City of Hope Pain & Palliative Care Resource Center  

 


V.    Special Populations
        D.   Cultural Considerations in Palliative Care

This section offers resources related to cultural issues in pain and palliative care and guidelines for  cultural competency.

       City of Hope Publications

1.      Juarez, G., Mayorga, L., Hurria, A., & Ferrell, B. R. (2013). Survivorship education for Latina breast cancer survivors: Empowering survivors through education. Psicooncologia, 10(1), 57-68.  DOI: 10.5209/rev_PSIC.2013.v10.41947.

2.     Juarez, G., Hurria, A., Uman, G. & Ferrell, B. R. (2103). Impact of a bilingual education intervention on the quality of life of Latina breast cancer survivors. Oncology Nursing Society, 40(1), E50-E60. DOI: 10.1188/13.ONF.E50-E60.

3.     Campesino, M., Koithan, M., Ruiz E., Glover, J., Juarez, G., Choi, M., et al. (2012). Surgical treatment differences among Latina and African American breast cancer survivors. Oncology Nursing Forum, 39(4), E324-E331. DOI: 10.1188/12.ONF.E324-E331.

4.     Thrane, S. (2010). Hindu end of life: Death, dying, suffering, and karma. Journal of Hospice & Palliative Nursing, 12(6), 337-342. DOI: 10.1097/NJH.0b013e3181f2ff11.

5.     Fineburg, I. C., Grant, M., Aziz, N. M., Payne, R., Dunn, G. P., Kagawa-singer, M., Palos, G., Kinzbrunner, B. M., Shinagawa-Matsuko, S., & Krouse, R. (2007). Prospective integration of cultural consideration in biomedical research for patients with advanced cancer: recommendations from an international conference on malignant bowel obstruction in palliative care. Journal of Pain and Symptom Management, 34(1S), 34-39. DOI: 10.1016/j.jpainsymman.2007.04.009.

6.     Knobf, T., Juarez, G., Lee, S., & Sun, V. (2007). Challenges and strategies in recruitment of ethnically diverse populations for cancer nursing research. Oncology Nursing Forum. 34(6), 1187-1194. DOI: 10.1188/07.ONF.1187-1194.

7.     Ricker, C. N., Hiyama, S., Fuentes, S., Feldman, N., Kumar, V., Uman, G. C., et al. (2006). Beliefs and interest in cancer risk in an underserved Latino cohort. Preventive Medicine, 44(3), 241-245. DOI: 10.1016/j.ypmed.2006.08.018.


        Recommended Publications

1.      Transcultural Health Care: A Culturally Competent Approach, 4th Edition
         -    Purnell, L. D., & Paulanka, B. J. (2012).  PA: F. A. Davis Company.  ISBN #:
0803637055.

2.   Cultural Diversity in Health and Illness, 8th Edition
          -    Spector, R. E.  (2012). NJ: Prentice Hall.  ISBN #: 978-0132840064.

3.     Transcultural Concepts in Nursing Care, 6th Edition
           -    Andrews. M. M. & Boyle, J. S.  (2011).   PA: Lippincott Williams & Wilkins.   ISBN #: 0781790379.

4.     Wilson, L. D. (2011). Cultural competency: Beyond the vital signs. Delivering holistic care to African Americans. Nursing Clinics of North America, 46, 219-232. DOI: 10.1016/j.cnur.2011.02.007

5.     McCormick, A. J. (2011). Self-determination, the right to die, and culture: A literature review. Social Work, 56(2), 119-128.

6.      Tung, W-C. (2011). Hospice care in Chinese culture: A challenge to home care professionals. Home Health Care
Management & Practice, 23
(1), 67-68. DOI: 10.1177/1084822310383000.

7.     Boehmer, U., Miao, X., & Orzonoff, A. (2011). Cancer survivorship and sexual orientation. Cancer, 117(16), 3796-3804. DOI: 10.1002/cncr.25950.

8.     Robinsin, K. M. & Monsivais, J. J. (2011). Acculturation, depression, and function in individuals seeking pain management in a predominately Hispanic southwestern border community. Nursing Clinics of North America, 46, 193-199. DOI: 10.1016/j.cnur.2011.02.009.

9.     Shaw, S. J. & Armin, J. (2011). The ethical self-fashioning of physicians and health care systems in culturally appropriate health care. Culture, Medicine, and Psychiatry, 35, 236-261. DOI: 10.1007/s11013-011-9215-1.

10.    Bullock, K. (2011). The influence of culture on end-of-life decision making. Journal of Social Work in End-of-Life & Palliative Care, 7, 83-98. DOI: 10.1080/15524256.2011.548048.

11.     Robinson, K. M. & Monsivais, J. J. (2011). Malingering? No evidence in a predominantly Hispanic workers’ compensation population with chronic pain. Pain Management Nursing, 12(1), 33-40. DOI: 10.1016/j.pmn.2009.08.002.

12.    Knochel, K. A., Quam, J. K., & Croghan, C. F. (2011). Are old lesbian and gay people well served? Understanding the perceptions, preparation, and experiences of aging services providers. Journal of Applied Gerontology, 30(3), 370-389. DOI: 10.1177/0733464810369809.

13.    Davies, B., Larson, J., Contro, N. & Cabrera, A. P. (2011). Perceptions of discrimination among Mexican American families of seriously ill children. Journal of Palliative Medicine, 14(1), 71-76. DOI: 10.1089/jpm.2010.0315.

14.    Coorenbos, A. Z., Lindhorst, T., Schim, S. M., van Schaik, E., Demiris, G., Wechen, H. A., & Curtis, J. R. (2010).
Development of a web-based educational intervention to improve cross-cultural communication among hospice
providers.
Journal of Social Work in End-of-Life & Palliative Care, 6, 236–255. DOI: 10.1080/15524256.2010.529022.

15.    Berkman, C. S. & Ko, E. (2010). What and when Korean American older adults want to know about serious illness. Journal of Psychosocial Oncology, 28, 244-259. DOI: 10.1080/07347331003689029.

16.    Loiki, J., Gillick, M., Mayer, S., Prager, K., Simon, J. R., Steinberg, A., et al. (2010). The critical role of religion: Caring for the dying patient from an Orthodox Jewish perspective. Journal of Palliative Medicine, 13(10), 1267-1271.
DOI: 10.1089/jpm.2010.0088.

17.    Schim, S. M., Doorenbos, A. Z. (2010). A three-dimensional model of cultural congruence: Framework for intervention. Journal of Social Work for End-of-Life & Palliative Care, 6, 256-270.
DOI: 10.1080/15524256.2010.529023.

18.    Mazanec, P. M., Daly, B. J., & Townsend, A. (2010). Hospice utilization and end-of-life care decision making of African Americans. American Journal of Hospice & Palliative Medicine, 27(8), 560-566.
DOI: 10.1177/1049909110372087.

19.    Kehl, K. A., & Gartner, C. M. (2010). Can you hear me now? The experience of a deaf family member surrounding the death of loved ones. Palliative Medicine, 24(1), 88-93. DOI: 10.1177/0269216309348180.

20.   Stein, G. L. Beckerman, N. L., & Sherman, P. A. (2010). Lesbian and gay elders and long-term care: Identifying the unique psychosocial perspectives and challenges. Journal of Gerontological Social Work, 53, 421-435.
DOl: 10.1080/01634372.2010.496478.

21.    Anngela-Cole, L., Ka’Opua, L., Busch, M. (2010). Issues confronting social workers in the provision of palliative care services in the Pacific Basin (Hawai’i and the U. S. affiliated Pacific Island Nations and territories). Journal of Social Work in End-of-Life & Palliative Care, 6, 150-163. DOI: 10.1080/15524256.2010.529015.

22.    Davies, B., Contro, N., Larson, J., & Widger, K. (2010). Culturally-sensitive information sharing in pediatric palliative care. Pediatrics, 125(4), e859-e865. DOI: 10.1542/peds.2009-0722.

23.    Crump, S. K., Schaffer, M. A., & Schulte, E. (2010). Critical care nurses’ perceptions of obstacles, supports, and
knowledge needed in providing quality end-of-life care. Dimensions of Critical Care Nursing, 29(6), p. 297-306.
DOI: 10.1097/DCC.0b013e3181f0c43c.

24.   Song, M-K., Donovan, H. S., Piraino, B. M., Choi, J., Bernardini, J., Verosky, D., & Ward, S. E. (2010). Effects of an
intervention to improve communication about end-of-life care among African Americans with chronic kidney disease.
Applied Nursing Research, 23, 65-72.
DOI: 10.1016/j.apnr.2008.05.002.

25.    Kagawa-Singer, M. Dadia, A. V., Yu, M. D., & Surbone, A. (2010). Cancer, culture, and health disparities: Time to chart a new course? CA: A Cancer Journal for Clinicians, 60, p. 12-39. DOI: 10.3322/caac.20051.

26.    DeSanto-Madeya, S., Nilsson, M., Loggers, E. T., Paulk, E., Stieglitz, H., Kupersztoch, Y. M. & Prigerson, H. G. (2009). Associations between United States acculturation and the end-of-life experience of caregivers of patients with advanced cancer. Journal of Palliative Medicine, 12(12). 1143-1149. DOI: 10.1089/jpm.2009.0063.

27.   Mitchell, B. L. & Mitchell, L. C. (2009). Review of the literature on cultural competence and end-of-life treatment
 decisions: The role of the hospitalist. Journal of the National Medical Association, 101(9), 920-926.

28.   Johnstone, M-J. & Kanitsaki, O. (2009). Ethics and advance care planning in a culturally diverse society. Journal of Transcultural Nursing, 20(4), 405-416. DOI: 10.1177/1043659609340803.

29.   Davies, B. & Larson, J. (2009). Conducting a qualitative culture study of pediatric palliative care. Qualitative Health Research, 19(1), 5-16. DOI: 10.1177/1049732308327346.

30.   Mackinnon, C. J. (2009). Applying feminist, multicultural, and social justice theory to diverse women who function as  caregivers in end-of-life and palliative home care. Palliative and Supportive Care, 7, 501-512.
DOI: 10.1017/S1478951509990514.

31.    Guide to Culturally Competent Health Care, 2nd Edition
          -    Purnell, L. D. (2009). PA: F. A. Davis Company.  ISBN #: 0803620640.

32.    Beyond Politics: A Social and Cultural History of Federal Healthcare Conscience Protections
          -   
American Society of Law, Medicine & Ethics (2009).

33.    Brown, J. P. & Tracy, J. K. (2008). Lesbians and cancer: An overlooked health disparity. Cancer Causes Control, 19, 1009-1020. DOI: 10.1007/s10552-008-9176-z.

34.    Davidson, J. E., Boyer, M. L., Casey, D., Matzel, S. C., Walden, D. (2008). Gap analysis of cultural and religious needs of hospitalized patients. Critical Care Nursing Quarterly, 31(2), 119-126.  DOI: 10.1097/01.CNQ.0000314472.33883.d4.

35.    Cultural Diversity in Health and Illness, 7th Edition
          -     Spector, R. E.  (2008). NJ: Prentice Hall.  ISBN: 0135035899.

36.    Pain and Its Transformations: The Interface of Biology and Culture
          -     Coakley, S. & Kaufman Shelemay, K. (2008).  MA: Harvard University Press.  ISBN #: 0674024567.

37.    Caring for Patients from Different Cultures, 4th Edition
          -     Galanti, G. (2008).  PA: University of Pennsylvania Press.  ISBN #: 0812220315.

38.    Padela, A. I. (2007). Islamic medical ethics: A primer. Bioethics, 21(3), p. 169-178.

39.    Mosby's Pocket Guide to Cultural Health Assessment, 4th Edition 
          -     D'Avanzo, C. (2007).  MA: Mosby ISBN #: 032304834X.

40.    Culture, Health and Illness, 5th Edition
          -     Helman, C. G. (2007). UK: Trans-Atlantic Publications, Inc.  ISBN #: 0340914505.

41.    Meador, H. E., & Zazove, P. (2006). Health care interactions with deaf culture. Journal of the American Board of Family Medicine, 18(3), 218-222.

42.    Carey, S. M., & Cosgrove, J. F. (2006). Cultural issues surrounding end-of-life care. Current Anasesthesia & Critical Care, 17, 263-270. DOI: 10.1016/j.cacc.2006.10.002.

43.    Todd, J., Baldwin, C. M. (2006). Palliative care and culture: An optimistic view. Journal of Multicultural Nursing & Health, 12(2), 28-32.

44.    Giger, J. N., Davidhizar, R. E., & Fordham, P. (2006). Multi-cultural and multi-ethnic considerations and advanced directives: Developing cultural competency. Journal of Cultural Diversity, 13(1), 3-9.

45.    Jenko, M. & Moffitt, S. R. (2006). Transcultural nursing principles. Journal of Hospice and Palliative Nursing, 8(3), 172-180.

46.    Schim, S. M., Doorenbos, A. Z., Borse, N. N. (2006). Enhancing cultural competence among hospice staff. American Journal of Hospice and Palliative Medicine, 23(5), 404-411. DOI: 10.1177/1049909106292246.

47.    Culture Care Diversity & Universality: A Worldwide Nursing Theory, 2nd Ed.
          -
   Leininger, M. M. & McFarland, M. (2006). MA: Jones & Bartlett Publishers. ISBN: 978-0763734374.

48.    Payne, S., Chapman, A., Holloway, M., Seymour, J. E., & Chau, R. (2005). Chinese community views: Promoting cultural competence in palliative care. Journal of Palliative Care, 21(2), 111-116.

49.    Mor, V., Papandonatos, G., & Miller, S. C. (2005). End-of-life hospitalization for African American and non-Latino
          white nursing home residents: Variation by race and facility’s racial composition. Journal of Palliative Medicine, 8(1), 58-68. DOI:
10.1089/jpm.2005.8.58.

50.    Winston, C. A., Leshner, P., Kramer, J., & Allen, G. (2005). Overcoming barriers to access and utilization of hospice and palliative care services in African-American communities. OMEGA, 50(2), 151-163.

51.     Moller, D. W. (2005). None left behind: Urban poverty, social experience, and rethinking palliative care. Journal of
          Palliative Medicine, 8
(1), 17-19. DOI:
10.1089/jpm.2005.8.17.

52.     Winzelberg, G. S., Hanson, L. C., & Tulsky, J. A. (2005). Beyond autonomy: Diversifying end-of-life decision-making approaches to serve patients and families. Journal of American Geriatrics Society, 53(6), p. 1046-1050.
DOI: 10.1111/j.1532-5415.2005.53317.x.

53.     Meador, H. E., & Zazove, P. (2005). Health care interactions with deaf culture. Journal of the American Board of Family Medicine, 18(3), 218-222.  DOI: 10.3122/jabfm.18.3.218.

54.    Culture & Clinical Care
          -    Lipson, J. G.,  & Dibble, S. L. (2005).  CA: UCSF Nursing Press.  ISBN #: 0943671221.

55.    Death, Mourning, and Burial: A Cross Cultural Reader
          -    Robben, A. C. G. M. (2005). NJ: Wiley.  ISBN #: 1405114711.

56.    Mazanec, P. & Tyler, M. K. (2003). Cultural considerations in end-of-life care. How ethnicity, age, and spirituality affect decisions when death is imminent. American Journal of Nursing, 103(3), 50-58.

57.    Transcultural Nursing: Concepts, Theories, Research, and Practice, 3rd Edition
          -
     Leininger, M. & McFarland, M. (2002). NY: McGraw-Hill. ISBN: 978-0071353977.

58.    Cultural Issues in End-of-Life Decision Making
          -    Braun, K. L., Pietsch, J. H. , & Blanchette, P. L.   (1999).  HI: Sage Publications.  ISBN #:
0761912169
 

         Educational Materials/Curriculum

1.      Cancer Fact Sheets – Intercultural Cancer Council
         -
   The Cancer Fact Sheets were created because medically underserved populations, such as racial and ethnic minorities, experience disproportionately greater suffering and compromised health from cancer.       

2.     Fast Facts and Concepts – End of Life/Palliative Education Resource Center (EPERC), Milwaukee, WI
         -    African Americans and End-of-Life Care
         -    Asking about Cultural Beliefs in Palliative Care
    
         -    Cultural Aspects of Pain Management, 2nd Edition 
         -    Improving Communication When Hearing Loss is Present 

3.     Pain Care Fast Facts: 5-Minute Clinical Inservice - UW Health, University of Wisconsin Hospital & Clinics, Madison, WI
       
 -    Cultural Aspects of Pain Management  
 

         Guidelines/Clinical Pathways

1.      Multicultural Health Care: A Quality Improvement Guide – National Committee for Quality Assurance
         -
    This guide serves as a resource for those wanting to undertake quality improvement initiatives to improve culturally and linguistically appropriate service and to reduce disparities in care for multicultural patients.

2.     Cultural Competence in Cancer Care, A Healthcare Professional’s Passport – Intercultural Cancer Council
         -
   This pocket guide is intended to be a reference along a cultural journey, which health care professionals can explore    when providing cancer care.   

3.     Selected Patient Information Resources in Asian Languages (SPIRAL)
         -   SPIRAL is a joint initiative of the South Cove Community Health Center and Tufts University Hirsh Health Sciences Library.  SPIRAL aims to increase access to Asian-language health information for consumers and health care providers. 
 
 

     Other Organizational Links

         Cancer Health Disparities

         CATIE Center: Interpreter Education for the Deaf Culture                
         Cross Cultural Health Care Program

         Cultural Competency: Program for Multicultural Health

         Cultural Diversity in Healthcare

         Cultural Diversity in Nursing

         Diversity Rx

 

         Ethnomed (Ethnic Medicine Information)

 

         Gay and Lesbian Health: American Public Health Association

         Intercultural Cancer Council
         Intercultural Communication Institute  
         Minority Nurse: What Color is Your Pain?  
         Multicultural Health Clearinghouse  
         Multicultural Palliative Care Guidelines  
         National Center for Cultural Competence  

         National Center on Minority Health & Health Disparities

 

         National Coalition of Ethnic Minority Nurse Associations  
         National Standards on Culturally and Linguistically Appropriate Services  
         Office of Minority Health  

         Provider's Guide to Quality & Culture

 

         Think Cultural Health

 

         Transcultural C.A.R.E. Associates

 

         Transcultural Nursing Society  

             


Send mail to: prc@coh.org
 
Unless otherwise noted, all materials are $3.00 each copy for printing and mailing when ordered by mail. There is no charge for materials available on this website.
 
Website last modified: January 3, 2014