V.    Special Populations
        D.   Cultural Considerations in Palliative Care

This section offers resources related to cultural issues in pain and palliative care and guidelines for  cultural competency.

       City of Hope Publications

1.      Juarez, G., Hurria, A., Uman, G. & Ferrell, B. R. (2103). Impact of a bilingual education intervention on the quality of life of Latina breast cancer survivors. Oncology Nursing Society, 40(1), E50-E60. DOI: 10.1188/13.ONF.E50-E60.

2.     Campesino, M., Koithan, M., Ruiz E., Glover, J., Juarez, G., Choi, M., et al. (2012). Surgical treatment differences among Latina and African American breast cancer survivors. Oncology Nursing Forum, 39(4), E324-E331.
DOI: 10.1188/12.ONF.E324-E331.

3.     Thrane, S. (2010). Hindu end of life: Death, dying, suffering, and karma. Journal of Hospice & Palliative Nursing, 12(6), 337-342. DOI: 10.1097/NJH.0b013e3181f2ff11.

4.     Fineburg, I. C., Grant, M., Aziz, N. M., Payne, R., Dunn, G. P., Kagawa-singer, M., Palos, G., Kinzbrunner, B. M., Shinagawa-Matsuko, S., & Krouse, R. (2007). Prospective integration of cultural consideration in biomedical research for patients with advanced cancer: recommendations from an international conference on malignant bowel obstruction in palliative care. Journal of Pain and Symptom Management, 34(1S), 34-39. DOI: 10.1016/j.jpainsymman.2007.04.009.

5.     Knobf, T., Juarez, G., Lee, S., & Sun, V. (2007). Challenges and strategies in recruitment of ethnically diverse populations for cancer nursing research. Oncology Nursing Forum. 34(6), 1187-1194. DOI: 10.1188/07.ONF.1187-1194.

6.     Ricker, C. N., Hiyama, S., Fuentes, S., Feldman, N., Kumar, V., Uman, G. C., et al. (2006). Beliefs and interest in cancer risk in an underserved Latino cohort. Preventive Medicine, 44(3), 241-245. DOI: 10.1016/j.ypmed.2006.08.018.

        Recommended Publications

1.      Transcultural Health Care: A Culturally Competent Approach, 4th Edition
         -    Purnell, L. D., & Paulanka, B. J. (2012).  PA: F. A. Davis Company.  ISBN #: 0803637055.

2.   Cultural Diversity in Health and Illness, 8th Edition
          -    Spector, R. E.  (2012). NJ: Prentice Hall.  ISBN #: 978-0132840064.

3.     Transcultural Concepts in Nursing Care, 6th Edition
           -    Andrews. M. M. & Boyle, J. S.  (2011).   PA: Lippincott Williams & Wilkins.   ISBN #: 0781790379.

4.     Wilson, L. D. (2011). Cultural competency: Beyond the vital signs. Delivering holistic care to African Americans. Nursing
        Clinics of North America, 46, 219-232. DOI: 10.1016/j.cnur.2011.02.007. 

5.     McCormick, A. J. (2011). Self-determination, the right to die, and culture: A literature review. Social Work, 56(2), 119-128.

6.      Tung, W-C. (2011). Hospice care in Chinese culture: A challenge to home care professionals. Home Health Care
         Management & Practice, 23(1), 67-68. DOI: 10.1177/1084822310383000.

7.     Boehmer, U., Miao, X., & Orzonoff, A. (2011). Cancer survivorship and sexual orientation. Cancer, 117(16), 3796-3804.
         DOI: 10.1002/cncr.25950.

8.     Robinsin, K. M. & Monsivais, J. J. (2011). Acculturation, depression, and function in individuals seeking pain management
         in a predominately Hispanic southwestern border community. Nursing Clinics of North America, 46, 193-199.
         DOI: 10.1016/j.cnur.2011.02.009.

9.     Shaw, S. J. & Armin, J. (2011). The ethical self-fashioning of physicians and health care systems in culturally appropriate
         health care. Culture, Medicine, and Psychiatry, 35, 236-261. DOI: 10.1007/s11013-011-9215-1.

10.    Bullock, K. (2011). The influence of culture on end-of-life decision making. Journal of Social Work in End-of-Life &
         Palliative Care, 7, 83-98. DOI: 10.1080/15524256.2011.548048.

11.     Robinson, K. M. & Monsivais, J. J. (2011). Malingering? No evidence in a predominantly Hispanic workers’ compensation
         population with chronic pain. Pain Management Nursing, 12(1), 33-40. DOI: 10.1016/j.pmn.2009.08.002.

12.    Knochel, K. A., Quam, J. K., & Croghan, C. F. (2011). Are old lesbian and gay people well served? Understanding the
         perceptions, preparation, and experiences of aging services providers. Journal of Applied Gerontology, 30(3), 370-389.
         DOI: 10.1177/0733464810369809.

13.    Davies, B., Larson, J., Contro, N. & Cabrera, A. P. (2011). Perceptions of discrimination among Mexican American families
         of seriously ill children. Journal of Palliative Medicine, 14(1), 71-76. DOI: 10.1089/jpm.2010.0315.

14.    Coorenbos, A. Z., Lindhorst, T., Schim, S. M., van Schaik, E., Demiris, G., Wechen, H. A., & Curtis, J. R. (2010).
         Development of a web-based educational intervention to improve cross-cultural communication among hospice
         providers. Journal of Social Work in End-of-Life & Palliative Care, 6, 236–255. DOI: 10.1080/15524256.2010.529022.

15.    Berkman, C. S. & Ko, E. (2010). What and when Korean American older adults want to know about serious illness.
         Journal of Psychosocial Oncology, 28, 244-259. DOI: 10.1080/07347331003689029.

16.    Loiki, J., Gillick, M., Mayer, S., Prager, K., Simon, J. R., Steinberg, A., et al. (2010). The critical role of religion: Caring for
         the dying patient from an Orthodox Jewish perspective. Journal of Palliative Medicine, 13(10), 1267-1271.
         DOI: 10.1089/jpm.2010.0088.

17.    Schim, S. M., Doorenbos, A. Z. (2010). A three-dimensional model of cultural congruence: Framework for intervention.
         Journal of Social Work for End-of-Life & Palliative Care, 6, 256-270. DOI: 10.1080/15524256.2010.529023.

18.    Mazanec, P. M., Daly, B. J., & Townsend, A. (2010). Hospice utilization and end-of-life care decision making of African
         Americans. American Journal of Hospice & Palliative Medicine, 27(8), 560-566. DOI: 10.1177/1049909110372087.

19.    Kehl, K. A., & Gartner, C. M. (2010). Can you hear me now? The experience of a deaf family member surrounding the
         death of loved ones. Palliative Medicine, 24(1), 88-93. DOI: 10.1177/0269216309348180.

20.   Stein, G. L. Beckerman, N. L., & Sherman, P. A. (2010). Lesbian and gay elders and long-term care: Identifying the unique
         psychosocial perspectives and challenges. Journal of Gerontological Social Work, 53, 421-435.
         DOl: 10.1080/01634372.2010.496478.

21.    Anngela-Cole, L., Ka’Opua, L., Busch, M. (2010). Issues confronting social workers in the provision of palliative care
         services in the Pacific Basin (Hawai’i and the U. S. affiliated Pacific Island Nations and territories). Journal of Social Work
         in End-of-Life & Palliative Care, 6, 150-163. DOI: 10.1080/15524256.2010.529015.

22.    Davies, B., Contro, N., Larson, J., & Widger, K. (2010). Culturally-sensitive information sharing in pediatric palliative
         care. Pediatrics, 125(4), e859-e865. DOI: 10.1542/peds.2009-0722.

23.    Crump, S. K., Schaffer, M. A., & Schulte, E. (2010). Critical care nurses’ perceptions of obstacles, supports, and
         knowledge needed in providing quality end-of-life care. Dimensions of Critical Care Nursing, 29(6), p. 297-306.
         DOI: 10.1097/DCC.0b013e3181f0c43c.

24.   Song, M-K., Donovan, H. S., Piraino, B. M., Choi, J., Bernardini, J., Verosky, D., & Ward, S. E. (2010). Effects of an
         intervention to improve communication about end-of-life care among African Americans with chronic kidney disease.
         Applied Nursing Research, 23, 65-72. DOI: 10.1016/j.apnr.2008.05.002.

25.    Kagawa-Singer, M. Dadia, A. V., Yu, M. D., & Surbone, A. (2010). Cancer, culture, and health disparities: Time to chart a
         new course? CA: A Cancer Journal for Clinicians, 60, p. 12-39. DOI: 10.3322/caac.20051.

26.    DeSanto-Madeya, S., Nilsson, M., Loggers, E. T., Paulk, E., Stieglitz, H., Kupersztoch, Y. M. & Prigerson, H. G. (2009).
         Associations between United States acculturation and the end-of-life experience of caregivers of patients with advanced
         cancer. Journal of Palliative Medicine, 12(12). 1143-1149. DOI: 10.1089/jpm.2009.0063.

27.   Mitchell, B. L. & Mitchell, L. C. (2009). Review of the literature on cultural competence and end-of-life treatment
         decisions: The role of the hospitalist. Journal of the National Medical Association, 101(9), 920-926.

28.   Johnstone, M-J. & Kanitsaki, O. (2009). Ethics and advance care planning in a culturally diverse society. Journal of
        Transcultural Nursing, 20(4), 405-416. DOI: 10.1177/1043659609340803.

29.   Davies, B. & Larson, J. (2009). Conducting a qualitative culture study of pediatric palliative care. Qualitative Health
         Research, 19(1), 5-16. DOI: 10.1177/1049732308327346.

30.   Mackinnon, C. J. (2009). Applying feminist, multicultural, and social justice theory to diverse women who function as
         caregivers in end-of-life and palliative home care. Palliative and Supportive Care, 7, 501-512.
         DOI: 10.1017/S1478951509990514.

31.    Guide to Culturally Competent Health Care, 2nd Edition
          -    Purnell, L. D. (2009). PA: F. A. Davis Company.  ISBN #: 0803620640.

32.    Beyond Politics: A Social and Cultural History of Federal Healthcare Conscience Protections
          -    American Society of Law, Medicine & Ethics (2009).

33.    Brown, J. P. & Tracy, J. K. (2008). Lesbians and cancer: An overlooked health disparity. Cancer Causes Control, 19, 1009-
          1020. DOI: 10.1007/s10552-008-9176-z.

34.    Davidson, J. E., Boyer, M. L., Casey, D., Matzel, S. C., Walden, D. (2008). Gap analysis of cultural and religious needs of
          hospitalized patients. Critical Care Nursing Quarterly, 31(2), 119-126.  DOI: 10.1097/01.CNQ.0000314472.33883.d4.

35.    Cultural Diversity in Health and Illness, 7th Edition
          -     Spector, R. E.  (2008). NJ: Prentice Hall.  ISBN: 0135035899.

36.    Pain and Its Transformations: The Interface of Biology and Culture
          -     Coakley, S. & Kaufman Shelemay, K. (2008).  MA: Harvard University Press.  ISBN #: 0674024567.

37.    Caring for Patients from Different Cultures, 4th Edition
          -     Galanti, G. (2008).  PA: University of Pennsylvania Press.  ISBN #: 0812220315.

38.    Padela, A. I. (2007). Islamic medical ethics: A primer. Bioethics, 21(3), p. 169-178.

39.    Mosby's Pocket Guide to Cultural Health Assessment, 4th Edition 
          -     D'Avanzo, C. (2007).  MA: Mosby ISBN #: 032304834X.

40.    Culture, Health and Illness, 5th Edition
          -     Helman, C. G. (2007). UK: Trans-Atlantic Publications, Inc.  ISBN #: 0340914505.

41.    Meador, H. E., & Zazove, P. (2006). Health care interactions with deaf culture. Journal of the American Board of Family
         Medicine, 18(3), 218-222.

42.    Carey, S. M., & Cosgrove, J. F. (2006). Cultural issues surrounding end-of-life care. Current Anasesthesia & Critical
          Care, 17, 263-270. DOI: 10.1016/j.cacc.2006.10.002.

43.    Todd, J., Baldwin, C. M. (2006). Palliative care and culture: An optimistic view. Journal of Multicultural Nursing & Health,
          12(2), 28-32.

44.    Giger, J. N., Davidhizar, R. E., & Fordham, P. (2006). Multi-cultural and multi-ethnic considerations and advanced
           directives: Developing cultural competency. Journal of Cultural Diversity, 13(1), 3-9.

45.    Jenko, M. & Moffitt, S. R. (2006). Transcultural nursing principles. Journal of Hospice and Palliative Nursing, 8(3), 172-
          180.

46.    Schim, S. M., Doorenbos, A. Z., Borse, N. N. (2006). Enhancing cultural competence among hospice staff. American
          Journal of Hospice and Palliative Medicine, 23(5), 404-411. DOI: 10.1177/1049909106292246.

47.    Culture Care Diversity & Universality: A Worldwide Nursing Theory, 2^nd Ed.
          -   Leininger, M. M. & McFarland, M. (2006). MA: Jones & Bartlett Publishers. ISBN: 978-0763734374.

48.    Payne, S., Chapman, A., Holloway, M., Seymour, J. E., & Chau, R. (2005). Chinese community views: Promoting cultural
          competence in palliative care. Journal of Palliative Care, 21(2), 111-116.

49.    Mor, V., Papandonatos, G., & Miller, S. C. (2005). End-of-life hospitalization for African American and non-Latino
          white nursing home residents: Variation by race and facility’s racial composition. Journal of Palliative Medicine, 8(1), 58-
          68. DOI: 10.1089/jpm.2005.8.58.

50.    Winston, C. A., Leshner, P., Kramer, J., & Allen, G. (2005). Overcoming barriers to access and utilization of hospice and
          palliative care services in African-American communities. OMEGA, 50(2), 151-163.

51.     Moller, D. W. (2005). None left behind: Urban poverty, social experience, and rethinking palliative care. Journal of
          Palliative Medicine, 8(1), 17-19. DOI: 10.1089/jpm.2005.8.17.

52.     Winzelberg, G. S., Hanson, L. C., & Tulsky, J. A. (2005). Beyond autonomy: Diversifying end-of-life decision-making
           approaches to serve patients and families. Journal of American Geriatrics Society, 53(6), p. 1046-1050.
           DOI: 10.1111/j.1532-5415.2005.53317.x.

53.     Meador, H. E., & Zazove, P. (2005). Health care interactions with deaf culture. Journal of the American Board of Family
          Medicine, 18(3), 218-222.  DOI: 10.3122/jabfm.18.3.218.

54.    Culture & Clinical Care
          -    Lipson, J. G.,  & Dibble, S. L. (2005).  CA: UCSF Nursing Press.  ISBN #: 0943671221.

55.    Death, Mourning, and Burial: A Cross Cultural Reader
          -    Robben, A. C. G. M. (2005). NJ: Wiley.  ISBN #: 1405114711.

56.    Mazanec, P. & Tyler, M. K. (2003). Cultural considerations in end-of-life care. How ethnicity, age, and spirituality affect
          decisions when death is imminent. American Journal of Nursing, 103(3), 50-58.

57.    Transcultural Nursing: Concepts, Theories, Research, and Practice, 3^rd Edition
          -     Leininger, M. & McFarland, M. (2002). NY: McGraw-Hill. ISBN: 978-0071353977.

58.    Cultural Issues in End-of-Life Decision Making
          -    Braun, K. L., Pietsch, J. H. , & Blanchette, P. L.   (1999).  HI: Sage Publications.  ISBN #: 0761912169
 

         Educational Materials/Curriculum

1.      Cancer Fact Sheets – Intercultural Cancer Council
         -   The Cancer Fact Sheets were created because medically underserved populations, such as racial and ethnic minorities, experience disproportionately greater suffering and compromised health from cancer.       

2.     Fast Facts and Concepts – End of Life/Palliative Education Resource Center (EPERC), Milwaukee, WI
         -    African Americans and End-of-Life Care
         -    Asking about Cultural Beliefs in Palliative Care    
         -    Cultural Aspects of Pain Management, 2nd Edition 
         -    Improving Communication When Hearing Loss is Present 

3.     Pain Care Fast Facts: 5-Minute Clinical Inservice - UW Health, University of Wisconsin Hospital & Clinics, Madison, WI
         -    Cultural Aspects of Pain Management  
 

         Guidelines/Clinical Pathways

1.      Multicultural Health Care: A Quality Improvement Guide – National Committee for Quality Assurance
         -    This guide serves as a resource for those wanting to undertake quality improvement initiatives to improve culturally and linguistically appropriate service and to reduce disparities in care for multicultural patients.

2.     Cultural Competence in Cancer Care, A Healthcare Professional’s Passport – Intercultural Cancer Council
         -   This pocket guide is intended to be a reference along a cultural journey, which health care professionals can explore    when providing cancer care.   

3.     Selected Patient Information Resources in Asian Languages (SPIRAL)
         -   SPIRAL is a joint initiative of the South Cove Community Health Center and Tufts University Hirsh Health Sciences Library.  SPIRAL aims to increase access to Asian-language health information for consumers and health care providers.   
 

     Other Organizational Links