III. Palliative Care

B. Communication

This section includes City of Hope publications and other resources and publications related to palliative care communication.

       City of Hope Publications

  1. Wittenberg-Lyles, E., Parker Oliver, D., Demiris, G., Swarz J, Rendo M. (2014). YouTube as a tool for pain management with informal caregivers of cancer patients: A systematic review. Journal of Pain and Symptom Management, 48(6), 1200-1210. DOI: 10.1016/j.jpainsymman.2014.02.015.
  2. Goldsmith, J., Wittenberg-Lyles, E., Frisby B, Small Platt, C. (2014). The entry-level physical therapist: A case for COMFORT communication training. Health Communication, 22, 1-9. DOI: 10.1080/10410236.2014.898014.
  3. Wittenberg-Lyles, E., Goldsmith, J., Ferrell, B., & Burchett, M. (2014). Assessment of an interprofessionalonline curriculum for palliative care communication training. Journal of Palliative Medicine, 17(x) 1-7. 
    DOI: 10.1089/jpm.2013.0270.
  4. Wittenberg-Lyles, E., Goldsmith, J., & Ferrell, B. (2013).  Oncology nurse communication barriers to patient-centered care. Clinical Journal of Oncology Nursing, 17(2), 152-158.         DOI: 10.1188/13.CJON.152-158.
  5. Goldsmith, J., Ferrell, B., Wittenberg-Lyles, E., & Ragan, S. (2013). Palliative care communication and oncology nursing. Clinical Journal of Oncology Nursing, 17(2), 163-167.          DOI: 10.1188/13.CJON.163-167.
  6. Wittenberg-Lyles, E., Goldsmith, J., Richardson, B., Hallett, J., & Clark, R. (2013). The practical nurse: A case for COMFORT curriculum training. American Journal of Hospice and Palliative Care, 30(2), 162-6. PMID: 22584148.              DOI: 10.1177/1049909112446848.
  7. Goldsmith, J., & Wittenberg-Lyles, E. (2013). COMFORT: Evaluating a new communication curriculum with nurse leaders. Journal of Professional Nursing, 29, 388-394.           DOI:10.1016/j.profnurs.2012.05.017.
  8. Wittenberg-Lyles, E., Goldsmith, J., Ferrell, B., Parker Oliver, D., & Pfeifle, A. (2012). COMFORT-IPE: Communication training for Interprofessional Patient-Centered Care. MedEd Portal Publications Online.
  9. Wittenberg-Lyles E, Goldsmith J, Oliver D, Demiris, & G, Rankin A,. (2012). Targeting communication interventions to decrease caregiver burden. Seminars in Oncology Nursing, 28(4), 262-270. 
  10. Wittenberg-Lyles, E., Demiris, G., Ferrellm B. R. & Shaunfield, S. (2012). Volunteers as facilitators of communication about pain: A feasibility study. Research on Aging, 34(2), 246-253. 
  11. Mazanec, P., Daly, B., Ferrell, B. R., Prince-Paul, M. (2011). Lack of communication and control: Experiences of distance caregivers of parents with advanced cancer. Oncology Nursing Forum, 38(3), 307-313. 
  12. Malloy, P., Virani, R., Kelly, K., & Munevar, C. (2010). Beyond bad news: Communication skills of nurses in palliative care. Journal of Hospice and Palliative Nursing, 12(3), 166-174. DOI: 10.1097/NJH.0b013e3181d99fee.
  13. Wittenberg-Lyles, E., Oliver, D. P., Demiris, G., & Baldwin, P. (2010). The ACTive intervention in hospice interdisciplinary team meetings: Exploring family caregiver and hospice team communication. Journal of Computer-Mediated Communication, 15, 465-481. DOI: 10.1111/j.1083-6101.2010.01502.x.  
  14. Villagran, M., Goldsmith, J., Wittenberg-Lyles, E., & Baldwin, P. (2010). Creating COMFORT:  Acommunication-based model for breaking bad news. Communication Education, 59(3), 220-234. 
    DOI: 10.1080/0363452100362403
  15. Wittenberg-Lyles, E., Goldsmith, J., & Ragan, S. (2010). The COMFORT initiative: Palliative nursing and the centrality of communication. Journal of Hospice & Palliative Nursing, 12(5), 293-297.  
    DOI: 10.1097/NJH.0b013e3181ebb45e
  16. Matzo, M., Sherman, D., Sheehan, D., Ferrell, B. R., & Penn, B. (2003). Communication skills for end-of-life nursing care: Teaching strategies from the ELNEC curriculum Nursing Education Perspectives, 24(4), 176-183.

 Recommended Publications

  1. Communication in Palliative Nursing
     -Wittenberg-Lyles, E., Goldsmith, J., Ferrell, B., & Ragan, S. (2012). New York, NY: Oxford University Press.  ISBN: 978-0199796823.  
  2. New Challenges in Communication with Cancer Patients 
     -Surbone, A., Zwitter, M., Rajer, M., & Stiefel, R. (Eds). (2012). NY: Springer.  ISBN: 978-1461433682.
  3. Penn, C., Watermeyer, J. & Evans, M. (2011). Why don’t patients take their drugs? The role of communication, context and culture in patient adherence and the work of the pharmacist in HIV/AIDS. Patient Education and Counseling, 83, 310-318. DOI: 10.1016/j.pec.2011.02.018. 
  4. Dying with Comfort: Family Illness Narratives and Early Palliative Care
    Wittenberg-Lyles, E. & Goldsmith, J. (2010). NY: Hampton Press.  ISBN: 978-1572739857.
  5. Coorenbos, A. Z., Lindhorst, T., Schim, S. M., van Schaik, E., Demiris, G., Wechen, H. A., & Curtis, J. R. (2010). Development of a web-based educational intervention to improve cross-cultural communication among hospice providers. Journal of Social Work in End-of-Life & Palliative Care, 6, 236–255. 
    DOI: 10.1080/15524256.2010.529022.
  6. Bowman, K. F., Rose, J. H., Radziewicz, R. M., O’Toole, E. E., & Berila, R. A (2009). Family caregiver engagement in a coping and communication support intervention tailored for advanced cancer patients and families. Cancer Nursing, 32(1), 73-81.            DOI: 10.1097/01.NCC.0000343367.98623.83. 
  7. Zhukovsky, D. S., Herzog, C. E., Kaur, G., Palmer, J. L., & Bruera, E. (2009). The impact of palliative care consultation on symptom assessment, communication needs, and palliative interventions in pediatric patients with cancer. Journal of Palliative Medicine, 12(4), 343-349.        DOI: 10.1089=jpm.2008.0152.
  8. Song, M-K., Donovan, H. S., Piraino, B. M., Choi, J., Bernardini, J., Verosky, D., & Ward, S. E. (2010). Effects of an intervention to improve communication about end-of-life care among African Americans with chronic kidney disease. Applied Nursing Research, 23, 65-72.        DOI: 10.1016/j.apnr.2008.05.002.
  9. Communication as Comfort: Multiple Voices in Palliative Care
     -Ragan, S. L, & 
    Wittenberg-Lyles, E. (2008). NY: Routledge.  ISBN: 978-0805858082.  

      Educational Materials/Curriculum

  1. Communication Cards for Patients and Their Care Team - City of Hope, Duarte, CA
     -Pain assessment tools include phrases in English, Spanish, Chinese, Armenian and Korean.
  2.  End-of-Life Care: Improving Communication Skills to Enhance Palliative Care  
     -Learn the differences between hospice and palliative care, and how to communicate with patients and families to learn their end-of-life wishes.  CE credits offered by Medscape Nurses without fee for this Web-based continuing education program. (One time-free registration required to access Medscape.) 
  3. Patient-Centered Communication in Cancer Care: Promoting Healing and Reducing Suffering
    -This monograph lays the foundation for future innovative research in the area of patient-centered 
     communication in oncology as well as other illness settings.  Highlights include: conceptualization of patient-centered communication into six key functions; emphasis on research that examines the relationship between  patient-centered communication and patient health outcomes; detailed discussion of potential mediating and 
      moderating mechanisms of the association between communication and patient outcomes; and identification of specific research priorities that would guide NCI in planning future research initiatives in this important area.

      Other Organizational Links

         Communicating wit Patients  

         Comfort Communication Project 


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