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V.    Special Populations
        A.   Family Caregiving

This section includes publications regarding the experiences of family caregiving for a loved one in pain or at the end of life.

       City of Hope Publications

  1. Sun, V., Grant, M., Koczywas, M., Freeman, B., Zachariah, F., Fujinami, R., Del Ferraro, C., Uman, G. & Ferrell, B. (2015). Effectiveness of an interdisciplinary palliative care intervention for family caregivers in lung cancer. Cancer.
    DOI: 10.1002/cncr.29567
     

  2. Juarez, G., Branin, J., Rosales, M. (2014). The cancer caregiving experience of caregivers of Mexican Ancestry. Hispanic Health Care International, 12(3), 120-129. DOI: 10.1891/1540-4153.12.3.120.
     

  3. Fujinami, R., Sun, V., Zachariah, F., Uman, G., Grant, M., & Ferrell, B. (2014). Family caregivers' distress levels related to quality of life, burden, and preparedness. Psycho-Oncology, Published online May 2014.   DOI: 10.1002/pon.3562.
     

  4. Hanson, J., Ferrell, B., & Grant, M. (2013). Websites and Resources for Cancer Family Caregivers. J Adv Pract Oncol 4(4), 269-272
     

  5. Grant, M., Sun, V., Fujinami, R., Sidhu, R., Otis-Green, S., Juarez, G., Klein, L., & Ferrell, B. (2013). Family caregiver burden, skills preparedness, and quality of life in non-small cell lung cancer. Oncology Nursing Forum, 40(4), 337-346. 
    DOI: 10.1188/13.ONF.337-346.
     

  6. Ferrell, B. R., Hanson, J., & Grant, M. G. (2012). An overview and evaluation of the oncology family caregiver project: improving quality of life and quality of care for oncology family caregivers. Psycho-Oncology, published online. DOI: 10.1002/pon.3198.
     

  7. Fujinami, R., Otis-Green, S., Klein, L., Sidhu, R., and Ferrell, B. (2012). Quality of life of family caregivers and challenges faced in caring for patients with lung cancer. Clinical Journal of Oncology Nursing, 16(6), 615; On-Line: E210-220.
     

  8. Given, B., & Grant, M. (2012). Studies of caregivers of older patients needed.  Journal of Geriatric Oncology, 3(4), 295-298.  DOI: 10.1016/j.jgo.2012.07.007.
     

  9. Grant, M., & Ferrell, B. R. (2012). Oncology family caregivers: Introduction. Seminars in Oncology Nursing, 28(4), 203-204. DOI: 10.1016/j.soncn.2012.09.001.
     

  10. Grant, M., & Ferrell, B. R. (2012).  Nursing role implications for family caregiving.  Seminars in Oncology Nursing, 28(4), 279-282. DOI: 10.1016/.j.soncn.2012.09.011.
     

  11. Otis-Green, S., Juarez, G. (2012). Enhancing the social well-being of family caregivers. Seminars in Oncology Nursing, 28(4), 246-255. DOI: 10.1016/j.soncn.2012.09.007.
     

  12. Wittenberg-Lyles, E., Demiris, G., Oliver, D. P., & Burt, S. (2011). Reciprocal suffering: Caregiver concerns during hospice care. Journal of Pain and Symptom Management, 41(2), 383-393.  DOI: 10.1016/j.jpainsymman.2010.04.026.
     

  13. Ferrell, B. R., Grant, M., Koczywas, M., Hurria, A., Loscalzo, M., Juarez, G., Otis-Green, S., Uman, G., & Borneman, T. (2011). Family caregiver QOL and self-care concerns in lung cancer. CHEST, 140(4_MeetingAbstracts), 1051A-1051A.  DOI: 10.1378/chest.1114776.
     

  14. Bevans, M., Castro, K., Prince, P., Shelburne, N., Prachenko, O., Loscalzo, M., et al. (2010). An individualized dyadic problem-solving education intervention for patients and family caregivers during allogeneic hematopoietic stem cell transplantation. Cancer Nursing, 33(2), e24-e32. DOI: 10.1097/NCC.0b013e3181be5e6d.
     

  15. Cooke, L., Gemmill, R., Kravits, K., & Grant, M. (2009). Psychological issues of stem cell transplant. Seminars in Oncology Nursing, 25(2), 139-150. DOI: 10.1016/j.soncn.2009.03.008.
     

  16. Juarez, G., Ferrell, B. R., Uman, G., Podnos, Y., & Wagman, L. D. (2008). Distress and quality of life concerns of family caregivers of patients undergoing palliative surgery. Cancer Nursing, 31(1), 2-10.
     

  17. Muñoz, C., Juarez, G., Muñoz, M. L., Portnow, J., Fineman, I., Badie, B., et al. (2008). The quality of life of patients with malignant gliomas and their caregivers. Social Work in Health Care, 47(4), 455-478. DOI: 10.1080/00981380802232396.
     

  18. Morris, M. E., Grant, M., & Lynch, J. C. (2007). Patient-reported family distress among long-term cancer survivors. Cancer Nursing, 30(1), 1-8.
     

  19. Borneman, T., Chu, D., Wagman, L., Ferrell, B., Juarez, G., McCahill, L., & Uman. G. (2003). Concerns of family caregivers of patients with cancer facing palliative surgery for advanced malignancies Oncology Nursing Forum, 30(6), 997-1005.   DOI: 10.1188/03.ONF.997-1005.
     

  20. Borneman. T., Stahl, C., Ferrell, B. R., & Smith D. (2002). The concept of hope in family caregivers of cancer patients at homeJournal of Hospice and Palliative Nursing, 4(1), 21-33.
     

  21. Ferrell, B. R., Ervin, K., Smith. S., Marek, T., Melancon, C. (2002). Family perspectives of ovarian cancer. Cancer Practice, 10(6), 269-276. DOI: 10.1046/j.1523-5394.2002.106001.x.
     

  22. Ferrell, B. R. (2001).  Pain observed: The experience of pain from the family caregiver’s perspective.  Clinics in Geriatric Medicine, 17(3), 595-609.
     

        Recommended Publications

  1. Cure's 2014 Cancer Guide: Combining science with humanity, CURE makes cancer understandable.  
     

  2. Principles and Practice of Palliative Care and Supportive Oncology, 4th Edition, esp. Section II: #54 Caregiving in the Home
    - Berger, A. M., Shuster Jr., J. L., Von Roenn, J. H. (2012). MA: Lippincott Williams & Wilkins.  ISBN: 978-1451121278.
      
     

  3. What You Need to Know as a Cancer Caregiver
    -
     American Cancer Society. (2012). American Cancer Society.     
     

  4. Given, B., Given, C., & Sherwood, P. (2012). The challenge of quality cancer care for family caregivers. Seminars in      Oncology Nursing, 28(4), 205-212. DOI: 10.1016/j.soncn.2012.09.002.
     

  5. Glajchen M. (2012). Physical well-being of oncology caregivers: An important quality-of-life domain. Seminars in
    Oncology Nursing, 28(4), 226-235. DOI:
    10.1016/j.soncn.2012.09.005.
     

  6. Jayani, R, Hurria, Arti. (2012). Caregivers of Older Adults With Cancer.  Seminars in Oncology Nursing, 28(4), 221-225.   DOI: 10.1016/j.soncn.2012.09.004.  
     

  7. Jones, B. (2012). The challenge of quality care for family caregivers in pediatric cancer care. Seminars in Oncology
    Nursing, 28(4), 213-220. DOI:
    10.1016/j.soncn.2012.09.003.
     

  8. Mazanec, P. (2012). Distance caregiving a parent with cancer. Seminars in Oncology Nursing, 28(4), 271-278.
    DOI: 10.1016/j.soncn.2012.09.010.
     

  9. Northouse, L, Katapodi, M, Schafenacker, A, Weiss, D. (2012). The impact of caregiving on the psychological well-being of  family caregivers and cancer patients. Seminars in Oncology Nursing, 28(4), 236-245.  
    DOI:
    10.1016/j.soncn.2012.09.006.
     

  10. Wittenberg-Lyles, E., Demiris, G., Oliver, D. P., & Burt, S. (2011). Reciprocal suffering: Caregiver concerns during hospice  care. Journal of Pain and Symptom Management, 41(2), 383-393.
    DOI: 10.1016/j.jpainsymman.2010.04.026.
     

  11. Oxford Textbook of Palliative Social Work
     -
     Altilio, T. & Otis-Green, S. (2011) NY: Oxford University Press. ISBN: 978-0199739110.
            Chapter 21: Caregivers in Palliative Care
            Chapter 22: Families and Family Conferencing
            Chapter 26: The Why’s and Wherefores of Support Groups
            Chapter 27: Social Work and Technology: The Software and Hard Drive of Patient and Family Care
            Chapter 37: Palliative Social Work with Older Adults and Their Families
            Chapter 43: Social Work and Child Life: A Family’s Journey with Childhood Cancer
     

  12. Help Wanted: Caregiver
    -
    Pinchot, L. J. (2011). PA: Oncology Nursing Society. ISBN: 978-1890504977
     

  13. American Cancer Society Complete Guide to Family Caregiving: The Essential Guide to Cancer Caregiving at Home, 2nd Ed.
    - Bucher, J. A., Houts, P. S., & Ades, T. (Eds). (2011). Atlanta, GA: American Cancer Society.  ISBN: 978-0944235003.
         

  14. Handbook for Mortals – Guidance for People Facing Serious Illness, 2nd Edition  
    - Lynn, J. & Harrold, J. (2011).  UK: Oxford University Press. ISBN: 0199744564.  
     

  15. A Caregiver’s Guide to the Dying Process
    - Hospice Foundation of America. (2011).            
     

  16. Northouse, L. L., Katapodi, M. C., Song, L., Zhang, L., Mood, D. W. (2010). Interventions with family caregivers of cancer 
    patients: Meta-analysis of randomized trials. CA: A Cancer Journal for Clinicians, 60(5), 317-339. DOI: 10.3322/caac.20081.
     

  17. Burns, C. M., LeBlanc, T. W., Abernethy, A., & Currow, D. (2010). Young caregivers in the end-of-life setting: A population-based profile of an emerging group. Journal of Palliative Medicine, 13(10), 1225-1235. DOI: 10.1089/jpm.2010.0004.
     

  18. Blum, K., & Sherman, D. W. (2010). Understanding the experience of caregivers: A focus on transitions. Seminars in
    Oncology Nursing, 26
    (4), 243-258. DOI: 10.1016/j.soncn.2010.08.005.
     

  19. Francis, L. E., Worthington, J., Kypriotakis, G., Rose, J. H. (2010). Relationship quality and burden among caregivers forlate-stage cancer patients. Support Care Cancer, 18, 1429-1436. DOI: 10.1007/s00520-009-0765-5.
     

  20. Northfield, S., & Nebauer, M. (2010). The caregiving journey for family members or relatives with cancer: How do they cope? Clinical Journal of Oncology Nursing, 14(5), 567-577. DOI: 10.1188/10.CJON.567-577.
     

  21. Foster, T. L., Lafond, D. A., Reggio, C., & Hinds, P. S. (2010). Pediatric palliative care in childhood cancer nursing: From diagnosis to cure or end of life. Seminars in Oncology Nursing, 26(4), 205-221. DOI: 10.1016/j.soncn.2010.08.003.
     

  22. Oliver, D. P., Demiris, G., Wittenberg-Lyles, E., Porock, D., Collier, J., & Arthur, A. (2010). Caregiver participation in
    hospice interdisciplinary team meetings via videophone technology: A pilot study to improve pain management. American Journal of Hospice and Palliative Medicine, 27(7), 465-473. DOI: 10.1177/1049909110362402.
     

  23. Reflections of a Loving Partner: Caregiving at the End of Life
    - Martin, C. A. (2010). Naples, FL: Quality of Life Publishing Co. ISBN: 978-0981621937.
     

  24. Dying with Comfort: Family Illness Narratives and Early Palliative Care
    - Wittenberg-Lyles, E., Goldsmith, J., Ragan, S. L., & Sanchez-Reilly, S. (2010). NJ: Hampton Press.
    ISBN: 1572739843.
     

  25. The Survivorship Net: A Parable for the Family, Friends, and Caregivers of People with Cancer
    -
     Owens, J. Cass, B. (2010). GA: American Cancer Society. ISBN: 978-1604430189.          
     

  26. Passages in Caregiving: Turning Chaos into Confidence
    -
     Sheehy, G. (2010). NY: HarperCollins Publishers. ISBN: 978-0061661204.         
     

  27. Oxford Textbook of Palliative Nursing, 4th Edition
      - Ferrell, B. R., Coyle, N., & Paice, J.,  (2015). NY: Oxford University Press. ISBN: 9780199332342
             Chapter 4: Principles of Patient and Family Assessment
             Chapter 30: Supporting Families in Palliative Care
     

  28.  The Caregiver’s Path to Compassionate Decision Making: Making Choices for Those Who Can’t
     -
     Kind, V. (2010). TX: Greenleaf Book Group. ISBN: 978-1608320417. 
     

  29. Cancer Journey: A Caregiver’s View From the Passenger Seat
     -
     Siegfried, C. Z. (2010). WA: Pleasant Word. ISBN: 978-1414115498.     
     

  30. Harden, J., Falahee, M., Bickes, J., Schafenacker, A., Walker, J., Mood, D., & Northouse, L. (2009). Factors associated with prostate cancer patients’ and their spouses’ satisfaction with a family-based intervention. Cancer Nursing, 32(6), 482-492. DOI: 10.1097/NCC.0b013e3181b311e9.
     

  31. Hinds, P. S., Oakes, L. L., Hicks, J., Powell, B., Srivastava, D. K., Spunt, S. L., et al. (2009). “Trying to be a good parent” as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children. Journal of Clinical Oncology, 27(35), 5979-5985. DOI: 10.1200/JCO.2008.20.0204.
     

  32. Bakas, T., Farran, C. J., Austin, J. K., Given, B. A., Johnson, E. A., & Williams, L. S. (2009). Content validity and satisfaction with a stroke caregiver intervention program. Journal of Nursing Scholarship, 41(4), 368-375.
    DOI: 10.1111/j.1547-5069.2009.01282.x.
     

  33. Bradley, S. E., Sherwood, P. R., Kuo, J., Dammerer, C. M., Gettig, E. A., Ren, D., et al. (2009). Perceptions of economic
    hardship and emotional health in a pilot sample of family caregivers. Journal of Neurooncology, 93(3), 333-342.
    DOI: 10.1007/s11060-008-9778-z.
     

  34. Family Carers in Palliative Care: A Guide for Health and Social Care Professionals
    - Hudson, P. & Payne, S. (2009). NY: Oxford University Press.  ISBN: 0199216908        
     

  35. Caregiving in the U.S.   
    - Pew Research Internet Project (2012).
     

  36. Harden, J., Northouse, L. Cimprich, B., Pohl, J. M., Liang, J., & Kershaw, T. (2008). The influence of developmental life stage on quality of life in survivors of prostate cancer and their partners. Journal of Cancer Survivorship, 2(2), 84-94.  DOI: 10.1007/s11764-008-0048-z.
     

  37. Pritchard, M., Burghen, E., Srivastava, D. K., Okuma, J., Anderson, L, Powell, B., et al. (2008). Cancer-related symptoms most concerning to parents during the last week and last day of their child’s life. Pediatrics, 121, e1301-e1310. DOI: 10.1542/peds.2007-2681.
     

  38. Honea, N. J., Brintnall, R., Given, B., Sherwood, P., Colao, D. B., Somers, S. C., & Northouse, L. L. (2008). Putting evidence into practice: Nursing assessment and interventions to reduce family caregiver strain and burdenClinical Journal of Oncology Nursing, 12(3), 507-516. DOI: 10.1188/08.CJON.507-516.
     

  39. Supporting Family Caregivers
     -
      American Journal of Nursing, (2008). 108(9-Suppl). Entire issue devoted to family caregiver issues.
     

  40. Cancer Caregiving A-to-Z: An At-Home Guide for Patients and Families 
      -
     American Cancer Society (2008). GA: American Cancer Society. ISBN: 978-0944235928.
     

  41. Assuring Healthy Caregivers, A Public Health Approach to Translating Research into Practice: The RE-AIM Framework
    - Centers for Disease Control & Prevention.  (2008). 
     
     

  42. Kwak, J., Salmon, J. R., Acquaviva, K. D., Brandt, K., & Egan, K. A. (2007). Benefits of training family caregivers on
    experiences of closure during end-of-life care. Journal of Pain and Symptom Management, 33(4), 434-445.
    DOI: 10.1016/j.jpainsymman.2006.11.006.
     

  43. Doorenbos, A. Z., Given, B., Given, C. W., Wyatt, G., Gift, A., Ruhbar, M., Jeon, S. (2007). The influence of end-of-life
    cancer care on caregivers. Research in Nursing & Health, 30, 270-281. DOI: 10.1002/nur.20217.
     

  44. Northouse, L. L., Mood, D. W., Schafenacker, A., Montie, J. E., Sandler, H. M., Forman, J. D., et al. (2007). Randomized clinical trial of a family intervention for prostate cancer patients and their spouses. CANCER, 110(12), 2809-2818.  DOI: 10.1002/cncr.23114.
     

  45. A Family Caregiver Speaks Up: It Doesn’t Have to Be This Hard
    -
     Mintz, S. G. (2007). VA: Capital Books, Inc. ISBN: 978-1933102467.
     

  46. Sherwood, P. R., Given, B. A., Given C. W., Schiffman, R. F., Murman, D. L., Lovely, M., et al. (2006). Predictors of distress in caregivers of persons with a primary malignant brain tumor. Research in Nursing & Health, 29, 105-120.
    DOI: 10.1002/nur.20116.
     

  47. Schumacher, K. L., Beidler, S. M., Beeber, A. S., Gambino, P. (2006). A transactional model of cancer family caregiving skill.  Advances in Nursing Science, 29(3), 271-286.
     

  48. Kim, Y., Loscalzo, M. J., Wellisch, D. K., & Spillers, R. L. (2006). Gender differences in caregiving stress among caregivers
    of cancer survivors. Psycho-Oncology, 15, 1086-1092. DOI: 10.1002/pon.1049.
     

  49. Lewis, F. M. (2006). The effects of cancer survivorship on families and caregivers. American Journal of Nursing, 106(3-Suppl), 20-21, 23-25.
     

  50. Given, B. & Sherwood, P. R. (2006). Family care for the older person with cancer. Seminars in Oncology Nursing, 22(1), 43-50. DOI: 10.1016/j.soncn.2005.10.006.
     

  51. Given, B., Given, C. W., Sirorskii, A., Jeon, S., Sherwood, P., & Rahbar, M. (2006). The impact of providing symptom
    management assistance on caregiver reaction: Results of a randomized trial. Journal of Pain and Symptom Management, 32(5), 433-443. DOI: 10.1016/j.jpainsymman.2006.05.019.
     

  52. The Emotional Survival Guide for Caregivers: Looking After Yourself and Your Family While Helping an Aging Parent
    -
     Jacobs, B. J. (2006). NY: The Guilford Press. ISBN: 978-1572307292.
     

  53. Northouse, L. L. (2005). Helping families of patients with cancer. Oncology Nursing Forum, 32(4), 743-750.
    DOI: 10.1188/05.ONF.743-750.
     

  54. Glajchen, M., Kornblith, A., Homel, P., Fraidin, L, Mauskop, A., & Portenoy, R. K. (2005). Development of a brief
    assessment scale for caregivers of the medically ill. Journal of Pain and Symptom Management, 29(3), 245-254.
    DOI: 10.1016/j.jpainsymman.2004.06.017.
     

  55. Sherwood, P. R., Given, C. W., Given, B. A., von Eye, A. (2005). Caregiver burden and depressive symptoms: Analysis of common outcomes in caregivers of elderly patients. Journal of Aging and Health, 17(2), 125-147.
    DOI: 10.1177/0898264304274179.
     

  56. Salmon, J. R., Kwak, J., Acquaviva, K. D., Egan, K. A., Brandt, K. (2005). Validation of the caregiving at life’s end
    questionnaire. American Journal of Hospice & Palliative Medicine, 22(3), 188-194. DOI: 10.1177/104990910502200307.
     

  57. When the Focus Is on Care: Palliative Care and Cancer  
    - Foley, K. M., Back, A., Bruera, E., Coyle, N., Loscalzo, M. J., Shuster, J. L., Teschendorf, B., & von Roenn, J. H. (Eds.)
      (2004). GA: American Cancer Society. ISBN: 978-0944235539.
     

  58. Breast Cancer Husband How to Help Your Wife (and Yourself) Through Diagnosis, Treatment, and Beyond
    - Silver, M. (2004). PA: Rodale Inc. ISBN:
    978-1579548339.
     

  59. Northouse, L., Kershaw, T., Mood, D., Schafenacker, A. (2004). Effects of a family intervention on the quality of life of women with recurrent breast cancer and their family caregivers. Psycho-Oncology, 14, 478-491. DOI: 10.1002/pon.871.
     

  60. Glajchen, M. (2004). The emerging role and needs of family caregivers in cancer care. Journal of Supportive Oncology ,  2(2), 145-155.  
     

  61. Williams, R., Hinds, P. S., Ke, W., & Hu, X. J. (2004). A comparison of calorie and protein intake in hospitalized pediatric oncology patients dining with a caregiver versus patients dining alone: A randomized, prospective clinical trial. Journal of Pediatric Oncology Nursing, 21(4), 223-232. DOI: 10.1177/1043454204265861.
     

  62. Haley, W. E. (2003). Family caregivers of elderly patients with cancer: Understanding and minimizing the burdens of care. Supportive Oncology, 1(2, Supp.), 25-29.
     

  63. Caregiving and Loss: Family Needs, Professional Responses
    -
     Hospice Foundation of America
     

  64. Caregiving: The Spiritual Journey of Love, Loss, and Renewal
    -
     McLeod, B. W. (2000). NY: John Wiley & Sons, Inc. ISBN: 978-0471392170.             


      
  Educational Materials/Curriculum

  1. And Thou Shalt Honor
    -
     A PBS Series, forums and support for caregivers, patients, and health care professionals. 
     

  2. APA Caregiver Briefcase - American Psychological Association
    -
     This Briefcase provides psychologists at all levels of training and experience with information about: how   
       caregiving affects all of us; facts about family caregiving; common caregiving problems; how to identify and reach  
       caregivers; roles psychologists have in working with family caregivers; assessment tools and effective
       interventions; conducting caregiver research; educating and teaching about caregiving; advocating for family
       caregivers; resources for diverse populations and age groups.
     

  3. Averting the Caregiving Crisis: Why We Must Act Now 
    - Rosalynn Carter Institute for Caregiving
                
     

  4. Family Caregivers in Cancer: Roles and Challenges
     -
     National Cancer Institute
     

  5. Fast Facts and Concepts - Palliative Care Network of Wisconsin (PCNOW)

    Over 200 Fast Facts, a PDA version and a Discussion Blog

              -     Asking about Cultural Beliefs in Palliative Care  #216

              -     Broaching the Topic of  a Palliative Care Consultation with Patients and Families, 2nd Edition  #42 

              -     Grief in Children and Developmental Concepts of Death  #138

              -     Helping Surrogates Make Decisions  #226

              -     Hospice Referral: Moving from Hospital to Home  #139

              -     Implementation of a Family Presence During Resuscitation Protocol #233 

              -     Information for Patients and Families About Ventilator Withdrawal, 2nd Edition  #35

              -     Preparing for the Family Meeting  #222

              -     Responding to Emotion in Family Meetings  #224 

              -     Teaching the Family What to Expect When the Patient is Dying   #149 

              -     The Family Meeting: Causes of Conflict  #225

              -     The Family Meeting: End of Life Goal Setting and Future Planning   #227  

              -     The Family Meeting: Starting the Conversation  #223

              -     What Do I Tell the Children, 2nd Edition   #47
     

  6. Help for Cancer Caregivers
    - Help for Cancer Caregivers, a new resource, helps cancer caregivers manage their own health and wellness needs. 
      It is an interactive, personalized web tool that gives the right information at the right time to help lessen stress
      throughout the caregiving experience.
     

  7.  Home Alone: Family Caregivers Providing Complex Chronic Care
    Reinhard, S., Levine, C., & Samis, S. (2012).  AARP and United Hospital Fund.  
       

  8. Navigating Cancer Caregiver Survey
    Navigating Cancer surveyed 326 cancer caregivers through an online survey in October 2010.  The survey results revealed significant emotional, financial and physical strain on the cancer caregiver community, as well as a lack of comprehensive resources to support their needs.
     

  9.  Orientation to Caregiving: A Handbook for Family Caregivers of Patients with Serious Illness
    A handbook on what to expect as a family caregiver. This handbook is a product of the Caregivers Project, a
    collaboration between the UCSF Osher Center for Integrative Medicine & UCSF Department of Neurological       Surgery.
     

  10. Partners in Healing
    - This site provides practical tools, encouragement and inspiration to those wanting to be a source of healing for a
       loved one.  Book, instructional DVD, and CD. Focuses on simple massage and touch techniques that caregivers can
       use for their loved ones.    

     
  11.  Standards for Social Work Practice with Family Caregivers of Older Adults
             -
         National Association of Social Workers

      
      Other Organizational Links

         Aging Parents and Elder Care

 

 

 

 

 

 

 

 

 

         American Association of Retired Persons (AARP): Caregiving Resource Center

         AARP: Valuing the Invaluable: The Economic Value of Family Caregiving

         American Cancer Society (ACS):
              Caring for the Patient with Cancer at Home: A Guide for Patients and Families

              Listen with Your Heart

         American Chronic Pain Association

         American College of Physicians Ethics, Professionalism and Human Rights Committee:
              Information Resources for Physicians Supporting Family Caregivers

         Assisted Living Directory
         Be the Match: Bone Marrow Donors
         CANCERCare:
             Caregiving
             Financial Assistance

         Cancer Hope Network          

         Cancer.Net: Caregiving Support                         
         Caregiver Action Network

         Caregiving.com                     

         Caregiver Resource Center
         CareSearch: Palliative care knowledge network
         Cancer Support Community
             Frankly Speaking About Cancer
         Caring.com

         Families Facing Cancer: Emotional and Practical Support

         Family Caregiver Alliance

         Family Caregiver Support Network

         Family Caregiving...it's not all up to you
         Full Circle of Care
         International Palliative Care Family Carer Research Collaboration
         Joe's House: A Lodging Guide for Cancer Patients
         Leukemia & Lymphoma Society
            
Long-Distance Caregiving
            Caregivers’ Guide for Bone Marrow/Stem Cell Transplant: Practical Perspective  
   
         Lotsa Helping Hands
         National Alliance for Caregiving 

         National Cancer Institute:
        
    Caring for the Caregiver 
             Coping with Cancer: For Caregivers, Family and Friends
 
            Deep Water: Making Sense of a Cancer Diagnosis (YouTube)
             Facing Forward: Life After Cancer Treatment
 
            Family Caregivers in Cancer: Roles and Challenges
             Factors to Consider in Caregiver Assessment

    
        When Someone You Love Has Advanced Cancer: Support for Caregivers
          
  When Someone You Love Has Completed Cancer Treatment
             When Someone You Love Is Being Treated for  Cancer
             Who Is a Caregiver?   

         National Comprehensive Cancer Network (NCCN)
              Patient and Caregiver Resources            

         Navigating Cancer and Blood Disorders             

         Resources and Links for Patients and Families

         Rosalynn Carter Institute for Caregiving

         Strength for Caring: A Place for Caregivers

         Today's Caregiver

         Well Spouse Association

        

      Key References from Comprehensive Cancer Centers

     
 
National Cancer Institute Comprehensive Cancer Centers                 

          The following comprehensive cancer centers have family caregiver support and/or resource pages:

 

     1.     The Cancer Institute of New Jersey, Robert Wood Johnson Medical School - New Brunswick, New Jersey
- Caregiving Links     

 

   2.     City of Hope National Medical Center - Duarte, California
- Sheri & Les Biller Patient and Family Resource Center

          

    3.    MD Anderson Cancer Center - University of Texas, Houston, Texas

            - Family-Centered Care       

            - One-on-One Support (Patient and Caregiver Support Line)

            - Patient and Family Support

 

    4.    Memorial Sloan-Kettering Cancer Center - New York, New York

            - Counseling & Support for Caregivers & Families

            - A Guide for Caregivers

 

    5.    Norris Cotton Cancer Center - Dartmouth-Hitchcock Medical Center, Lebanon, New Hampshire

            -Patient & Family Support Services

            -Caring for Someone with Cancer Group   

            -Shared Decision Making

 

   6.      The James -  Ohio State University Comprehensive Cancer Center, Columbus, Ohio
-
Patient and Caregiver Support Groups

 

   7.      Roswell Park Cancer Institute  - Buffalo, New York  

             - BMT Orientation and Caregiver Program

             - Role of Caregivers          

  

   8.    Sidney Kimmel Comprehensive Cancer Center - Johns Hopkins University, Baltimore, Maryland

           -Being a Caregiver

           -Caregivers Video Series: Walking on Eggshells

 

   9.   University of Michigan Comprehensive Cancer Center - Ann Arbor, Michigan

          - Thrive: Focusing on the Caregiver  

          - Living with Cancer

          - Caring for the Caregiver FAQ

          - Caregivers benefit from cancer support programs     

 

  10.    UW Carbone Cancer Center - University of Wisconsin, Madison, Wisconsin

            - Caregiver Tips

            - Caregiver Role Strain            
 

   11.     UCSF Helen Diller Family Comprehensive Cancer Center - University of California, San Francisco, California
            -
 Caregivers: Support for Family Caregivers of Loved Ones with Serious Illness 
            - Ida & Joseph Friend Cancer Resource Center

 

   12.    Vanderbilt-Ingram Cancer Center - Vanderbilt University, Nashville, Tennessee

             - The Hope Connection: Talk with someone who’s been there

             - Stress within the Family or Couple

             - Cancer Supportive Care Clinic

         

                     


Website last modified:  December 14, 2015