City of Hope Pain & Palliative Care Resource Center

VII.   Ethical and Legal Issues
          
This section includes materials related to ethical issues and end of life care in pain management, decision making and suffering.

       City of Hope Publications

1.      Laneader, A., Angelos, P., Ferrell, B. R., Kolker, A., Miner, T., Padilla, G., Swaney, J., Krouse, R., & Casarett, D. (2007). Ethical issues in research to improve the management of malignant bowel obstruction: Challenges and recommendations. Journal of Pain and Symptom Management, 34(Supl 1), S20-S27.

2.       Ferrell, B. R. (2007). Beyond politics - the patient in pain.  Center for Practical Bioethics, 3(3), 10-15.

3.      Ferrell, B. R. (2006). Understanding the moral distress of nurses witnessing medically futile care. Oncology Nursing Forum, 33(5), 922-930.       

4.      Ferrell, B. (2005). Ethical perspectives on pain and suffering. Pain Management Nursing. 6(3), 83-90.

5.      Sullivan, M., & Ferrell, B. R. (2005). Ethical challenges in the management of chronic nonmalignant pain: Negotiating through the cloud of doubt. The Journal of Pain, 6(1), 2-9.

6.      Krouse, R. S., Easson, A. M., & Angelos, P. (2003). Ethical considerations and barriers to research in surgical palliative care. Journal of American College of Surgeons., 196(3), 469-474. 

7.      Ferrell, B. R., Novy, D., Sullivan, M., Banja, J., Dubois, M., Gitlin, M., et al. (2001). Ethical dilemmas in pain management. The Journal of Pain, 2(3),171-180.

8.      Casarett, D., Ferrell, B. R., Kirschling, J., Levetown, M., Merriman, M., Ramey, M., & Silverman, P. (2001). NHPCO task force on the ethics of hospice participation in research. Journal of Palliative Medicine 4(4), 441-449.

9.      Ferrell, B. R. (1997). The role of ethics committees in responding to the moral outrage of unrelieved pain. Bioethics Forum, 13(3),11-16.

10.      Ferrell, B. R. (1996/1997). The moral imperative of pain management. American Nurses Association Center for Ethics and Human Rights Communiqué,
5(2), 4-5.

11.      Borneman, T., & Ferrell, B. R. (August 1996). Ethical issues in pain management. Clinics in Geriatric Medicine, 12(3), 615-628.

12.      Ferrell, B. R., & Dean, G. (1995). The meaning of cancer pain. Seminars in Oncology Nursing, 11(1),17-22.

13.      Ferrell, B. R., & Rivera, L. M. (1995). Nursing perspectives on assisted suicide and euthanasia. Journal of Pharmaceutical Care in Pain & Symptom Control, 3(3/4), 55-66 .

14.      Ersek,  M., & Ferrell, B. R. (1994). Providing relief from cancer pain by assisting in the search for meaning. Journal of Palliative Care, 10(4),15-22.

15.    Ferrell, B. R., & Dean, G. E. (1994). Ethical issues in pain management at home. Journal of Palliative Care, 10(3), 67-72 .

16.    Ferrell, B. R., Johnston-Taylor, E., Sattler, G. R., Fowler, M., & Cheyney, B. L. (1993). Searching for the meaning of pain. Cancer Practice, 1(3),185-194.

17.    Johnston-Taylor, E., Ferrell, B. R., Grant, M., & Cheyney, L. (1993). Managing cancer pain at home: The decisions and ethical conflicts of patients, family caregivers, and homecare nurses. Oncology Nursing Forum, 20(6), 919-927.
 

       Recommended Publications

1.       Health Care Ethics: Critical Issues for the 21st Century, 2nd Edition
         -      Morrison, E. E. (2008).  NM: Jones and Bartlett Publishers. ISBN #: 076374526X.

2.       Moral Dilemmas in Community Health Care: Cases and Commentaries
          -     White, B. & Zimbelman, J. (2005).  NY: Pearson Longman.  ISBN: 0321133552.

3.       Palliative Care Ethics: A Companion for All Specialties, 2^nd Edition
           -     Randall, F., & Downie, R. S. (1999).  UK: Oxford University Press.  ISBN: 0192630687.  

4.       Suffering
          -      Ferrell, B. R. (1996).  NM: Jones and Bartlett Publishers. ISBN #: 086720723.
 

       Guidelines/Clinical Pathways

1.       Achieving Balance in National Opioids Control Policy: Guidelines for Assessment - World Health Organization
          -      This 42 page document provides guidelines that can be used by governments and health professionals to assess the national opioids control policies and their administration of any country to determine if they contain the provisions, procedures and cooperation that are necessary to ensure the availability of opioid analgesics.   Available in 14 languages.

2.       Addressing State Policy Issues in End of Life Care - Robert Wood Johnson Foundation
          -     Downloadable publications that advance balanced approaches to pain management policy, consumer protection and professional development.

3        Guide to Legal Issues in Life-Limiting Conditions - American Health Lawyers Association, Washington, DC

4.      Model Guidelines for the Use of Controlled Substances for the Treatment of Pain - Federation of  State Medical Boards of the United States, TX

      
      Other Organizational Links

       
       Key References

1.      American Society of Law, Medicine & Ethics
         -      The National Action Agenda for Public Health Legal Preparedness
         -      Project on Legal Constraints on Access to Effective Pain Relief - Includes the Pain Relief Act and Commentary, an annotated bibliography on Legal and Regulatory Issues in Pain Relief; an annotated list of relevant judicial opinions; and an annotated bibliography on Pain, Culture and Consent, as well as the National Meeting on Legal, Ethical and Institutional Issues in Pain Relief.

      
      Position Statements/Standards
       (see Position Statements/Standards in II. Palliative Care/End-of- Life/Bereavement)

1.       Joint statement from 21 health organizations and the Drug Enforcement Administration
          Promoting Pain Relief and Preventing Abuse of Pain Medications: A Critical Balancing Act