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V. Special Population
         A.  Family Caregiving

This section includes publications regarding the experiences of family caregiving for a loved one in pain or at the end of life.

       City of Hope Publications

  1. Sun, V., Grant, M., Koczywas, M., Freeman, B., Zachariah, F., Fujinami, R., Del Ferraro, C., Uman, G. & Ferrell, B. (2015). Effectiveness of an interdisciplinary palliative care intervention for family caregivers in lung cancer. Cancer.
    DOI: 10.1002/cncr.29567
     

  2. Juarez, G., Branin, J., Rosales, M. (2014). The cancer caregiving experience of caregivers of Mexican Ancestry.Hispanic Health Care International, 12(3), 120-129. DOI: 10.1891/1540-4153.12.3.120.
     

  3. Fujinami, R., Sun, V., Zachariah, F., Uman, G., Grant, M., & Ferrell, B. (2014). Family caregivers' distress levels related to quality of life, burden, and preparedness. Psycho-Oncology, Published online May 2014.   DOI: 10.1002/pon.3562.
     

  4. Hanson, J., Ferrell, B., & Grant, M. (2013). Websites and Resources for Cancer Family Caregivers. J Adv Pract Oncol 4(4), 269-272
     

  5. Grant, M., Sun, V., Fujinami, R., Sidhu, R., Otis-Green, S., Juarez, G., Klein, L., & Ferrell, B. (2013). Family caregiver burden, skills preparedness, and quality of life in non-small cell lung cancer. Oncology Nursing Forum, 40(4), 337-346.  
    DOI: 10.1188/13.ONF.337-346.

     

  6. Ferrell, B. R., Hanson, J., & Grant, M. G. (2012). An overview and evaluation of the oncology family caregiver project: improving quality of life and quality of care for oncology family caregivers. Psycho-Oncology, published online. DOI: 10.1002/pon.3198.
     

  7. Fujinami, R., Otis-Green, S., Klein, L., Sidhu, R., and Ferrell, B. (2012). Quality of life of family caregivers and challenges faced in caring for patients with lung cancer. Clinical Journal of Oncology Nursing, 16(6), 615; On-Line: E210-220. 
     

  8. Given, B., & Grant, M. (2012). Studies of caregivers of older patients needed.  Journal of Geriatric Oncology, 3(4), 295-298.  DOI: 10.1016/j.jgo.2012.07.007.
     

  9. Grant, M., & Ferrell, B. R. (2012). Oncology family caregivers: Introduction. Seminars in Oncology Nursing, 28(4), 203-204. DOI: 10.1016/j.soncn.2012.09.001. 
     

  10. Grant, M., & Ferrell, B. R. (2012).  Nursing role implications for family caregiving.  Seminars in Oncology Nursing, 28(4), 279-282.
    DOI: 10.1016/.j.soncn.2012.09.011. 
     

  11. Otis-Green, S., Juarez, G. (2012). Enhancing the social well-being of family caregivers. Seminars in Oncology Nursing, 28(4), 246-255.
    DOI: 10.1016/j.soncn.2012.09.007. 
     

  12. Wittenberg-Lyles, E., Demiris, G., Oliver, D. P., & Burt, S. (2011). Reciprocal suffering: Caregiver concerns during hospice care. Journal of Pain and Symptom Management, 41(2), 383-393. 
    DOI: 10.1016/j.jpainsymman.2010.04.026.
     

  13. Ferrell, B. R., Grant, M., Koczywas, M., Hurria, A., Loscalzo, M., Juarez, G., Otis-Green, S., Uman, G., & Borneman, T. (2011). Family caregiver QOL and self-care concerns in lung cancer. CHEST, 140(4_MeetingAbstracts), 1051A-1051A.  
    DOI
    : 10.1378/chest.1114776.
     

  14. Bevans, M., Castro, K., Prince, P., Shelburne, N., Prachenko, O., Loscalzo, M., et al. (2010). An individualized dyadic problem-solving education intervention for patients and family caregivers during allogeneic hematopoietic stem cell transplantation. Cancer Nursing, 33(2), e24-e32. DOI: 10.1097/NCC.0b013e3181be5e6d.
     

  15. Cooke, L., Gemmill, R., Kravits, K., & Grant, M. (2009). Psychological issues of stem cell transplant. Seminars in Oncology Nursing, 25(2), 139-150. DOI: 10.1016/j.soncn.2009.03.008.
     

  16. Juarez, G., Ferrell, B. R., Uman, G., Podnos, Y., & Wagman, L. D. (2008). Distress and quality of life concerns of family caregivers of patients undergoing palliative surgery. Cancer Nursing, 31(1), 2-10.
     

  17. Muñoz, C., Juarez, G., Muñoz, M. L., Portnow, J., Fineman, I., Badie, B., et al. (2008). The quality of life of patients with malignant gliomas and their caregivers. Social Work in Health Care, 47(4), 455-478. DOI: 10.1080/00981380802232396.
     

  18. Morris, M. E., Grant, M., & Lynch, J. C. (2007). Patient-reported family distress among long-term cancer survivors.Cancer Nursing, 30(1), 1-8. 
     

  19. Borneman, T., Chu, D., Wagman, L., Ferrell, B., Juarez, G., McCahill, L., & Uman. G. (2003). Concerns of family caregivers of patients with cancer facing palliative surgery for advanced malignancies 
    Oncology Nursing Forum
    , 30(6), 997-1005.   DOI: 
    10.1188/03.ONF.997-1005.
     

  20. Borneman. T., Stahl, C., Ferrell, B. R., & Smith D. (2002). The concept of hope in family caregivers of cancer patients at home Journal of Hospice and Palliative Nursing, 4(1), 21-33. 
     

  21. Ferrell, B. R., Ervin, K., Smith. S., Marek, T., Melancon, C. (2002). Family perspectives of ovarian cancer. Cancer Practice, 10(6), 269-276. DOI: 10.1046/j.1523-5394.2002.106001.x.
     

  22. Ferrell, B. R. (2001).  Pain observed: The experience of pain from the family caregiver’s perspective.  Clinics in Geriatric Medicine, 17(3), 595-609.
     

        Recommended Publications

  1. Cure's 2014 Cancer Guide: Combining science with humanity, CURE makes cancer understandable.  
     

  2. Principles and Practice of Palliative Care and Supportive Oncology, 4th Edition, esp. Section II: #54 Caregiving in the Home
    - Berger, A. M., Shuster Jr., J. L., Von Roenn, J. H. (2012). MA: Lippincott Williams & Wilkins.  ISBN: 978-1451121278.   
     

  3. What You Need to Know as a Cancer Caregiver
    -
     American Cancer Society. (2012). American Cancer Society.      
     

  4. Given, B., Given, C., & Sherwood, P. (2012). The challenge of quality cancer care for family caregivers. Seminars in      Oncology Nursing, 28(4), 205-212. DOI: 10.1016/j.soncn.2012.09.002.
     

  5. Glajchen M. (2012). Physical well-being of oncology caregivers: An important quality-of-life domain. Seminars in Oncology Nursing, 28(4), 226-235. DOI: 10.1016/j.soncn.2012.09.005.
     

  6. Jayani, R, Hurria, Arti. (2012). Caregivers of Older Adults With Cancer.  Seminars in Oncology Nursing, 28(4), 221-225.   DOI:10.1016/j.soncn.2012.09.004.   
     

  7. Jones, B. (2012). The challenge of quality care for family caregivers in pediatric cancer care. Seminars in Oncology Nursing, 28(4), 213-220. 
    DOI: 
    10.1016/j.soncn.2012.09.003.
     

  8. Mazanec, P. (2012). Distance caregiving a parent with cancer. Seminars in Oncology Nursing, 28(4), 271-278.  DOI: 10.1016/j.soncn.2012.09.010.
     

  9. Northouse, L, Katapodi, M, Schafenacker, A, Weiss, D. (2012). The impact of caregiving on the psychological well-being of  family caregivers and cancer patients. Seminars in Oncology Nursing, 28(4), 236-245.   DOI: 10.1016/j.soncn.2012.09.006.
     

  10. Wittenberg-Lyles, E., Demiris, G., Oliver, D. P., & Burt, S. (2011). Reciprocal suffering: Caregiver concerns during hospice  care. Journal of Pain and Symptom Management, 41(2), 383-393. 
    DOI: 10.1016/j.jpainsymman.2010.04.026.
     

  11. Oxford Textbook of Palliative Social Work
     
    Altilio, T. & Otis-Green, S. (2011) NY: Oxford
        University Press. ISBN: 978-0199739110.

              Chapter 21: Caregivers in Palliative Care
              Chapter 22: Families and Family Conferencing
              Chapter 26: The Why’s and Wherefores of Support Groups
            Chapter 27: Social Work and Technology: The Software and Hard Drive of Patient and Family Care

            Chapter 37: Palliative Social Work with Older Adults and Their Families
            Chapter 43: Social Work and Child Life: A Family’s Journey with Childhood Cancer
     

  12. Help Wanted: Caregiver
    -
     Pinchot, L. J. (2011). PA: Oncology Nursing Society. ISBN: 978-1890504977
     

  13. American Cancer Society Complete Guide to Family Caregiving: The Essential Guide to Cancer Caregiving at Home, 2nd Ed.
    - Bucher, J. A., Houts, P. S., & Ades, T. (Eds). (2011). Atlanta, GA: American Cancer Society.  ISBN: 978-0944235003.
         

  14. Handbook for Mortals – Guidance for People Facing Serious Illness, 2nd Edition  
    - Lynn, J. & Harrold, J. (2011).  UK: Oxford University Press. ISBN: 0199744564.   
     

  15. A Caregiver’s Guide to the Dying Process 
    - Hospice Foundation of America. (2011).            
     

  16. Northouse, L. L., Katapodi, M. C., Song, L., Zhang, L., Mood, D. W. (2010). Interventions with family caregivers of cancer  patients: Meta-analysis of randomized trials. CA: A Cancer Journal for Clinicians, 60(5), 317-339.
    DOI: 10.3322/caac.20081.
     

  17. Burns, C. M., LeBlanc, T. W., Abernethy, A., & Currow, D. (2010). Young caregivers in the end-of-life setting: Apopulation-based profile of an emerging group. Journal of Palliative Medicine, 13(10), 1225-1235. DOI: 10.1089/jpm.2010.0004.
     

  18. Blum, K., & Sherman, D. W. (2010). Understanding the experience of caregivers: A focus on transitions. Seminars in Oncology Nursing, 26(4), 243-258. DOI: 10.1016/j.soncn.2010.08.005.
     

  19. Francis, L. E., Worthington, J., Kypriotakis, G., Rose, J. H. (2010). Relationship quality and burden among caregivers forlate-stage cancer patients. Support Care Cancer, 18, 1429-1436. DOI: 10.1007/s00520-009-0765-5.
     

  20. Northfield, S., & Nebauer, M. (2010). The caregiving journey for family members or relatives with cancer: How do they cope? Clinical Journal of Oncology Nursing, 14(5), 567-577.
    DOI: 10.1188/10.CJON.567-577.
     

  21. Foster, T. L., Lafond, D. A., Reggio, C., & Hinds, P. S. (2010). Pediatric palliative care in childhood cancer nursing: From diagnosis to cure or end of life. Seminars in Oncology Nursing, 26(4), 205-221. DOI: 10.1016/j.soncn.2010.08.003.
     

  22. Oliver, D. P., Demiris, G., Wittenberg-Lyles, E., Porock, D., Collier, J., & Arthur, A. (2010). Caregiver participation in hospice interdisciplinary team meetings via videophone technology: A pilot study to improve pain management.American Journal of Hospice and Palliative Medicine, 27(7), 465-473. DOI: 10.1177/1049909110362402.
     

  23. Reflections of a Loving Partner: Caregiving at the End of Life 
    - Martin, C. A. (2010). Naples, FL: Quality of Life Publishing Co. ISBN: 978-0981621937.
     

  24. Dying with Comfort: Family Illness Narratives and Early Palliative Care 
    - Wittenberg-Lyles, E., Goldsmith, J., Ragan, S. L., & Sanchez-Reilly, S. (2010). NJ: Hampton Press. 
    ISBN: 1572739843.
     

  25. The Survivorship Net: A Parable for the Family, Friends, and Caregivers of People with Cancer
    -
     Owens, J. Cass, B. (2010). GA: American Cancer Society. ISBN: 978-1604430189.          
     

  26. Passages in Caregiving: Turning Chaos into Confidence
    -
     Sheehy, G. (2010). NY: HarperCollins Publishers. ISBN: 978-0061661204.          
     

  27. Oxford Textbook of Palliative Nursing, 4th Edition
      - Ferrell, B. R., Coyle, N., & Paice, J.,  (2015). NY:
         Oxford University Press. ISBN: 9780199332342
          Chapter 4: Principles of Patient and Family
          Assessment
          Chapter 30: Supporting Families in Palliative Care
     

  28.  The Caregiver’s Path to Compassionate Decision Making: Making Choices for Those Who Can’t
     -
     Kind, V. (2010). TX: Greenleaf Book Group. ISBN: 978-1608320417.  
     

  29. Cancer Journey: A Caregiver’s View From the Passenger Seat
     -
     Siegfried, C. Z. (2010). WA: Pleasant Word. ISBN: 978-1414115498.      
     

  30. Harden, J., Falahee, M., Bickes, J., Schafenacker, A., Walker, J., Mood, D., & Northouse, L. (2009). Factors associated with prostate cancer patients’ and their spouses’ satisfaction with a family-based intervention. Cancer Nursing, 32(6), 482-492. DOI: 10.1097/NCC.0b013e3181b311e9.
     

  31. Hinds, P. S., Oakes, L. L., Hicks, J., Powell, B., Srivastava, D. K., Spunt, S. L., et al. (2009). “Trying to be a good parent” as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children. Journal of Clinical Oncology, 27(35), 5979-5985. DOI: 10.1200/JCO.2008.20.0204.
     

  32. Bakas, T., Farran, C. J., Austin, J. K., Given, B. A., Johnson, E. A., & Williams, L. S. (2009). Content validity and satisfaction with a stroke caregiver intervention program. Journal of Nursing Scholarship, 41(4), 368-375. 
    DOI: 10.1111/j.1547-5069.2009.01282.x.
     

  33. Bradley, S. E., Sherwood, P. R., Kuo, J., Dammerer, C. M., Gettig, E. A., Ren, D., et al. (2009). Perceptions of economic hardship and emotional health in a pilot sample of family caregivers. Journal of Neurooncology, 93(3), 333-342. 
    DOI: 10.1007/s11060-008-9778-z.
     

  34. Family Carers in Palliative Care: A Guide for Health and Social Care Professionals
    - Hudson, P. & Payne, S. (2009). NY: Oxford University Press.  ISBN: 0199216908        
     

  35. Caregiving in the U.S.    
    - Pew Research Internet Project (2012).
     

  36. Harden, J., Northouse, L. Cimprich, B., Pohl, J. M., Liang, J., & Kershaw, T. (2008). The influence of developmental life stage on quality of life in survivors of prostate cancer and their partners. Journal of Cancer Survivorship, 2(2), 84-94. 
    DOI: 10.1007/s11764-008-0048-z.
     

  37. Pritchard, M., Burghen, E., Srivastava, D. K., Okuma, J., Anderson, L, Powell, B., et al. (2008). Cancer-related symptoms most concerning to parents during the last week and last day of their child’s life. Pediatrics, 121, e1301-e1310.
    DOI: 10.1542/peds.2007-2681.
     

  38. Honea, N. J., Brintnall, R., Given, B., Sherwood, P., Colao, D. B., Somers, S. C., & Northouse, L. L. (2008). Putting evidence into practice: Nursing assessment and interventions to reduce family caregiver strain and burden Clinical Journal of Oncology Nursing, 12(3), 507-516.
    DOI: 10.1188/08.CJON.507-516.
     

  39. Supporting Family Caregivers 
     -
      American Journal of Nursing, (2008). 108(9-Suppl). Entire issue devoted to family caregiver issues.
     

  40. Cancer Caregiving A-to-Z: An At-Home Guide for Patients and Families  
      -
     American Cancer Society (2008). GA: American Cancer Society. ISBN: 978-0944235928.
     

  41. Assuring Healthy Caregivers, A Public Health Approach to Translating Research into Practice: The RE-AIM Framework 
    - Centers for Disease Control & Prevention.  (2008).   

     

  42. Kwak, J., Salmon, J. R., Acquaviva, K. D., Brandt, K., & Egan, K. A. (2007). Benefits of training family caregivers on experiences of closure during end-of-life care. Journal of Pain and Symptom Management, 33(4), 434-445. 
    DOI: 10.1016/j.jpainsymman.2006.11.006.

     

  43. Doorenbos, A. Z., Given, B., Given, C. W., Wyatt, G., Gift, A., Ruhbar, M., Jeon, S. (2007). The influence of end-of-life cancer care on caregivers. Research in Nursing & Health, 30, 270-281.
    DOI: 10.1002/nur.20217.
     

  44. Northouse, L. L., Mood, D. W., Schafenacker, A., Montie, J. E., Sandler, H. M., Forman, J. D., et al. (2007).Randomized clinical trial of a family intervention for prostate cancer patients and their spouses. CANCER, 110(12), 2809-2818. 
    DOI: 10.1002/cncr.23114.

     

  45. A Family Caregiver Speaks Up: It Doesn’t Have to Be This Hard
    -
     Mintz, S. G. (2007). VA: Capital Books, Inc. ISBN: 978-1933102467.
     

  46. Sherwood, P. R., Given, B. A., Given C. W., Schiffman, R. F., Murman, D. L., Lovely, M., et al. (2006). Predictors of distress in caregivers of persons with a primary malignant brain tumor. Research in Nursing & Health, 29, 105-120. 
    DOI: 10.1002/nur.20116.
     

  47. Schumacher, K. L., Beidler, S. M., Beeber, A. S., Gambino, P. (2006). A transactional model of cancer family caregiving skill.  Advances in Nursing Science, 29(3), 271-286.
     

  48. Kim, Y., Loscalzo, M. J., Wellisch, D. K., & Spillers, R. L. (2006). Gender differences in caregiving stress among caregivers of cancer survivors. Psycho-Oncology, 15, 1086-1092. DOI: 10.1002/pon.1049.
     

  49. Lewis, F. M. (2006). The effects of cancer survivorship on families and caregivers. American Journal of Nursing, 106(3-Suppl), 20-21, 23-25. 
     

  50. Given, B. & Sherwood, P. R. (2006). Family care for the older person with cancer. Seminars in Oncology Nursing, 22(1), 43-50.
    DOI: 10.1016/j.soncn.2005.10.006.
     

  51. Given, B., Given, C. W., Sirorskii, A., Jeon, S., Sherwood, P., & Rahbar, M. (2006). The impact of providing symptom management assistance on caregiver reaction: Results of a randomized trial. Journal of Pain and Symptom Management, 32(5), 433-443.
    DOI: 10.1016/j.jpainsymman.2006.05.019.
     

  52. The Emotional Survival Guide for Caregivers: Looking After Yourself and Your Family While Helping an Aging Parent
    -
     Jacobs, B. J. (2006). NY: The Guilford Press. ISBN: 978-1572307292.
     

  53. Northouse, L. L. (2005). Helping families of patients with cancer. Oncology Nursing Forum, 32(4), 743-750.    DOI: 10.1188/05.ONF.743-750.
     

  54. Glajchen, M., Kornblith, A., Homel, P., Fraidin, L, Mauskop, A., & Portenoy, R. K. (2005). Development of a brief assessment scale for caregivers of the medically ill. Journal of Pain and Symptom Management, 29(3), 245-254. 
    DOI: 10.1016/j.jpainsymman.2004.06.017.
     

  55. Sherwood, P. R., Given, C. W., Given, B. A., von Eye, A. (2005). Caregiver burden and depressive symptoms: Analysis of common outcomes in caregivers of elderly patients. Journal of Aging and Health, 17(2), 125-147. 
    DOI: 10.1177/0898264304274179.
     

  56. Salmon, J. R., Kwak, J., Acquaviva, K. D., Egan, K. A., Brandt, K. (2005). Validation of the caregiving at life’s end questionnaire. American Journal of Hospice & Palliative Medicine, 22(3), 188-194.
    DOI: 10.1177/104990910502200307.
     

  57. When the Focus Is on Care: Palliative Care and Cancer  
    - Foley, K. M., Back, A., Bruera, E., Coyle, N., Loscalzo, M. J., Shuster, J. L., Teschendorf, B., & von Roenn, J. H. (Eds.) (2004). GA: American Cancer Society. ISBN: 978-0944235539. 
     

  58. Breast Cancer Husband How to Help Your Wife (and Yourself) Through Diagnosis, Treatment, and Beyond
    - Silver, M. (2004). PA: Rodale Inc. ISBN: 
    978-1579548339. 
     

  59. Northouse, L., Kershaw, T., Mood, D., Schafenacker, A. (2004). Effects of a family intervention on the quality of life of women with recurrent breast cancer and their family caregivers. Psycho-Oncology, 14, 478-491. DOI: 10.1002/pon.871.
     

  60. Glajchen, M. (2004). The emerging role and needs of family caregivers in cancer care. Journal of Supportive Oncology ,  2(2), 145-155.  
     

  61. Williams, R., Hinds, P. S., Ke, W., & Hu, X. J. (2004). A comparison of calorie and protein intake in hospitalized pediatric oncology patients dining with a caregiver versus patients dining alone: A randomized, prospective clinical trial. Journal of Pediatric Oncology Nursing, 21(4), 223-232. DOI: 10.1177/1043454204265861.
     

  62. Haley, W. E. (2003). Family caregivers of elderly patients with cancer: Understanding and minimizing the burdens of care. Supportive Oncology, 1(2, Supp.), 25-29.
     

  63. Caregiving and Loss: Family Needs, Professional Responses
    -
     Hospice Foundation of America 
     

  64. Caregiving: The Spiritual Journey of Love, Loss, and Renewal
    -
     McLeod, B. W. (2000). NY: John Wiley & Sons, Inc. ISBN: 978-0471392170.             


       
  Educational Materials/Curriculum

  1. And Thou Shalt Honor
    -
     A PBS Series, forums and support for caregivers, patients, and health care professionals.  
     

  2. APA Caregiver Briefcase - American Psychological Association
    -
     This Briefcase provides psychologists at all levels of
       training and experience with information about:
       how  caregiving affects all of us; facts about family
       caregiving; common caregiving problems; how to
       identify and reach   caregivers; roles psychologists
       have in working with family caregivers; assessment
       tools and effective interventions; conducting
       caregiver research; educating and teaching about
       caregiving; advocating for family caregivers;
       resources for diverse populations and age groups.
     

  3. Averting the Caregiving Crisis: Why We Must Act Now  
    - Rosalynn Carter Institute for Caregiving
                 
     

  4. Family Caregivers in Cancer: Roles and Challenges 
     -
     National Cancer Institute
     

  5. Fast Facts and Concepts - Palliative Care Network of Wisconsin (PCNOW)

    Over 200 Fast Facts, a PDA version and a Discussion
    Blog

              -     Asking about Cultural Beliefs in Palliative Care  #216

              -     Broaching the Topic of  a Palliative Care Consultation with Patients and Families, 2nd Edition  #42 

              -     Grief in Children and Developmental Concepts of Death  #138

              -     Helping Surrogates Make Decisions  #226

              -     Hospice Referral: Moving from Hospital to Home  #139

              -     Implementation of a Family Presence During Resuscitation Protocol #233 

              -     Information for Patients and Families About Ventilator Withdrawal, 2nd Edition  #35

              -     Preparing for the Family Meeting  #222

              -     Responding to Emotion in Family Meetings  #224 

              -     Teaching the Family What to Expect When the Patient is Dying   #149 

              -     The Family Meeting: Causes of Conflict  #225

              -     The Family Meeting: End of Life Goal Setting and Future Planning   #227  

              -     The Family Meeting: Starting the Conversation  #223

              -     What Do I Tell the Children, 2nd Edition   #47
     

  6. Help for Cancer Caregivers
    - Help for Cancer Caregivers, a new resource, helps
       cancer caregivers manage their own health and
        wellness needs.  
      
       It is an interactive, personalized web tool that gives
        the right information at the right time to help
        lessen stress throughout the caregiving experience.
     

  7.  Home Alone: Family Caregivers Providing Complex Chronic Care
    Reinhard, S., Levine, C., & Samis, S. (2012).  AARP and United Hospital Fund.  
       

  8. Navigating Cancer Caregiver Survey
    Navigating Cancer surveyed 326 cancer caregivers through an online survey in October 2010.  The survey results revealed significant emotional, financial and physical strain on the cancer caregiver community, as well as a lack of comprehensive resources to support their needs.
     

  9.  Orientation to Caregiving: A Handbook for Family Caregivers of Patients with Serious Illness
    A handbook on what to expect as a family caregiver. This handbook is a product of the Caregivers Project, a
    collaboration between the UCSF Osher Center for Integrative Medicine & UCSF Department of Neurological       Surgery.
     

  10. Partners in Healing
    - This site provides practical tools, encouragement and inspiration to those wanting to be a source of healing for a 
       loved one.  Book, instructional DVD, and CD. Focuses on simple massage and touch techniques that caregivers can 
       use for their loved ones.    

     
  11.  Standards for Social Work Practice with Family Caregivers of Older Adults
             -
         National Association of Social Workers

       
      Other Organizational Links

 

 

 

 

 

 

 

 

 

        

      Key References from Comprehensive Cancer Centers

     
 
National Cancer Institute Comprehensive Cancer
     Centers        
         

          
The following comprehensive cancer centers have family caregiver support and/or resource pages:

 

     1.     The Cancer Institute of New Jersey, Robert Wood Johnson Medical School - New Brunswick, New Jersey
- Caregiving Links     

   2.     City of Hope National Medical Center - Duarte, California
- Sheri & Les Biller Patient and Family Resource
  Center

          

    3.    MD Anderson Cancer Center - University of Texas, Houston, Texas

            - Family-Centered Care       

            - One-on-One Support (Patient and Caregiver Support Line)

            - Patient and Family Support

    4.    Memorial Sloan-Kettering Cancer Center - New York, New York

            - Counseling & Support for Caregivers & Families

            - A Guide for Caregivers

 

    5.    Norris Cotton Cancer Center - Dartmouth-Hitchcock Medical Center, Lebanon, New Hampshire

            -Patient & Family Support Services

            -Caring for Someone with Cancer Group   

            -Shared Decision Making

 

   6.      The James -  Ohio State University Comprehensive Cancer Center, Columbus, Ohio
- 
Patient and Caregiver Support Groups

 

   7.      Roswell Park Cancer Institute  - Buffalo, New York  

             - BMT Orientation and Caregiver Program

             - Role of Caregivers          

  

   8.    Sidney Kimmel Comprehensive Cancer Center - Johns Hopkins University, Baltimore, Maryland

           -Being a Caregiver

           -Caregivers Video Series: Walking on Eggshells

 

   9.   University of Michigan Comprehensive Cancer Center - Ann Arbor, Michigan

          - Thrive: Focusing on the Caregiver  

          - Living with Cancer

          - Caring for the Caregiver FAQ

          - Caregivers benefit from cancer support programs     

 

  10.    UW Carbone Cancer Center - University of Wisconsin, Madison, Wisconsin

            - Caregiver Tips

            - Caregiver Role Strain             
 

   11.     UCSF Helen Diller Family Comprehensive Cancer
                Center - University of California, San Francisco,
                California

            -
 Caregivers: Support for Family Caregivers of Loved
                Ones with Serious Illness
  
            - Ida & Joseph Friend Cancer Resource Center

 

   12.    Vanderbilt-Ingram Cancer Center - Vanderbilt University, Nashville, Tennessee

             - The Hope Connection: Talk with someone who’s been there

             - Stress within the Family or Couple

             - Cancer Supportive Care Clinic


  

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