V. Special Population
D. Cultural
Considerations in Palliative
Care
This section offers resources related to cultural issues in pain and palliative care and guidelines for cultural competency.
City of Hope Publications
-
Juarez, G., Mayorga, L., Hurria, A., & Ferrell, B. R. (2013). Survivorship
education for Latina breast cancer survivors: Empowering
survivors through education. Psicooncologia,
10(1), 57-68.
DOI: 10.5209/rev_PSIC.2013.v10.41947.
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Juarez, G., Hurria, A., Uman, G. & Ferrell, B. R. (2103). Impact
of a bilingual education intervention on the quality of life of
Latina breast cancer survivors. Oncology
Nursing Society, 40(1), E50-E60. DOI:
10.1188/13.ONF.E50-E60.
- Campesino, M., Koithan,
M., Ruiz E., Glover, J., Juarez, G., Choi, M., et al. (2012). Surgical
treatment differences among Latina and African American breast
cancer survivors. Oncology
Nursing Forum, 39(4), E324-E331. DOI:
10.1188/12.ONF.E324-E331.
-
Thrane, S. (2010). Hindu
end of life: Death, dying, suffering, and karma. Journal
of Hospice & Palliative Nursing, 12(6), 337-342.
DOI: 10.1097/NJH.0b013e3181f2ff11.
-
Fineburg, I. C., Grant, M., Aziz, N. M., Payne, R., Dunn, G. P.,
Kagawa-singer, M., Palos, G., Kinzbrunner, B. M.,
Shinagawa-Matsuko, S., & Krouse, R. (2007). Prospective
integration of cultural consideration in biomedical researchfor
patients with advanced cancer: recommendations from an
international conference on malignant bowel obstruction
in palliative care. Journal
of Pain and Symptom Management, 34(1S), 34-39. DOI: 10.1016/j.jpainsymman.2007.04.009.
-
Knobf, T., Juarez, G., Lee, S., & Sun, V. (2007). Challenges
and strategies in recruitment of ethnically diverse populations
for cancer nursing research. Oncology
Nursing Forum, 34(6), 1187-1194. DOI:
10.1188/07.ONF.1187-1194.
- Ricker, C. N., Hiyama, S., Fuentes, S., Feldman, N., Kumar, V., Uman, G. C., et al. (2006). Beliefs and interest in cancer risk in an underserved Latino cohort. Preventive Medicine, 44(3), 241-245. DOI: 10.1016/j.ypmed.2006.08.018.
Recommended
Publications
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Culture Care Diversity & Universality:
A Worldwide Nursing Theory,
3rd Edition
-Leininger, M. M. & McFarland, M. (2014). MA:
Jones & Bartlett Publishers.
ISBN: 978-0763734374.
-
Transcultural Health Care: A
Culturally Competent Approach,
4th Edition
-Purnell, L. D., & Paulanka, B. J. (2012). PA: F. A.
Davis Company. ISBN #: 0803637055.
-
Cultural Diversity in Health and
Illness, 8th Edition
- Spector, R. E. (2012). NJ: Prentice Hall.
ISBN #: 978-0132840064.
-
Transcultural Concepts in Nursing Care, 6th Edition
- Andrews. M. M. & Boyle, J. S. (2011). PA:
Lippincott Williams & Wilkins.
ISBN #: 0781790379.
- Wilson, L. D. (2011). Cultural
competency: Beyond the vital signs. Delivering holistic care to
African Americans. Nursing
Clinics of North America, 46, 219-232. DOI:
10.1016/j.cnur.2011.02.007.
- McCormick, A. J. (2011). Self-determination,
the right to die, and culture: A literature review. Social
Work, 56(2), 119-128.
- Tung, W-C. (2011). Hospice
care in Chinese culture: A challenge to home care professionals. Home
Health Care Management & Practice, 23(1), 67-68.
DOI: 10.1177/1084822310383000.
- Boehmer, U., Miao, X., & Orzonoff, A.
(2011). Cancer
survivorship and sexual orientation. Cancer,
117(16), 3796-3804.
DOI: 10.1002/cncr.25950.
- Robinsin, K. M. & Monsivais, J. J.
(2011). Acculturation,
depression, and function in individuals seeking painmanagement
in a predominately Hispanic southwestern border community. Nursing
Clinics of North America, 46, 193-199.
DOI: 10.1016/j.cnur.2011.02.009.
- Shaw, S. J. & Armin, J. (2011). The
ethical self-fashioning of physicians and health care systems in
culturallyappropriate health care. Culture,
Medicine, and Psychiatry, 35, 236-261.
DOI: 10.1007/s11013-011-9215-1.
- Bullock, K. (2011). The
influence of culture on end-of-life decision making. Journal
of Social Work in End-of-Life & Palliative Care, 7,
83-98.
DOI: 10.1080/15524256.2011.548048.
- Robinson, K. M. & Monsivais, J. J.
(2011). Malingering?
No evidence in a predominantly Hispanic workers’compensation
population with chronic pain. Pain
Management Nursing, 12(1), 33-40.
DOI: 10.1016/j.pmn.2009.08.002.
- Knochel, K. A., Quam, J. K., & Croghan,
C. F. (2011). Are
old lesbian and gay people well served? Understanding the
perceptions, preparation, and experiences of aging services
providers. Journal
of Applied Gerontology, 30(3), 370-389.
DOI: 10.1177/0733464810369809.
- Davies, B., Larson, J., Contro, N. &
Cabrera, A. P. (2011). Perceptions
of discrimination among Mexican Americanfamilies of seriously
ill children. Journal
of Palliative Medicine, 14(1), 71-76.
DOI: 10.1089/jpm.2010.0315.
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Coorenbos, A. Z., Lindhorst, T., Schim, S. M., van Schaik, E.,
Demiris, G., Wechen, H. A., & Curtis, J. R. (2010).
Development of a web-based educational intervention to improve cross-cultural communication among hospice
providers. Journal of Social Work in End-of-Life & Palliative Care, 6, 236–255.
DOI: 10.1080/15524256.2010.529022.
- Berkman, C. S. & Ko, E. (2010). What
and when Korean American older adults want to know about serious illness.Journal
of Psychosocial Oncology, 28, 244-259. DOI:
10.1080/07347331003689029.
- Loiki, J., Gillick, M., Mayer, S.,
Prager, K., Simon, J. R., Steinberg, A., et al. (2010). The
critical role of religion:Caring for the dying patient from an
Orthodox Jewish perspective. Journal
of Palliative Medicine, 13(10), 1267-1271.
DOI: 10.1089/jpm.2010.0088.
- Schim,
S. M., Doorenbos, A. Z. (2010). A
three-dimensional model of cultural congruence: Framework for intervention.Journal
of Social Work for End-of-Life & Palliative Care, 6,
256-270.
DOI: 10.1080/15524256.2010.529023.
-
Mazanec, P. M., Daly, B. J., & Townsend, A. (2010). Hospice
utilization and end-of-life care decision making ofAfrican
Americans. American
Journal of Hospice & Palliative Medicine, 27(8), 560-566. DOI:
10.1177/1049909110372087.
- Kehl, K. A., & Gartner, C. M. (2010). Can
you hear me now? The experience of a deaf family member surrounding
the death of loved ones. Palliative
Medicine, 24(1), 88-93.
DOI: 10.1177/0269216309348180.
- Stein,
G. L. Beckerman, N. L., & Sherman, P. A. (2010). Lesbian
and gay elders and long-term care: Identifying the
unique psychosocial perspectives and challenges. Journal
of Gerontological Social Work, 53, 421-435.
DOl: 10.1080/01634372.2010.496478.
-
Anngela-Cole, L., Ka’Opua, L., Busch, M. (2010). Issues
confronting social workers in the provision of palliative care
services in the Pacific Basin (Hawai’i and the U. S. affiliated
Pacific Island Nations and territories). Journal
of Social Work in End-of-Life & Palliative Care, 6, 150-163.
DOI: 10.1080/15524256.2010.529015.
- Davies, B., Contro, N., Larson, J., &
Widger, K. (2010). Culturally-sensitive
information sharing in pediatric palliative
care. Pediatrics,
125(4), e859-e865. DOI: 10.1542/peds.2009-0722.
- Crump, S. K., Schaffer, M. A., &
Schulte, E. (2010). Critical
care nurses’ perceptions of obstacles, supports, and
knowledge needed in providing quality end-of-life care. Dimensions
of Critical Care Nursing, 29(6), p. 297-306.
DOI: 10.1097/DCC.0b013e3181f0c43c.
- Song,
M-K., Donovan, H. S., Piraino, B. M., Choi, J., Bernardini, J.,
Verosky, D., & Ward, S. E. (2010). Effects
of an intervention to improve communication about end-of-life
care among African Americans with chronic kidney disease.
Applied Nursing Research, 23, 65-72.
DOI: 10.1016/j.apnr.2008.05.002.
- Kagawa-Singer, M. Dadia, A. V., Yu, M.
D., & Surbone, A. (2010). Cancer,
culture, and health disparities: Time to
chart a new course? CA:
A Cancer Journal for Clinicians, 60, 12-39.
DOI: 10.3322/caac.20051.
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DeSanto-Madeya, S., Nilsson, M., Loggers, E. T., Paulk, E.,
Stieglitz, H., Kupersztoch, Y. M. & Prigerson, H. G. (2009). Associations
between United States acculturation and the end-of-life
experience of caregivers of patients with advanced cancer. Journal
of Palliative Medicine, 12(12). 1143-1149. DOI:
10.1089/jpm.2009.0063.
-
Mitchell, B. L. & Mitchell, L. C. (2009). Review
of the literature on cultural competence and end-of-life
treatment decisions:
The role of the hospitalist. Journal
of the National Medical Association, 101(9), 920-926.
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Johnstone, M-J. & Kanitsaki, O. (2009). Ethics
and advance care planning in a culturally diverse society. Journal
of Transcultural Nursing,
20(4), 405-416. DOI: 10.1177/1043659609340803.
- Davies, B. & Larson, J. (2009). Conducting
a qualitative culture study of pediatric palliative care. Qualitative
Health Research, 19(1), 5-16.
DOI: 10.1177/1049732308327346.
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Mackinnon, C. J. (2009). Applying
feminist, multicultural, and social justice theory to diverse
women who function
as caregivers in end-of-life and palliative home care. Palliative
and Supportive Care, 7, 501-512.
DOI: 10.1017/S1478951509990514.
-
Guide to Culturally Competent Health
Care, 2nd Edition
- Purnell, L. D. (2009). PA: F. A. Davis Company. ISBN #: 0803620640.
-
Beyond Politics: A Social and Cultural History of Federal
Healthcare Conscience Protections
- American Society of Law, Medicine & Ethics
(2009).
- Brown, J. P. & Tracy, J. K. (2008). Lesbians
and cancer: An overlooked health disparity. Cancer
Causes Control, 19, 1009-1020.
DOI: 10.1007/s10552-008-9176-z.
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Davidson, J. E., Boyer, M. L., Casey, D., Matzel, S. C., Walden,
D. (2008). Gap
analysis of cultural and religious needs of hospitalized
patients. Critical
Care Nursing Quarterly, 31(2), 119-126. DOI: 10.1097/01.CNQ.0000314472.33883.d4.
-
Pain and Its Transformations: The Interface of Biology and
Culture
- Coakley, S. & Kaufman Shelemay, K. (2008). MA: Harvard University Press. ISBN #: 0674024567.
-
Caring for Patients from Different Cultures, 4th Edition
-Galanti, G. (2008). PA: University of Pennsylvania Press. ISBN #: 0812220315.
-
Padela, A. I. (2007). Islamic
medical ethics: A primer. Bioethics, 21(3), p. 169-178.
DOI: 10.1111/j.1467-8519.2007.00540.x
-
Mosby's Pocket Guide to Cultural Health Assessment, 4th
Edition
-D'Avanzo, C. (2007). MA: Mosby ISBN #: 032304834X.
-
Culture, Health and Illness, 5th Edition
- Helman, C. G. (2007). UK: Trans-Atlantic Publications, Inc. ISBN #: 0340914505.
-
Meador, H. E., &
Zazove, P. (2006). Health
care interactions with deaf culture. Journal
of the American Board of Family Medicine, 18(3), 218-222.
- Carey, S. M., & Cosgrove, J. F. (2006). Cultural
issues surrounding end-of-life care. Current
Anasesthesia & Critical Care, 17, 263-270.
DOI: 10.1016/j.cacc.2006.10.002.
- Todd, J., Baldwin, C. M. (2006). Palliative
care and culture: An optimistic view. Journal of
Multicultural Nursing & Health, 12(2), 28-32.
- Giger,
J. N., Davidhizar, R. E., & Fordham, P. (2006). Multi-cultural
and multi-ethnic considerations and advanced directives:
Developing cultural competency. Journal
of Cultural Diversity, 13(1), 3-9.
- Jenko, M. & Moffitt, S. R. (2006). Transcultural
nursing principles. Journal
of Hospice and Palliative Nursing, 8(3), 172-180.
- Schim,
S. M., Doorenbos, A. Z., Borse, N. N. (2006). Enhancing
cultural competence among hospice staff. American
Journal of Hospice and Palliative Medicine, 23(5), 404-411.
DOI: 10.1177/1049909106292246.
- Payne,
S., Chapman, A., Holloway, M., Seymour, J. E., & Chau, R.
(2005). Chinese
community views: Promoting cultural competence in palliative
care. Journal
of Palliative Care, 21(2), 111-116.
-
Mor, V., Papandonatos, G., & Miller, S. C. (2005). End-of-life
hospitalization for African American and non-Latino white
nursing home residents: Variation by race and facility’s racial
composition. Journal
of Palliative Medicine, 8(1), 58-68. DOI: 10.1089/jpm.2005.8.58.
- Winston, C. A., Leshner, P., Kramer, J.,
& Allen, G. (2005). Overcoming
barriers to access and utilization of hospice and palliative
care services in African-American communities. OMEGA,
50(2), 151-163.
-
Moller, D. W. (2005). None
left behind: Urban poverty, social experience, and rethinking
palliative care. Journal
of Palliative Medicine, 8(1), 17-19. DOI: 10.1089/jpm.2005.8.17.
-
Winzelberg, G. S., Hanson, L. C., & Tulsky, J. A. (2005). Beyond
autonomy: Diversifying end-of-life decision-making approaches to
serve patients and families. Journal
of American Geriatrics Society, 53(6), p. 1046-1050.
DOI: 10.1111/j.1532-5415.2005.53317.x.
-
Meador, H. E., &
Zazove, P. (2005). Health
care interactions with deaf culture. Journal
of the American Board of Family Medicine, 18(3), 218-222. DOI: 10.3122/jabfm.18.3.218.
-
Culture & Clinical Care
- Lipson, J. G., & Dibble, S. L. (2005). CA: UCSF Nursing Press. ISBN #: 0943671221.
-
Death, Mourning, and Burial: A Cross
Cultural Reader
- Robben, A. C. G. M. (2005). NJ: Wiley.
ISBN #: 1405114711.
-
Mazanec, P. & Tyler, M. K. (2003). Cultural
considerations in end-of-life care. How ethnicity, age, and
spirituality affect decisions
when death is imminent. American
Journal of Nursing, 103(3), 50-58.
-
Transcultural Nursing: Concepts, Theories, Research, and
Practice, 3rd Edition
- Leininger, M. & McFarland, M. (2002). NY:
McGraw-Hill. ISBN: 978-0071353977.
-
Cultural Issues in End-of-Life
Decision Making
- Braun, K. L., Pietsch, J. H. , & Blanchette, P. L.
(1999). HI: Sage Publications. ISBN #: 0761912169
Educational Materials/Curriculum
-
Cancer Fact Sheets –
Intercultural Cancer Council
-The Cancer Fact Sheets were created because medically underserved populations, such as racial and ethnic
minorities, experience disproportionately greater suffering and compromised health from cancer.
-
Fast Facts and Concepts –
Palliative Care Network of Wisconsin (PCNOW)
- African Americans and End-of-Life Care #204
- Asking about Cultural Beliefs in Palliative
Care #216
- Cultural Aspects of Pain Management, 2nd Edition
#078
- Improving Communication When Hearing Loss is
Present #241
-
Pain Care Fast Facts: 5-Minute Clinical Inservice - UW Health,
University of Wisconsin Hospital & Clinics, Madison, WI
-Cultural Aspects of Pain Management
Guidelines/Clinical Pathways
-
Multicultural Health Care: A Quality Improvement Guide –
National Committee for Quality Assurance
- This guide serves as a resource for those wanting to
undertake quality improvement initiatives to
improve culturally and linguistically appropriate
service and to reduce disparities in care for
multicultural patients.
-
Cultural Competence in Cancer Care, A Healthcare Professional’s
Passport –
Intercultural Cancer Council
- This pocket guide is intended to be a reference
along a cultural journey, which health care
professionals can explore when providing cancer
care.
-
Selected Patient Information Resources in Asian Languages (SPIRAL)
- SPIRAL is a joint initiative of the South Cove
Community Health Center and Tufts University
Hirsh Health Sciences Library. SPIRAL aims to
increase access to Asian-language health
information for consumers and health care
providers.
Other Organizational Links
