City of Hope Pain & Palliative Care Resource Center

IV.   Special Populations
        A.   Family Caregiving

This section includes publications regarding the experiences of family caregiving for a loved one in pain or at the end of life.

       City of Hope Publications

1.      Juarez, G., Ferrell, B. R., Uman, G., Podnos, Y., & Wagman, L. D. (2008). Distress and quality of life concerns of family caregivers of patients undergoing palliative surgery. Cancer Nursing, 31(1), 2-10.

2.      Borneman, T., Chu, D., Wagman, L., Ferrell, B., Juarez, G., McCahill, L., & Uman. G. (2003). Concerns of family caregivers of patients with cancer facing palliative surgery for advanced malignancies.  Oncology Nursing Forum, 30(6), 997-1005.

3.      Borneman. T., Stahl, C., Ferrell, B. R., & Smith D. (2002). The concept of hope in family caregivers of cancer patients at home.  Journal of Hospice and Palliative Nursing, 4(1), 21-33.

4.      Ferrell, B. R. (2001).  Pain observed: The experience of pain from the family caregiver’s perspective.  Clinics in Geriatric Medicine, 17(3), 595-609.

5.      Ferrell, B. R., Grant, M., Borneman, T., Juarez, G., & terVeer, A. (1999). Family caregiving in cancer pain management.  Journal of Palliative Medicine, 2(2), 185-195.

6.      Ferrell, B. R., Juarez, G., Borneman, T., & terVeer, A. (1999). Outcomes of pain education in community home care.  Journal of Hospice and Palliative Nursing, 1(4), 141-150.

7.      Ferrell, B. R. (1998). Pain management at home. Coping, (May/June), 40-41.

8.      Ferrell, B. R., Borneman, T., & Juarez, G. (1998). Integration of pain education in home care.  Journal of Palliative Care, 14(3), 62-68. 

9.      Juarez, G., & Ferrell, B. R. (1996). Family and caregiver involvement in pain management.  Clinics in Geriatric Medicine, 12(3), 531-547.

10.      Ferrell, B. R., Grant, M., Chan, J., Ahn, C., & Ferrell, B. A. (1995). The impact of cancer pain education on family caregivers of elderly patients.  Oncology Nursing Forum, 22(8), 1211-1218.

11.      Ferrell, B. R., Rhiner, M., & Rivera, L. M. (1993). Development and evaluation of the family pain questionnaire.  Journal of Psychosocial Oncology, 10(4), 21-35.

12.    Ferrell, B. R., Rhiner, M., Cohen, M. Z., & Grant, M. (1991). Pain as a metaphor for illness.  Part I: Impact of cancer pain on family caregivers.  Oncology Nursing Forum, 18(8), 1303-1309.

13.    Ferrell, B. R., Cohen, M. Z., Rhiner, M., & Rozek, A. (1991). Pain as a metaphor for illness. Part II: Family caregivers' management of pain.  Oncology Nursing Forum, 18(8), 1315-1321.
 

       Recommended Publications

1.      Family Carers in Palliative Care: A Guide for Health and Social Care Professionals
         -     Hudson, P. & Payne, S. (2009). NY: Oxford University Press.  ISBN #: 0199216908        

2.      Help Me Understand Caring & Caregiving for the Dying 
         -    Roundy, V. (2008). OR: Self published.

3.      Assuring Healthy Caregivers, a Public Health Approach to Translating Research into Practice: The RE-AIM Framework.
         -    Centers for Disease Control & Prevention.  (2008).   

4.      Guide to Caregiving in the Final Months of Life
         -     Murphy, B. (2007).  VA: TM Brown Publisher.

5.      Caregiving in the U.S.
         -     National Alliance for Caregiving and American Association of Retired Persons (AARP) (2004).

6.      Portrait of Informal Caregivers in America
         -     Robert Wood Johnson Foundation (2001).                

7.      A Caregiver’s Guide: A Handbook About End-of-Life Care
         -      MacMillian, K., et al. (2000).  CAN: Palliative Care Association of Alberta & Order of St. Lazarus Publishers.  

8.      Handbook for Mortals – Guidance for People Facing Serious Illness  
         -     Lynn, J. & Harrold, J. (1999).  UK: Oxford University Press. ISBN #: 0195116623.  

9.      Be Prepared: The Complete Financial, Legal, and Practical Guide to Living with Cancer, HIV, and Other Life-Challenging Conditions
         -     Landay, D. (1998).  NY: St. Martin’s Press. ISBN #: 0312180489. 

10.    Fading Away: The Experience of Transition in Families with Terminal Illness 
         -       Davies, B., Chekryn Reimer, J., Brown, P., & Marten, N. (1995).  NY: Baywood Publishing Company. ISBN #: 0895031272.
 

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