V.   Special Populations
        F.   HIV/AIDS

This section includes books and guidelines along with information on professional organizations focused on HIV/AIDS care.

       City of Hope Publications 

1.      Malloy, P., Paice, J., Ferrell, B. R., Ali, Z., Munyoro, E., Coyne, P., & Smith, T. (2011). Advancing palliative care in Kenya. Cancer Nursing, 34(1), E10-E13. DOI: 10.1097/NCC.0b013e3181ea73dd.

      Recommended Publications 

1.     Fausto, J. A., & Selwyn, P. A. (2011). Palliative care in the management of advanced HIV/AIDS. Primary Care Clinics in Office Practice, 38, 311-326. DOI: 10.1016/j.pop.2011.03.010. 

2.     Lyon, M. E. Garvie, P. A., Kao, E., Briggs, L., He, J., Malow, R., et al. (2011). Spirituality in HIV-infected adolescents and their families: FAmily CEntered (FACE) advance care planning and medication adherence. Journal of Adolescent Health, 48,  633-636. DOI: 10.1016/j.jadohealth.2010.09.006.

3.     Ruiz, M. & Cefalu, C. (2011). Palliative care program for Human Immunodeficiency Virus-infected patients: Rebuilding of an academic urban program. American Journal of Hospice & Palliative Medicine, 28(1), 16-21.
DOI: 10.1177/1049909110371468.

4.     Chu, C. & Selwyn, P. A. (2011). An epidemic in evolution: The need for new models of HIV care in the chronic disease era. Journal of Urban Health: Bulletin of the New York Academy of Medicine. DOI: 10.1007/s11524-011-9552-y.

5.     Penn, C., Watermeyer, J. & Evans, M. (2011). Why don’t patients take their drugs? The role of communication, context and culture in patient adherence and the work of the pharmacist in HIV/AIDS. Patient Education and Counseling, 83, 310-318. DOI: 10.1016/j.pec.2011.02.018.

6.     The Sanford Guide to HIV/AIDS Therapy 2011, 19^th Edition
 -          Saag, M. S., Chambers, H. F., Eliopoulos, G. M., Gilbert, D. N., & Moellering, R. C. (2011).  VA: Antimicrobial Therapy, Inc. ISBN: 978-1930808638.           

7.     Krug, R., Karus, D., Selwyn, P. A., & Raveis, V. H. (2010). Late-stage HIV/AIDS patients’ and their familial caregivers’ agreement on the palliative care outcome scale. Journal of Pain and Symptom Management, 39(1), 23-32.
DOI: 10.1016/j.jpainsymman.2009.05.010.

8.     Breitbart, W., Rosenfeld, B., Gibson, C., Kramer, M., Li, Y., Tomarken, A., et al. (2010). Impact of treatment for depression on desire for hastened death in patients with advanced AIDS. Psychosomatics, 51(2), 98-105.
DOI: 10.1176/appi.psy.51.2.98.

9.     Hillier S. L., Louw Q., Morris L., Uwimana J., & Statham S. (2010). Massage therapy for people with HIV/AIDS. Cochrane Database of Systematic Reviews 2010, Issue 1. DOI: 10.1002/14651858.CD007502.pub2.

10.    DeMarco, R. F. (2010). Palliative care and African American women living with HIV. Journal of Nursing Education, 49(8), 462-465. DOI: 10.3928/01484834-20100430-08.

11.      ANAC’s Core Curriculum for HIV/AIDS in Nursing, 3^rd Edition
         -     Association of Nurses in AIDS Care. (2010). MA: Jones & Bartlett Publishers. ISBN #: 0763754595.

12.     Handbook of HIV and Social Work: Principles, Practice, and Populations
        -      Poindexter, C. C. (2010). NJ: John Wiley & Sons, Inc. ISBN: 978-0470260937

13.    HIV Essentials 2010, 3^rd Edition
         -      Sax, P. E., Cohen, C. J., & Kuritzkes, D. R. (2010). MA: Jones & Bartlett Publishers. ISBN #: 0763777099.

14.    Hayajneh, F. A., Al-Hussami, M. (2009). Predictors of quality of life among women living with Human Immunodeficiency Virus/AIDS. Journal of Hospice and Palliative Nursing, 11(5), 255-261.

15.     Richter, L., Chandan, U., & Rochat, T. (2009). Improving hospital care for young children in the context of HIV/AIDS and poverty. Journal of Child Health Care, 13(3), 198-211. DOI: 10.1177/1367493509336680.

16.     Simpkins, E. P., Silberry, G. K. & Hutton, N. (2009). Thinking about HIV infection. Pediatrics in Review, 30, 337-349. DOI: 10.1542/pir.30-9-337.

17.     Kell, M. W. & Walley, J. D. (2009)l. Palliative care for HIV in the era of antiretroviral therapy availability: Perspectives of nurses in Lesotho. BMC Palliative Care, 8(11). DOI: 10.1186/1472-684X-8-11.

18.     Harding, R., Brits, H., & Penfold, S. (2009). Paediatric antiretrovital therapy outcomes under HIV hospice care in South Africa. International Journal of Palliative Nursing, 15(3), 142-145.

19.     The Workgroup on Palliative and End-of-Life Care in HIV/AIDS Workgroup (2009). Integrating palliative care into the continuum of HIV care: An agenda for change. 

20.     100 Questions and Answers About HIV and AIDS
           -       Gallan, J. (2009). NM: Jones and Bartlett Publishers. ISBN: 0763750425.

21.     The Person with HIV/AIDS: Nursing Perspectives, 4^th Ed.
           -      Durham, J. D. & Lashley, F. R. (2009). NY: Springer Publishing Company. ISBN: 978-0826121370.          

22.     Lyon, M. E., Williams, P. L., Woods, E. R., Hutton, N., Butler, A. M., Sibinga, E., et al. (2008). Do-not-resuscitate orders and/or hospice care, psychological health, and quality of life among children/adolescents with Acquired Immune Deficiency Syndrome. Journal of Palliative Medicine, 11(3), 459-469. DOI: 10.1089/jpm.2007.0148.

23.     Hughes, A., Davies, B., & Gudmundsdottir, M. (2008). “Can you give me respect?” Experiences of the urban poor on a dedicated AIDS nursing home unit. Journal of the Association of Nurses in AIDS Care, 19(5), 342-356.
DOI: 10.1016/j.jana.2008.04.008.

24.     Morgan, B. D. & Kochan, K. A. (2008). I’ll always want more: Complex issues in HIV palliative care. Journal of Hospice and Palliative Nursing, 10(5), 265-271. DOI: 10.1097/01.NJH.0000319176.48165.44.

25.     Allen, D. & Marshall, E. S. (2008). Children with HIV/AIDS: A vulnerable population with unique needs for palliative care. Journal of Hospice and Palliative Nursing, 10(6), 359-367. DOI: 10.1097/01.NJH.0000319188.09154.6c.

26.     Nilmanat, K. & Street, A. F. (2007). Karmic quest: Thai family caregivers promoting a peaceful death for people with AIDS. Contemporary Nurse, 27(1), 94-103.

27.     The First Year: HIV: An Essential Guide for the Newly Diagnosed, 2nd Edition
          -     Grodeck, B., & Berger, D. (2007). Marlowe & Company.  MN: Marlowe Press.  ISBN #: 1600940137.

28.     The Complete HIV/AIDS Teaching Kit with CD-Rom
          -    Card, J., Amarillas, A., Conner, A., Dull Akers, D., Solomon, J. & Di Clemente, R. (2007). NY: Springer Publishing Company.  ISBN #: 0826103162.   

29.     HIV/AIDS Primary Care Guide
          -    Beal, J., Orrick, J., Alfonso, K., & Rathore, M. (2006). Crown House Publishing.  ISBN #: 1845900278.

30.    The Guide to Living with HIV Infection: Developed at the Johns Hopkins AIDS Clinic, 6th Edition
           -    Bartlett, J. G., & Finkbeiner, A. (2006).  MD: Johns Hopkins University Press.  ISBN #:08011884681.
          A Guide to Primary Care of People with HIV/AIDS
          -     Bartlett, J. G., Cheever, L. W., Johnson, M. P., & Paauw, D. S. (2004). U. S. Department of Health & Human Services.
          A Pocket Guide to Adult HIV/AIDS Treatment
        -    Bartlett, J. G. (2004). U. S. Department of Health & Human Services.

31.     Be Prepared: The Complete Financial, Legal, and Practical Guide to Living with Cancer, HIV, and other Life-Challenging Conditions
          -      Landay, D. (2000).  NY: St. Martin's Griffin. ISBN #: 0312253745.    

          Educational Materials/Curriculum

1.       Fast Facts and Concepts – End of Life/Palliative Education Resource Center (EPERC), Milwaukee, WI
         For a complete listing of Fast Facts and Concepts 
         -       Cannabinoids in the Treatment of Symptoms in Cancer and AIDS, 2nd Ed. #093
         -       Prognosis in HIV and AIDS 
         -       Prognosis in HIV Associated Malignancies 

2.      Palliative Care for People with HIV/AIDS - The Center for Palliative Care Education, Seattle, WA
         -      Provides medical educators with curriculum materials and support documents for training health providers in HIV/AIDS palliative care.
 

      Guidelines/Clinical Pathways

1.        CDC AIDS/HIV Guidelines & Recommendations - Center for Disease Control and National Prevention & Information Network

2.       AIDS Education & Training Centers National Resource Center
          These materials are available online in Adobe Acrobat PDF.
           -       Guides for HIV/AIDS Clinical Care
           -       Clinician Support Tools
           -       HIV/AIDS Clinician Toolkit 
           -       Primary Care Guidelines

3.       Towards Universal Access: Scaling Up Priority HIV/AIDS Interventions in the Health Sector - World Health Organization
           -      Download the complete 2010 progress report.

4.        A Resource Guide for Providing Palliative Care Services through the Ryan White CARE Act  - U. S. Department of Health & Human Services.
 

        Other Organizational Links

        Position Statements/Standards

1.        American Nurses Association
          -      Bloodborne and Airborne Diseases

2.        Association of Nurses in AIDS Care (ANAC)  
           -     Positions Statements on HIV/AIDS

3.       The International Council of Nurses
         -      HIV Infection and AIDS