Marianne Matzo, RN, PhD, FAAN.
CARES: A Tool for the Care of the Dying –
City of Hope, Duarte, CA
CARES: Comfort Airway Restlessness Emotional support Self Care
- CARES printable versions (use legal size paper)
CARES is acronym for Comfort, Airway, Restlessness, Emotional support, and Self care to organize the most common needs and education requirements to support the dying patient and their family.
Center to Advance
Palliative Care (CAPC)
Excellent resource for palliative care issues.
CAPCconnect Forum-- Many project listings from hospitals, outpatient clinics, long-term care, and more.
Completing a Life: A Resource for Taking Charge, Finding
Comfort, Reaching Closure
- An interactive CD inviting patients and families to learn about the practical, emotional, spiritual, and medical issues faced by those dealing with advanced illness. The CD is available through the Instructional Media Center at Michigan State University at (517) 353-9229.
Core Curriculum for the
Advanced Practice Hospice and Palliative Nurse
- The goal of the curriculum is to provide a foundation of knowledge from which APNs can practice palliative care including advanced skills, management of complex life-limiting, progressive issues and special clinical issues.
Education in Palliative and End-of-Life Care (EPEC)
- Ordering information and description of a train the trainer program designed to educate physicians in the essential clinical competencies in end-of-life care. Program supported by a grant from the Robert Wood Johnson Foundation.
End-of-Life: Exploring Death in America
- Presents information on the "End-of-Life" series from National Public Radio (NPR). Includes an audio file and transcripts from the programs. Highlights issues such as coping with death, palliative medicine, grief and bereavement, funerals, reincarnation, and funeral homes. Includes a list of resources for people with life- threatening diseases and their families. Contains a bibliography of books and journal articles dealing with terminal illness, bereavement, grief, and medical and social policy relating to the care of the terminally ill.
End-of-Life Nursing Education Consortium (ELNEC) Project:
Advancing Higher Education in Nursing
- A comprehensive national education program to improve end-of-life care by nurses.
Life Online Curriculum,
US Veterans Administration and SUMMIT, Stanford University
- An online learning tool on palliative care, hospice
care, and bereavement. Contains case discussion,
defines terms, and generally does a good job of
education. Contains the following modules:
End-of-Life Professional Caregiver Survey -
Yale School of Nursing
- This is an excellent tool for use to assess staff knowledge about palliative care.
Facts Sheets - American Psychological Association
Fact Sheets –
International Association for the Study of Pain (IASP)
- Pain and Symptom Management During the Final Days of Life
Fast Facts and Concepts – Palliative
Care Network of Wisconsin (PCNOW)
Over 260 one-page synopsis on topics important to palliative and end-of-life care.
- Cancer Related Fatigue #173
- Dyspnea at End of Life #27
- Emergency Department Management of Hospice
- Initiating a Hospice Referral from the Emergency
- Neuroexcitatory Effects of Opioids: Patient
- Opioid Poorly Responsive Cancer Pain #215
Instruments Used in End-of-Life Care Education,
City of Hope, Duarte, CA
- A collection of instruments currently in use by City of Hope Investigators to assess staff knowledge and needs to improve end-of-life care. Curriculum Survey for Nursing Schools; Clinical Nurse Survey; Home Care/Hospice Agencies; Home Care Nurses and HHAs; Knowledge Assessment for Nurses; Knowledge Assessment for HHA’s; Chart Audit Tool; Case Analysis Form.
Care Quiz for Nursing
- Ross, M. M., McDonald, B., & Mc Guinness, J. (1996). The palliative care quiz for nursing (PCQN): the development of an instrument to measure nurses’ knowledge of palliative care. Journal of Advanced Nursing, 23(1), 126-137.
- Kirk, T. W., & Mahon, M. M. (2010). National Hospice and Palliative Care Organization (NHPCO) position statement and commentary on the use of palliative sedation in the imminently dying terminally ill patients. Journal of Pain and Symptom Management, 39(5), 914-923. DOI: 10.1016/j.jpainsymman.2010.01.009.
- Hospice and Palliative Nurses Association Position
Statement on Palliative Sedation
- Position Statement on Palliative Sedation -
American Academy of Hospice and Palliative
- Palliative Sedation: When and How? - The
University of Texas, MD Anderson Cancer Center
Quality Care at the
End-of-Life Survey – City
of Hope, Duarte, CA
- This survey was designed based on the National Consensus Project for Quality Palliative Care guidelines and used at the City of Hope as a tool for assessing quality care. Users are invited to adapt and use it in their own institutions to assess the quality of care provided and to measure the institution’s performance in comparison with national
TIPS Sheets -
Hospice and Palliative Nurses Association (HPNA)
- TIPS for Communicating with Seriously Ill Patients
(also Spanish Version)
- TIPS for Nearing Death Awareness (also Spanish
- TIPS for Recognizing Behaviors Indicating Patient
has Pain (also Spanish Version)
- TIPS for Recognizing Pain in Patients with an
Inability to Communicate Verbally (also Spanish
- TIPS for Respecting the Patient & Family Cultural
Beliefs (also Spanish Version)
- TIPS for Talking with Dying Patients (also Spanish
Guidelines for Quality Palliative Care
- The National Consensus Project (NCP) Clinical Practice Guidelines for Quality Palliative Care were developed by leaders in the field who examined other national and international standards with the intent to promote consistent, accessible, comprehensive, optimal palliative care through the health care spectrum. Within the guidelines there are eight domains to the provision of palliative care.
Statement: Palliative and Supportive Care in Advanced Heart
- The statement is the result of a consensus conference in which experts and leaders in the field worked to define the important knowledge gaps with regards to palliative care and advanced heart failure. The statement outlines future research objectives that can guide this field of study.
End-Stage Renal Disease
- Clinicians and researchers working with end-stage renal disease (ESRD) can now access an important palliative care resource online. Promoting Excellence announces the availability of “Completing the Continuum of Nephrology Care – the End-Stage Renal Disease Peer Workgroup Recommendations to the Field” at its web site. The report presents the methods, findings, recommendations and products of the ESRD Workgroup sponsored by the Promoting Excellence in End-of-Life Care Project.
Guidelines for the
Assessment of Bereavement Risk in Family Members of People
Receiving Palliative Care
- These Centre for Palliative Care guidelines aim to assist providers of services to families of dying people to identify family members at risk of complicated bereavement outcomes based on best available evidence.
National Framework and
Preferred Practices for Palliative and Hospice Care Quality
- This National Quality Forum report endorses a framework for palliative and hospice care that is intended to be the first step in developing a comprehensive quality measurement and reporting system for palliative care and hospice services and preferred practices designed to improve palliative and hospice care.
Promoting Excellence in
- Advanced Practice Nurses (APNs) convened to hold a conversation on the state of palliative care advanced practice nursing in the United States, to identify gaps in and barriers to that practice and to develop strategies for the future. The report on this important gathering of APNs working in the field of palliative care is available on the Promoting Excellence in End-of-Life Care website.
- A special series of articles describing the experiences and exciting results of 22 innovative projects funded by Promoting Excellence in End-of-Life Care have been published in The Journal of Palliative Medicine. The articles, edited by Ira Byock, Promoting Excellence Director, are included in the Innovations section of the journal. Begins in
2003, Volume 6, Number 2.
Psychosocial Care: Hospice
Palliative Care Program Symptom Guidelines
- This guideline is adapted for interprofessional primary care providers working in various setting and provides recommendations for assessing and addressing psychosocial issues of adult patients who are facing a progressive life limiting illness.
Other Organizational Links
of Death Education and Counseling
|Before I Die: Medical Care and Personal Choices|
|Care Search: Palliative Care Knowledge Network|
|Center for Healthcare Decisions|
|Compassion and Choices|
|The End-of-Life: Exploring Death in America|
in Palliative and End-of-
|Get Palliative Care|
|Hospice Patients Alliance|
Always: Help for Mothers Facing Terminal
Hospice and Palliative Care Organization
|National Palliative Care Research Center|
|Palliative Care Network|
|Palliative Care Quality Network|
|Pallipedia: Online Palliative Care Dictionary|
Education & Consultation in End of Life
|Reclaiming the End-of-Life|
Hospice and Palliative
Nurses Association (HPNA) Position Statements
- Artificial Nutrition and Hydration in End-of-Life
- Complementary Therapies in Palliative Care Nursing
- Evidence-Based Practice
- Legalization of Assisted Suicide
- Pain Management
- Palliative Sedation
- Spiritual Care
- Value of Hospice and Palliative Care Nursing
- Value of Professional Nurse in Palliative Care
- Value of Hospice and Palliative Nursing
- Value of Nursing Assistant in Palliative Care
NHPCO Task Force Statement
on the Ethics of Hospice Participation in Research
- This task force statement discusses the important
of hospices' potential contributions to research and
describes way in which characteristics of hospice
patients, and hospices' structure, create ethical
challenges that may limit these contributions. It
concludes by proposing ways in which hospices
and national professional organizations can begin to
overcome some of these challenges.