V. Special Population

This section includes books and guidelines along with information on professional organizations focused on HIV/AIDS care.

      

City of Hope Publications 

1. Malloy, P., Paice, J., Ferrell, B. R., Ali, Z., Munyoro, E., Coyne, P., & Smith, T. (2011). Advancing palliative care in Kenya. Cancer  Nursing, 34(1), E10-E13. DOI: 10.1097/NCC.0b013e3181ea73dd.

        Recommended Publications 

1. The Sanford Guide to HIV/AIDS Therapy 2014, 22^nd Edition
   Saag, M. S., Chambers, H. F., Eliopoulos, G. M., Gilbert, D. N., & Moellering, R. C. (2011).  VA: Antimicrobial Therapy, Inc.       ISBN: 978-1930808638.    
     
2. HIV Essentials 2014, 7^th Edition
   Sax, P. E., Cohen, C. J., & Kuritzkes, D. R. (2014). MA: Jones & Bartlett Publishers. ISBN #: 0763777099.
    
3. MMHIV: Medical Management of HIV Infection, 16th Edition
    - Bartlett, J. G., Gallant, J. E., & Pham, P.A. (2012).
       MD: Knowledge Source Solutions.
        ISBN: 978-0983711100.
       
   A Guide to Primary Care of People with HIV/AIDS
    - Bartlett, J. G., Cheever, L. W., Johnson, M. P., &
       Paauw, D. S. (2012). U. S. Department of Health &
       Human Services    A Pocket Guide to Adult
       HIV/AIDS Treatment
    - Bartlett, J. G. (2012). U. S. Department of Health &
      Human Services.
    
4. 100 Questions and Answers About HIV and AIDS, 2nd Edition
   Gallan, J. (2012). NM: Jones and Bartlett Publishers. ISBN: 978-1449655174.
    
5. Fausto, J. A., & Selwyn, P. A. (2011). Palliative care in the management of advanced HIV/AIDS. Primary Care Clinics in Office Practice, 38, 311-326. DOI: 10.1016/j.pop.2011.03.010.  
    
6. Lyon, M. E. Garvie, P. A., Kao, E., Briggs, L., He, J., Malow, R., et al. (2011). Spirituality in HIV-infected adolescents and their families: FAmily CEntered (FACE) advance care planning and medication adherence. Journal of Adolescent Health, 48,  633-636. DOI: 10.1016/j.jadohealth.2010.09.006.
    
7. Ruiz, M. & Cefalu, C. (2011). Palliative care program for Human Immunodeficiency Virus-infected patients: Rebuilding of an academic urban program. American Journal of Hospice & Palliative Medicine, 28(1), 16-21. 
   DOI: 10.1177/1049909110371468.
    
8. Chu, C. & Selwyn, P. A. (2011). An epidemic in evolution: The need for new models of HIV care in the chronic disease era. Journal of Urban Health: Bulletin of the New York Academy of Medicine. 
   DOI: 10.1007/s11524-011-9552-y.
    
9. Penn, C., Watermeyer, J. & Evans, M. (2011). Why don’t patients take their drugs? The role of communication, context and culture in patient adherence and the work of the pharmacist in HIV/AIDS. Patient Education and Counseling, 83, 310-318. DOI: 10.1016/j.pec.2011.02.018.  
    
10. Krug, R., Karus, D., Selwyn, P. A., & Raveis, V. H. (2010). Late-stage HIV/AIDS patients’ and their familial caregivers’ agreement on the palliative care outcome scale. Journal of Pain and Symptom Management, 39(1), 23-32.                DOI: 10.1016/j.jpainsymman.2009.05.010.
     
11. Breitbart, W., Rosenfeld, B., Gibson, C., Kramer, M., Li, Y., Tomarken, A., et al. (2010). Impact of treatment for depression on desire for hastened death in patients with advanced AIDS. Psychosomatics, 51(2), 98-105. 
    DOI: 10.1176/appi.psy.51.2.98.
     
12. Hillier S. L., Louw Q., Morris L., Uwimana J., & Statham S. (2010). Massage therapy for people with HIV/AIDS. Cochrane Database of Systematic Reviews 2010, Issue 1. DOI: 10.1002/14651858.CD007502.pub2.
     
13. DeMarco, R. F. (2010). Palliative care and African American women living with HIV. Journal of Nursing Education, 49(8), 462-465. DOI: 10.3928/01484834-20100430-08.
     
14. ANAC’s Core Curriculum for HIV/AIDS in Nursing, 3^rd Edition
    -Association of Nurses in AIDS Care. (2010). MA: Jones & Bartlett Publishers. ISBN #: 0763754595.
     

15. Handbook of HIV and Social Work: Principles, Practice, and Populations
     -Poindexter, C. C. (2010). NJ: John Wiley & Sons, Inc. ISBN: 978-0470260937

16. Hayajneh, F. A., Al-Hussami, M. (2009). Predictors of quality of life among women living with Human Immunodeficiency Virus/AIDS. Journal of Hospice and Palliative Nursing, 11(5), 255-261.  

17. Richter, L., Chandan, U., & Rochat, T. (2009). Improving hospital care for young children in the context of HIV/AIDS and poverty. Journal of Child Health Care, 13(3), 198-211. DOI: 10.1177/1367493509336680.

18. Simpkins, E. P., Silberry, G. K. & Hutton, N. (2009). Thinking about HIV infection. Pediatrics in Review, 30, 337-349.               
    DOI: 10.1542/pir.30-9-337.

19. Kell, M. W. & Walley, J. D. (2009)l. Palliative care for HIV in the era of antiretroviral therapy availability: Perspectives of nurses in Lesotho. BMC Palliative Care, 8(11). DOI: 10.1186/1472-684X-8-11. 

20. Harding, R., Brits, H., & Penfold, S. (2009). Paediatric antiretrovital therapy outcomes under HIV hospice care in South Africa. International Journal of Palliative Nursing, 15(3), 142-145. 

21. The Workgroup on Palliative and End-of-Life Care in HIV/AIDS Workgroup (2009). Integrating palliative care into the continuum of HIV care: An agenda for change.  

22. The Person with HIV/AIDS: Nursing Perspectives, 4^th Edition.
     -Durham, J. D. & Lashley, F. R. (2009). NY: Springer Publishing Company. ISBN: 978-0826121370.    

23. Lyon, M. E., Williams, P. L., Woods, E. R., Hutton, N., Butler, A. M., Sibinga, E., et al. (2008). Do-not-resuscitate orders and/or hospice care, psychological health, and quality of life among children/adolescents with Acquired Immune Deficiency Syndrome. Journal of Palliative Medicine, 11(3), 459-469. DOI: 10.1089/jpm.2007.0148.

24. Hughes, A., Davies, B., & Gudmundsdottir, M. (2008). “Can you give me respect?” Experiences of the urban poor on a dedicated AIDS nursing home unit. Journal of the Association of Nurses in AIDS Care, 19(5), 342-356.                   
    DOI: 10.1016/j.jana.2008.04.008.

25. Morgan, B. D. & Kochan, K. A. (2008). I’ll always want more: Complex issues in HIV palliative care. Journal of Hospice and Palliative Nursing, 10(5), 265-271.                   
    DOI: 10.1097/01.NJH.0000319176.48165.44.

26. Allen, D. & Marshall, E. S. (2008). Children with HIV/AIDS: A vulnerable population with unique needs for palliative care. Journal of Hospice and Palliative Nursing, 10(6), 359-367. 
    DOI: 10.1097/01.NJH.0000319188.09154.6c.
     

          Educational Materials/Curriculum

1. Fast Facts and Concepts – Palliative Care network of Wisconsin (PCNOW)
    - Cannabinoids in the Treatment of Symptoms in  
      Cancer and AIDS  #093 
    - Prognosis in HIV and AIDS  #213  
    - Prognosis in HIV Associated Malignancies  #214 

      Guidelines/Clinical Pathways

1. AIDS Education & Training Centers National Resource Center
    - Guides for HIV/AIDS Clinical Care
    - 12 Considerations for Providing Timely HIV/AIDS
      Care
    - Clinician Reference Tools       
    
2. AIDS/HIV Guidelines & Recommendations - Center for Disease Control and National Prevention Information Network
    
3. Towards Universal Access: Scaling Up Priority HIV/AIDS Interventions in the Health Sector - World Health Organization    -Download the complete 2010 progress report. 
    
4. Resource Guide for Providing Palliative Care Services through the Ryan White CARE Act  
   - U. S. Department of Health & Human Services.
    

        Other Organizational Links

AIDS.org
AIDS Answers
AIDS Healthcare Foundation
AIDS Info
AIDS ~ Official Journal of the International AIDS          Society
AIDS Meds
AIDS Project Los Angeles
amFAR AIDS Research
Association of Nurses in AIDS Care  (ANAC)
Avert
Elizabeth Glaser Pediatric AIDS Foundation
GMHC (Gay Men’s Health Crisis)
HIV/AIDS
HIV/AIDS Clinical Care
HIV/AIDS Program ~ Indian Health Services
HIV Clinical Resource
HRSA HIV/AIDS Program
International Association of Providers of AIDS Care            (IAPAC)
Pediatric HIV/AIDS Care, Inc
The Body: The Complete HIV/AIDS Resource
U.S. National HIV/AIDS Hotlines & Resources
Women, Children, and HIV

          Position Statements/Standards

1. American Nurses Association
   -Bloodborne and Airborne Diseases
    
2. Association of Nurses in AIDS Care (ANAC)   
   -Positions Statements on HIV/AIDS
    
3. The International Council of Nurses
   -HIV Infection and AIDS